My brother is on that clinical trial that you're speaking of at Dana Farber. (For what it's worth, it's also at MGH if you know someone there). Chris has been seeing Dr. Jeff Meyerhardt in the GI oncology group at DF, who has been very compassionate through the entire process. He also apparently is doing something right as Chris just had a 23.8% (but who's counting?!) reduction in his tumors. Unfortunately, because Chris is so young (25), no one is really that up front about where his tumors are, how large they are, and how much they need to shrink before he will become a surgical candidate. I suspect that Dr. Meyerhardt will be much more up front with you if you want him to be (it just seems that no one in my family really wants to hear the whole story and I am not in a position to pry). Anyway, feel free to contact me at email@example.com if you'd like more information on Dr. Meyerhardt, Dana Farber or the trial. I will help out to the best of my ability.
I am heart-broken to hear about Sam. His service sounds wonderful. Please let us know if there is anything we can do. Our thoughts are with you.
Some news on AZD2171, the new Avastin. It is offered through AstraZeneca. I have a cousin in Florida who is a sales rep for AstraZeneca and I just e-mailed her to see if she could get us more info on it. Looks like the trial in England is the only one open to CC patients unless the liver trial will take a cc patient. My oncologist is interested in getting me on the trial before I start Avastin. I don't mind travelling to England to get enrolled. I wonder if they would let me do follow ups in America or if they would accept Americans. Sure would love to see Londaon, Liverpool (I'm a huge Beatles fan), and the James Herriot country, Scotland, the Cliffs of Dover. Actually, I've wanted to go to England for some time , more than anywhere else. This may be my chance. Will let you know what I find out.]]>
I am trying to develop a comprehensive data base of treatments and individual responses. If you are willing to share your experiences, please email me at
woodyb @ cox.net
and I will forward the suvey form and send you periodic updates of everything I learn.
The Johnsons haven't posted for a while. Does anyone know how Sam and his wife are doing?
My husband is on the ABCo2 trial at the moment and drew just the gemcitabine the last scan showed stable disease ,but no shrinkage . He has 2more treatments in thsi trial .we are now thinking ahead .and I was wondering where the XL119 study is taking place and if it is open to people who have had chemo already ? as we understand some trials are not . he also will havea 2nd surgical opinion with Proff Lodge after the Gemcitabine has finished
That is great news. Please let us know how things go on the trial.
Excellent news re your stable tumors. Good to hear that the Gemzar + Xeloda combo seems to be working. I think I mentioned before that here in the UK this combo is referred to as GemCap and a recent trial for patients with advanced pancreatic cancer showed the combo to be more effective than Gemzar alone.
Good news on Wednesday. My blood work continues to look good and while my scan results were mixed, most of my tumors are stable. The ones that have grown haven't grown that much, so we are very encouraged. The oncologist feels it's the Xeloda that's really making the difference. Additionally, I am no longer anemic. I've added red meat back to my diet and I had a big steak dinner on Tuesday night, so I don't know if that helped or not.
I did also have my Gemzar infusion on Wednesday as well. We have decided to have a port installed next week which will access a vein near the collarbone for blood draws and chemo. We won't start the Avastin until the port has been in a week or two and the risk of infection for the port insertion is over. The chemo drugs slow the healing process, and the Avastin would further complicate this, so Dr. Bergen doesn't want to add Avastin right away.
My hand-foot syndrome has really flared up today. My feet are red, sore, hot, and peeling. So I'm going to suspend the Xeloda for two or three days.
All for now. It's late and I must get to bed.