http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=258 Sun, 05 Nov 2006 00:33:41 +0000 PunBB 1.4.2 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=1147#p1147 That is exactly what I was thinking also.  I know that it would be most helpful to us as my husband may be beginning chemo again after Thanksgiving.  Even though I check in on the website every day it is difficult to recall current treatments and outcomes.  If this is at all possible, it would be great.  Thanks!

]]> Sun, 05 Nov 2006 00:33:41 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=1147#p1147 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=1146#p1146 This website is great.  We check in on everyone daily.  What I would really like to see though is updated patient profiles.  If we updated monthly and posted how everyone is doing and what their treatment is now, it would be very useful to see the trends in what is working for people.  How it is now, it shows treatments, but not the outcome of the treatments.  I'd be more that willing to help in those updates.
Thanks.

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