discussion boards — And now... it's on for Chemo!

Re: And now... it's on for Chemo!

null@example.com (wallsm1) — Thu, 19 Jan 2012 05:57:19 +0000

Michaeal,

Best of luck with your chemo treatments. I had a port placed and I'm glad I have it.

Best wishes and keep us posted!

Susie

Re: And now... it's on for Chemo!

null@example.com (tiff1496) — Wed, 18 Jan 2012 21:12:28 +0000

HamptonSarasota wrote:

I do Gemzar this Friday, off next, and then we do the double with Gemzar and Cisplatin which I'm told takes a LOT longer... Talk to you soon.
Derin

Cisplatin does take a lot longer! My Gemzar is about 30 min. The cisplatin takes a little over an hour. Plus I get potassium and magnesium they also take about an hour each. Glad I only go every 14 days! LOL

Re: And now... it's on for Chemo!

null@example.com (HamptonSarasota) — Wed, 18 Jan 2012 13:39:22 +0000

Michael,
Got your email, planned on calling towards the end of the week since I didn't know when you would officially be 'out' of the hospital. Sorry to hear about the spread. To answer your questions, I had the first dose of Gemzar Friday and have not taken anything since for nausea or anything. No real side effects to speak of yet. I have been to the gym on Monday and yesterday so I'm still doing my typical routine. I have treatment at Florida Cancer Specialists, on Cattlemen north of Fruitville right behind Sam's Club. Dr. Richard Buck is my oncologist, and he is fantastic. Never rushes you, answers all of your questions and is overall just a nice guy too! You can tell he cares and is very serious about what he does. He is in contact with Sloan Kettering about my plan and has no problem consulting with other Oncologists either (I would expect that he would have no issues with talking to Moffitt either).

I do Gemzar this Friday, off next, and then we do the double with Gemzar and Cisplatin which I'm told takes a LOT longer... Talk to you soon.
Derin

Re: And now... it's on for Chemo!

null@example.com (marions) — Wed, 18 Jan 2012 00:15:51 +0000

Gavin..I just knew that you would chime in on my weather complaint. Thanks for the chuckle.
Best wishes to you too
Hugs
Marion

Re: And now... it's on for Chemo!

null@example.com (Gavin) — Tue, 17 Jan 2012 21:48:58 +0000

Hi Michael,

Thats great news on your bili levels, thanks for sharing with us all. You are indeed ready to start and I hope that all goes well on the 30th with that, plesae let us know how that goes for you. And as far as your 78.F goes, enjoy that! We certainly ain't getting that around here right now, or in summer sometimes!! And Marion, 22F overnight for you?? Awwww.....I feel for you, honestly, I really do! Ha! Sorry I couldn't resist!!

Best wishes,

Gavin

Re: And now... it's on for Chemo!

null@example.com (marions) — Tue, 17 Jan 2012 20:53:26 +0000

Michael and Lainy...I feel cheated. Last night's temperatures dropped to 22 F - this is Northern California - we are supposed to be living in the Golden State.
Michael - great news on the drop of the bilirubin; the antibiotics did the job.
I agree, the port eliminates poking, missing, prodding and should be accessed without causing any pain.
Enjoy your time off.
All my best wishes,
Marion

Re: And now... it's on for Chemo!

null@example.com (Lainy) — Tue, 17 Jan 2012 20:34:33 +0000

YEA, Michael, this is good news! Isn't it just awful to have to wish Chemo on anyone? Best of luck on the 30th and I know you will keep us up to date! BTW, it's 70 in Phoenix with sunny skies and a visit from a Grandson who left a blizzard in Milwaukee!

And now... it's on for Chemo!

null@example.com (walkingthepath) — Tue, 17 Jan 2012 20:26:45 +0000

It is a beautiful day in Sarasota. Temperature 78 deg F, fluffy clouds in a blue sky, light breeze. Shhh! Don't tell anyone!

After 6+ months of elevated bilirubin, I learned today that I'm down to 2.2 - low enough to start chemo. And not a moment too soon. I've metastasized to both lobes and to the abdominal lining, maybe more. I'm ready to start! Scheduled for first dose Jan 30th, right after I finish my antibiotic regimen for the infection of last week. FWIW, I'm done with the Therasphere trial, it didn't work for me.

I've been following with interest Derin's story, regarding what chemo to use. My Onc is also being very cautious and will start me only on Gemzar at first to see how I tolerate. We can't let the bilirubin rise. Derin, I emailed you but maybe it got lost. Where are you going here for treatment? I'm driving up to Moffitt - one hour each way, but once initial dosage and followup is done I can get the infusions locally.

Following the recommendations of several on this list, I've decided to get a port. I figure, "Why wait?" I've been a blood donor for 30 years and now I'm getting stuck and IV'd weekly, sometimes daily. It's getting harder some days to get a good line. The phlebotomysts (sp?) are great at Moffitt but the clinical nurses don't always stick me with the same ease. I can see the scarring and am tired of putting up with "fishing". And has anyone else noticed how veins will roll when you lose confidence with the nurse's needle stick?

Had my bilirubin not gone down, I was given one other option (other than palliative). Moffitt is part of an NCI Phase 1 study of the effectiveness of belinostat for patients with hepatic dysfunction. I'll post that info on the Alternative Treatments board.

Best to al,
Michael