discussion boards — choices of chemo

Re: choices of chemo

null@example.com (jon) — Wed, 31 Oct 2012 08:26:39 +0000

Hi,
I am currently reading many things on chemo and as my brother's doctor informed him, it might be that especially at the beginning of chemo, the markers level rises - it is of course not a general fact as every body reacts differently. All best for you!

Re: choices of chemo

null@example.com (wallsm1) — Sat, 20 Oct 2012 19:50:11 +0000

LeeAnn,

My tumor marker went up a little while I was on chemo. I went even higher with radiation. I think it has a lot to do with inflammation in the body and is not always indicative of cancer progression.
It still worried me when it went up, so I know how you feel.

Take care,

Susie

Re: choices of chemo

null@example.com (Lainy) — Sat, 20 Oct 2012 19:30:29 +0000

LeeAnn, I am doing cartwheels (not an easy thing anymore). Yeah! I had a feeling it was all OK. Shrink, shrink, shrink and stable! Excellent! What a good weekend we are having on this Board. Maybe we should just concentrate on weekends! I am elated and thanks for letting us know your good news.

Re: choices of chemo

null@example.com (LeeAnn) — Sat, 20 Oct 2012 19:18:01 +0000

Hi everyone,

Got some good news!!! I went in yesterday to get a new CT and to see my onc. From last week's blood work- tumor marker being double since I started chemo- I expected the worse news like new tumors and got bigger etc.
Nope, actually it showed shrinkage on main tumor and stable. No new lesions!!! How about that!!! I was so happy to hear that. So they gonna keep me on gem/cis for now.

I just want to say "Thank you" to all for your support and encouragement. I don't know what I would do without you guys.:-)

LeeAnn

Re: choices of chemo

null@example.com (marions) — Sat, 13 Oct 2012 17:39:18 +0000

Of course we understand, LeeAnn. This site provides a sanctuary for all of us - always.
Hugs,
Marion

Re: choices of chemo

null@example.com (Pamela) — Sat, 13 Oct 2012 16:23:10 +0000

Hi LeeAnn,

Any news you hear, that is not what you are expecting can be disappointing. I remember the last time Lauren had scans, there was only small amounts of shrinkage. Everyone was thrilled except Lauren, including her oncologist who I have never seen get that excited. You would have thought she had ten new tumors by her reaction! So I, along with many others understand where you are coming from. Try not to dwell too much and think positively to the future. Sending hugs and support your way.

Love, -Pam

Re: choices of chemo

null@example.com (Lainy) — Sat, 13 Oct 2012 16:20:35 +0000

LeeAnn of course we understand and don't ever apologize on this Board for the way you feel. I have my own dismal moments and I call them my "pity parties" and hey, who doesn't like a good party now and then! Then when the party is over it's time for me to go back home where I belong. Sorry, I am one for all the metaphors. Bottom line is you are loved here no matter what you are feeling or writing. Be strong!

Re: choices of chemo

null@example.com (LeeAnn) — Sat, 13 Oct 2012 14:41:04 +0000

Thanks to all.
I know what you are all saying but I couldn't help being disaaponited. My Ca19-9 was on up trend since after surgery. My lowest was 79 a month after surgery and was going up since then. Since this was my first chemo, I had a such high hope for the number to go down or any improvement and didn't happened. I know this isn't the end of the world, but.......I'm sure you all understand. Thank you all again for your support and I will try to stay positive.

Re: choices of chemo

null@example.com (marions) — Sat, 13 Oct 2012 08:13:11 +0000

LeeAnn....I think that it is too early to worry. Tumor markers in general are meant to provide a baseline for treatment however, it is the trend (up or down) INCLUDING patient symptoms and scan results that provide a more accurate response measure. Fluctuation of the CA 19-9 markers may occur due to various reasons including, chemotherapy and radiation treatments. Similar to what Pam has mentioned we have seen on this board often times for the markers to be moving around without any indication of disease progression.
Gem/Cis is considered the standard of treatment for this cancer, but as Lainy has mentioned, there are numerous other options available to you. The physician will rely on his/her knowledge and experience and make the decision on which treatment protocol is best suited for you.
Hang in there, LeeAnn, the glass is still half full.
Hugs,
Marion

Re: choices of chemo

null@example.com (Pamela) — Sat, 13 Oct 2012 02:15:15 +0000

Hi LeeAnn,

Try and not let the CA 19-9 test make you that upset. My daughter, Lauren's oncologist says he looks more at scan results and what is going on rather than that test. Hers goes up and down all the time. If you worry too much, you will make yourself sick. That is good if you don't get side effects from chemo. That means you are handling it well. Lauren doesn't have near the side effects most people have from chemo, but she has had a great deal of shrinkage in her tumors. I know it is hard to not freak out about stuff, but please try to relax. Scans will tell what is going on soon enough. If you are not happy with your treatment, why not get a 2nd opinion to put your mind at ease. I am hoping and praying that you have great scans and a lot of shrinkage. Take care.

Love, -Pam

Re: choices of chemo

null@example.com (Lainy) — Sat, 13 Oct 2012 01:59:43 +0000

LeeAnn, I know this news upset you but remember there are many other chemo cocktails. I am not versed in chemo as Teddy never had it but I know there are more options and that is the important thing. If I am not mistaken some people don't lways get the side effects. You also can always go for another opinion. I will be praying and wishing that the CT Scan is stable. Next to shrinkage we like stable! I know you will not relax until next week....so I won't tell you too!

Re: choices of chemo

null@example.com (LeeAnn) — Sat, 13 Oct 2012 01:34:58 +0000

I just finished 3 rounds of gem/cis. Since I haven't had tumor marker checked since I started chemo, I asked for one today to see if there's any changes.
Well, almost at the end of chemo they had blood test result. Bad news!!!
I don't think chemo did anything for me. My CA 19-9 was 340 when I started chemo, today it was 790. I'm so upset and sad. I'm getting CT next Friday and discuss what to do next. I knew something was up. I had hardly any side effects at all. It was way too good to be true. At this point I don't want standard treatment, any suggestion?

Re: choices of chemo

null@example.com (Maria) — Mon, 03 Sep 2012 08:11:21 +0000

LIKE you're being in charge!!!!
Hugs
Maria

Re: choices of chemo

null@example.com (LeeAnn) — Sun, 02 Sep 2012 20:09:33 +0000

they said to check in 3 months if I'm doing well with this, but I'm going to ask to get ct in 2 months. If it's not doing anything in 2 months what's the point keeping it going. I'm in charge of my treatment now. No more wait and see.

Re: choices of chemo

null@example.com (tiff1496) — Sun, 02 Sep 2012 19:34:38 +0000

Glad you are doing good!!
Did they say how many rounds you will get?

I had 13 rounds of gem/cis

Then started to have reactions to cis. Be sure if you start feeling funny to let the nurses know ASAP! The more cis you have, the more likely you are to have a reaction to it.