<![CDATA[discussion boards — Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=9270 Wed, 09 Jan 2013 22:06:44 +0000 PunBB 1.4.2 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70120#p70120 Such good news!!

]]> Wed, 09 Jan 2013 22:06:44 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70120#p70120 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70064#p70064 You are welcome.
Hugs,
Marion

]]> Tue, 08 Jan 2013 22:11:54 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70064#p70064 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70063#p70063 Thank you, Marion..I couldn't figure out how to do that!

]]> Tue, 08 Jan 2013 21:59:30 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70063#p70063 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70027#p70027 This trial sounds really promising! I love that its using your own natural defenses against this cancer. My Mom has bladder cancer which is in remission after a different type of immunotherapy treatment. I am so happy for you that you're better than stable after 7 months with no treatments! Wow!!

]]> Tue, 08 Jan 2013 03:01:56 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70027#p70027 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70014#p70014 Tracey....you might also want to try reaching Melinda by clicking on her user name (green wording- mbachini) This will allow you to connect via her personal e-mail.  Just thought to mention.  Good luck.
Hugs,
Marion

]]> Mon, 07 Jan 2013 17:40:28 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70014#p70014 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70013#p70013 Hi Melinda-my name is Tracey and my dad was diagnosed with extrahepatic CC in Sept. 2011.  He was just "kicked out" of a clinical trial at MUSC (had 20% tumor growth), and we need a new plan.  I was so glad to see your post!  Would you be ok with talking with me on the phone?  Thanks!

]]> Mon, 07 Jan 2013 17:04:01 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=70013#p70013 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=69131#p69131 Melinda
That is so exciting, thanks for sharing
Hugs,
Lisa

]]> Mon, 10 Dec 2012 06:34:12 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=69131#p69131 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=69112#p69112 Thanks to all of you!

Pamela and Lisa,
I am currently in a clinical trial at NIH. The treatment was an infusion of my lymphocytes that were taken from my tumors and grown in a lab. In theory, these lymphocytes should attack and kill the tumors. So far I have had success with my treatment, and am praying for continued success.

Maria,
I emailed you from your forum information....looking forward to hearing from you!!

Melinda

]]> Mon, 10 Dec 2012 02:09:32 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=69112#p69112 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=69057#p69057 Melinda, what WONDERFUL news!!
I´ve been trying to read up on you and get almost breathless... We didn´t do the same treatments even though I´ve done a lot of GemCis as well. I never was resected. BUT apart from that you are one of the few ones I can feel that we have the same disease. I´m even an RN (paramedic, at work right now) just turned 46 diagnosed in April-2010. Still asymptomatic of any signs of cancerous disease (if you don´t look at scans smile That little detail)
Please contact me if you feel like it!

hugs
Maria

]]> Sat, 08 Dec 2012 15:11:12 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=69057#p69057 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68979#p68979 Melinda,
Great news! What treatment did you have ? Sounds promising.
Lisa

]]> Fri, 07 Dec 2012 06:06:49 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68979#p68979 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68914#p68914 Hi Melinda,

What great news!!! Hoping that the good news continues for you and looking forward to seeing more of your posts in this section! Thanks for sharing this with us.

Hugs,

Gavin

]]> Wed, 05 Dec 2012 19:59:55 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68914#p68914 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68901#p68901 That is such great news, Melinda! What exactly was your treatment? I am very happy for you. Take care and keep up the great work!

]]> Wed, 05 Dec 2012 04:12:11 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68901#p68901 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68900#p68900 I'm very happy to hear that you are doing so well.  My husband also has recurrent intrahepatic CC.  He has just started chemo and is doing pretty well so far but it is always encouraging to hear about a new type of treatment.  Please keep us posted.

]]> Wed, 05 Dec 2012 03:49:03 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68900#p68900 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68897#p68897 Fabulous news!!  Congrats.

((Hugs))
-Randi-

]]> Wed, 05 Dec 2012 03:15:39 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68897#p68897 <![CDATA[Re: Back from NIH checkup - good news!!]]> http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68860#p68860 Wow, Melinda, that's great news!  Best to you for continued health and stability!

]]> Tue, 04 Dec 2012 05:51:01 +0000 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=68860#p68860