discussion boards — Announcements

Re: Meet us in Orlando

null@example.com (Lainy) — Sat, 18 May 2013 20:44:12 +0000

Oh, I would LOVE to meet you, Barbara (Minnie) and Percy (Mickey) perhaps if one day you are in PHX again. Have a great session and a little fun in the evening. I sure hope you get to meet some members, I know we have a few in FLorida but not sure if they are near Orlando. Safe travel!

Meet us in Orlando

null@example.com (barbara6193) — Sat, 18 May 2013 20:24:07 +0000

Hello everyone,
Well, I am in Orlando for DDW - Percy is here too - i have not seen him yet, but will tonight. The Cholangiocarcinoma Foundation booth is all set up and ready to raise awareness in the morning.
If anyone from the discussion board is in the Orlando area and would like to meet up with us, please let me know. Our days are busy - but there is tonight, Sunday or Monday night that we would love to meet you. We are on International Drive near all of the restaurants. I would love the chance to share my experiences of representing the foundation at numerous conventions for the past five years, since losing my Jacques in 2007 to Cholangiocarcinoma. It is an amazing feeling to know that I am raising awareness and trying to make a difference.
Let me know if you have a little time to meet with Percy and I. We would love it.

Re: DDW Orlando

null@example.com (Gavin) — Thu, 16 May 2013 13:49:37 +0000

Hi Barbara,

Many thanks for this!! It is so very much appreciated by everyone all of what you and the others do when it comes to all of these conventions and meetings etc. I know that you and Percy will be very busy this weekend, but I hope that you manage to get a bit of free time and meet up with some other faces as well. Looking forward to hearing the report! Thanks again for everything!!

Hugs,

Gavin

Re: DDW Orlando

null@example.com (Lainy) — Thu, 16 May 2013 03:24:34 +0000

Dear Barbara, I just want to thank all of you for attending the Conventions coming up now. We are so proud of you all and say kudos to you for giving the time you do for this CC site. No wonder we are getting so well known and learning more and more. We just cannot thank all of you enough.

DDW Orlando

null@example.com (barbara6193) — Thu, 16 May 2013 00:41:45 +0000

Hello Everyone,

This is Barbara from New Hampshire. Percy and I will be attending DDW (Digestive Disease Week) in Orlando this Saturday, May 18th - Tuesday, May 21st. It is going to be a very hectic 4 days but, we are both free Saturday night - not sure about Sunday or Monday night yet - as if either of us has the opportunity to meet with physicians, researchers, other advocates etc., we will always grasp any chance we can to raise awareness and gain contacts. If anyone on the board would like to meet up with us Saturday night - please let us know. It is always a pleasure to meet the faces of all of our Cholangiocarcinoma Foundation friends and families.

Send me a message if you are able to meet the amazing Percy and myself.

Warmest regards,
Barbara

Re: Cholangiocarcinoma Foundation Webinars

null@example.com (marions) — Wed, 15 May 2013 05:54:15 +0000

Willow...I am equally as excited to see the endpoint of this study. I expect to see some data in about two years. The genotyping of the tumors add another dimension of insight of this disease. Fingers are crossed.
Hugs,
Marion

Re: Cholangiocarcinoma Foundation Webinars

null@example.com (Willow) — Tue, 14 May 2013 05:56:04 +0000

Thanks, Marion . Nice to see this new webinar. I'm very interested to see how well proton therapy works against CC!

Cholangiocarcinoma Foundation Webinars

null@example.com (marions) — Tue, 14 May 2013 03:43:37 +0000

http://www.cholangiocarcinoma.org/media.htm

Re: Chicago - Join us for dinner (date and time to be determined)

null@example.com (Lainy) — Mon, 06 May 2013 13:57:11 +0000

Percy and Chi Pizza, would be perfect. It would be a close call between Chicago Pizza and Teddy's Cousins Pizza! But hand delivered by Percy, that would make it the best!

Re: Chicago - Join us for dinner (date and time to be determined)

null@example.com (Gavin) — Mon, 06 May 2013 13:17:02 +0000

Fine R&R by the lake indeed, that sounds good!! You need to persuade Percy to bring you some of that Chi town pizza to you, Kris and everyone else. Hand delivered by Percy himself of course, best take away ever me thinks!!!

Re: Chicago - Join us for dinner (date and time to be determined)

null@example.com (Lainy) — Sun, 05 May 2013 14:15:13 +0000

Hey, Gav, my son from another Mum. I will be so close to Chi town but so far! Kris will be coming May 29 - 31. to the Lake. I am so excited about that! We will have some fine R & R. Its never too late for anyone else to pay us visit as well.

Re: Chicago - Join us for dinner (date and time to be determined)

null@example.com (Gavin) — Sun, 05 May 2013 14:05:00 +0000

Hope you all will have a blast, I'm sure that you will!!!

Pizza, yum! You and I could just get some take away Lainy and be there in spirit!

Re: Chicago - Join us for dinner (date and time to be determined)

null@example.com (Lainy) — Sun, 05 May 2013 00:38:15 +0000

Ah, all the Celebs!!! Wish I could just can't drive that far. Maybe next time.

Re: Chicago - Join us for dinner (date and time to be determined)

null@example.com (marions) — Sat, 04 May 2013 22:24:09 +0000

Thought to put out this announcement again. We have settled on Saturday, June 1. Gladly I will pass on the location to those interested in joining us for this special gathering. Just think, Percy will be there too.
Hugs
Marion

Re: Chicago - Join us for dinner (date and time to be determined)

null@example.com (Lainy) — Thu, 25 Apr 2013 23:57:21 +0000

Hi you guys. I will be in Wisconsin from May 23rd to June 5th but unfortunately am not able to drive the 90 miles. It would be physically impossible. HOWEVER you are welcome to come to the Lake.