discussion boards — Surgery, Resection & Transplant Treatment Options

Evolution of surgical treatment for perihilar cholangiocarcinoma: a si

null@example.com (Gavin) — Tue, 18 Jun 2013 18:31:28 +0000

Evolution of surgical treatment for perihilar cholangiocarcinoma: a single-center 34-year review of 574 consecutive resections

Contains Stats.

Focused abdominal ultrasound in preoperative liver surgery staging: a

null@example.com (Gavin) — Sat, 15 Jun 2013 14:21:23 +0000

Focused abdominal ultrasound in preoperative liver surgery staging: a
prospective study.

http://www.wjso.com/content/pdf/1477-7819-11-138.pdf

Unresectable perihilar cholangiocarcinoma: multimodal palliative treat

null@example.com (Gavin) — Thu, 13 Jun 2013 18:32:08 +0000

Unresectable perihilar cholangiocarcinoma: multimodal palliative treatment.

http://www.ncbi.nlm.nih.gov/pubmed/23749936

Re: Correlation of staging systems to survival in patients with resected h

null@example.com (marions) — Mon, 10 Jun 2013 21:12:46 +0000

Ha, ha, Gavin....we now our people, don't we?

Re: Correlation of staging systems to survival in patients with resected h

null@example.com (Gavin) — Mon, 10 Jun 2013 20:35:54 +0000

Thanks for that Marion. I saw this piece tonight and immediately thought of Bruce and Eli!

Hugs to you too,

Gavin

Re: Correlation of staging systems to survival in patients with resected h

null@example.com (marions) — Mon, 10 Jun 2013 18:50:44 +0000

Thanks, Gavin. Staging systems are difficult to understand and are provided by numerous organizations. Bruce and Eli have provided us with a staging system - we are still debating as to whether it is too complex for the average person to understand and/or whether we need a revised version for our site.
Will keep everyone posted on this.
Hugs,
Marion

Correlation of staging systems to survival in patients with resected h

null@example.com (Gavin) — Mon, 10 Jun 2013 18:42:10 +0000

Correlation of staging systems to survival in patients with resected hilar cholangiocarcinoma.

http://www.americanjournalofsurgery.com … 4/abstract

Re: Hilar Cholangiocarcinoma - Very Sensitive

null@example.com (Gavin) — Thu, 06 Jun 2013 06:19:18 +0000

Forgot to say, the video is from the HPB & Liver Transplant Unit, General Surgery Service at the Hospital Italiano in Buenos Aries - Argentina.

Hilar Cholangiocarcinoma - Very Sensitive

null@example.com (Gavin) — Thu, 06 Jun 2013 06:16:08 +0000

Following on from the link that Marion posted, I found this and felt it worthy of posting here.

It concerns 2 patients with hilar cholangiocarcinoma and shows slides with information, ct scan results and very graphic surgery with audio describing what is happening. Very graphic as I said but well worth watching IMO for those who are interested.

http://www.youtube.com/watch?v=Wcm2W8mqxxU

Gavin

Re: Sensitive : bile duct surgery video

null@example.com (Gavin) — Thu, 06 Jun 2013 06:04:15 +0000

Just watched this, very graphic indeed but worth watching for those who are interested. It is on youtube as well now, as the poster states they wanted it to be.

Gavin

Sensitive : bile duct surgery video

null@example.com (marions) — Wed, 05 Jun 2013 16:41:10 +0000

Someone had requested this to be filmed and then to be distributed from our site. Thank you to whoever had requested this. Please contact me personally.

Have a difficult time watching this, but I thought to post this for those tough enough to handle:

http://cancersecurity.com/2013/05/31/ch … r-surgery/

Hugs,
Marion

Re: My transplant story

null@example.com (jathy1125) — Wed, 29 May 2013 15:34:38 +0000

Rach-I am doing great!! My meds are pretty easy/breezy now!! I take 6 prografs a day, nexium, calcium, multivitamin, vitaminD, and magnesium a day. So really only 2 prescriptions which is financially better, still pretty good financial strain, but they keep you alive so who cares!!
Have you had a problem with CMV?? I had contracted CMV about 9 months after second transplant and I was sicker from that than any transplant, chemo or radiation!! I do blood draws every month and scans every 6 months. I also have a hernia the size of a grapefruit but surgery isn't an option, the only surgery they ever want to do on me has to be life saving!!. I guess no facelift or tummy tuck LOL!!! The middle part of my torso is pretty crazy looking between my transplants scars and hernia but I am awfully proud of it!!!
I did have my lung spot removed and it is was benign, but my 2 week recovery period was about 3 months!! I still don't have the stamina I use to have but I do just fine. I am blessed that I can work at my own pace since my child is grown and life is pretty simple for me.
I am so excited to meet another CC transplant member. Keep posting so people can be inspired and educated that transplant is a viable option that hopefully more will be included in!!
I think I HOPE that your MELD score stays low (mine started at 29 and was 37 when I was transplanted first time).
I HOPE Pam reads our post and it brings her inspiration and comfort as she waits for Lauren to get better. We are proof that miracles happen and bad times do end GREAT!!
Lots of prayers and call (618-567-3247) anytime!
Cathy

Re: My transplant story

null@example.com (Rach883) — Wed, 29 May 2013 12:44:06 +0000

Marion and Cathy-
Since my reoccurrence in Oct and the subsequent Whipple, I've had some complications. I have no hepatic artery; the only blood flow to my liver is collateral from my Roux-en-y. I'm relisted for tx with a Meld of 8. The left lobe of my liver is necrotic but the right lobe seems to be working properly. Labs are decent and mostly within normal range.
Day to day life post tx was basically normal but some things have changed post Whipple. I don't know if it is the necrotic liver, after effects of surgery, getting older, etc. but I tire more easily and it takes me longer to recover. Eating is different and I'm much more sensitive to food than I used to be.
That being said, I'm alive and fairly well. I have a 4 yr old who most days I can keep up. I even "coached" her spring soccer team.

As far as meds, I'm on prograf, prednisone, protonix, Coumadin, ursodiol, mag + protein, mag oxide, fish oil, and a multivitamin.

Cathy- what meds are you on? Did they remove the spot on your lung? How big was it? Mine was only 3mm. What is your protocol now?

Happy Wednesday!
Rach

Re: My transplant story

null@example.com (jathy1125) — Wed, 29 May 2013 02:14:29 +0000

Rachael thanks for sharing!! I am a CC survivor due to transplants, like I mentioned before. My story is very similar, I ended up on life support a month after first transplant because my hepatic artery ruptured. So I am very interested in your story, the meds you take, etc... And very interested in that you said it returned?? I was 4 years cancer free on last Friday. I had a spot on my lung last year that my doctors wanted remove and there reason was "we have no data to compare this to because your success is new and we don't want to take any chance" My miracle worker was Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO.
Can't wait to hear more.
Lots of prayers-Cathy jrdunnagan@gmail.com

Re: My transplant story

null@example.com (marions) — Wed, 29 May 2013 00:13:28 +0000

Thank you, Rachael for bringing your unusual and highly successful story back for review. It has been a few years now - how are you feeling health wise?
Hugs
Marion