http://www.cholangiocarcinoma.org/punbb cholangiocarcinoma.org :: discussion boards en http://backend.userland.com/rss http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26634#p26634 26634@http://www.cholangiocarcinoma.org/punbb Hi Christina. Welcome to the site. It is wonderful that you are being there for Chuck. During his surgery and recovery time, please feel free to quiz us if you need to. kris Tue, 09 Feb 2010 00:37:24 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26633#p26633 26633@http://www.cholangiocarcinoma.org/punbb Hi Chuck and welcome to the site. I dont have any experience with it in my colon. I guess that is the one organ it decided to stay away from in me. Good luck on your surgery and have an easy recovery. Let us know how it goes. Kris Tue, 09 Feb 2010 00:35:56 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26632#p26632 26632@http://www.cholangiocarcinoma.org/punbb Hello mimi....I also would like to welcome you.  I am so glad that you have found us.  Mimi...in addition to the great and caring members on this site, I wanted to point out that we have Dr. Giles.  Dr. Giles is a clinical psychologist and he is always there for all of us, you included.  I just wanted to point out this very special service we have the benefit of enjoying. I am sending all my best wishes, Marion Mon, 08 Feb 2010 22:51:03 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26631#p26631 26631@http://www.cholangiocarcinoma.org/punbb Margaret....I am sorry to hear about the not so nice visit at the hospital.  You might want to find the nurse assigned to Tom and discuss some of your issues with her.  Generally, nurses are a great source of information and have ways to make sure that the patients are kept up to date. (Right, Janet?) Best wishes, Marion Mon, 08 Feb 2010 22:43:05 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26630#p26630 26630@http://www.cholangiocarcinoma.org/punbb Hello Christina and a very warm welcome.  You are the kind of friend everyone wants to have therefore, I am happy to have the opportunity to meet you also.   I am looking forward to many discussions coming our way. Best wishes, Marion Mon, 08 Feb 2010 22:26:17 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26629#p26629 26629@http://www.cholangiocarcinoma.org/punbb Hello Chuck....I would also like to welcome you to our site.  I have pulled up a few previous postings regarding the colon but, I am hoping for others to share some of their experiences with you. www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3532 www.cholangiocarcinoma.org/punbb/viewtopic.php?id=31 www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=13236 There are plenty more hidden in the search function or, top right, google function.  By entering "colon" you will be able read up on previous discussions regarding this subject. I am wishing for excellent test results followed by the surgery.  I am glad that you have found us and please, stay in touch. Best wishes, Marion Mon, 08 Feb 2010 22:23:21 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26628#p26628 26628@http://www.cholangiocarcinoma.org/punbb Shonny....I would also like to chime in and welcome you to our site.  I am hoping for the radiation to be of great benefit to your sister and that the pain medication will give her some relief.  In regards to you living on the other side of the world: I guess, that goes both ways as we are living far away from you. But, this does not matter because, the Cholangiocarcinoma Foundation is a borderless Foundation and home is wherever we are.  I am glad that you have found us. My best wishes are coming your way, Marion Mon, 08 Feb 2010 22:09:55 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26627#p26627 26627@http://www.cholangiocarcinoma.org/punbb Hi,I think if you have a wonderful doctor you should stick with him.I also think you should accept that your sister has advanced cancer and may not have long to live.This doesnt mean you cant hope for a miracle but you need to have a realistic outlook. The treatment she has had sounds right to me,and I am hoping she is ok painwise ,particularly with that tumour in the leg which sounds terrible for her.   She needs some quality time with family and particularly her kids and you need to talk and say all the important things.Does she have a partner?There is a lot of community support available so make sure you access it,it might help to talk to a counsellor/psychologist too.We all need all the help available!                                                             Janet Mon, 08 Feb 2010 21:33:18 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26626#p26626 26626@http://www.cholangiocarcinoma.org/punbb Hi my name is Christina.  Chuck is a dear friend that signed on with his introduction today.  I am wanting to be a part of discussions so that I can learn from all of you and help him in any way that I can. Thank you. Best Regards, Christina Mon, 08 Feb 2010 20:10:10 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26625#p26625 26625@http://www.cholangiocarcinoma.org/punbb Bon Voyage, dear Kathleen and Josephine.  Have a safe trip and may your Mom have the best time imaginable.  With a (repeating you) neurotic daughter by her side Josephine, will be in good hands. Enjoy. Best wishes, Marion Mon, 08 Feb 2010 19:28:50 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26624#p26624 26624@http://www.cholangiocarcinoma.org/punbb Thank you all for your kind and insightful thoughts.  We did get the enthusiastic support of my mom's oncologist.  I am taking her records and scans (just in case and because I am NEUROTIC!!) and, of course, am praying a lot.  We have tickets to see the Pope on Ash Wednesday.  If anyone is reading this and if they pray, please say a little prayer for my mom (Josephine) that she may travel well and safely and enjoy her time in England and Rome.  Again, thank you, thank you, thank you.  Kathleen Mon, 08 Feb 2010 19:09:05 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26623#p26623 26623@http://www.cholangiocarcinoma.org/punbb Lainy:  Tom is going to get a new 'pee pee God' Too!  Loved it and yes it did make me smile....actually I laughed out loud or LOL as one would say.  Darla:  Thanks, and this lady will be filing a complaint!  That urologist is not a 'pee pee God' but he thinks he is!!! Night ladies! Margaret Mon, 08 Feb 2010 18:55:10 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26622#p26622 26622@http://www.cholangiocarcinoma.org/punbb so glad for this news :) Mon, 08 Feb 2010 18:36:27 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26621#p26621 26621@http://www.cholangiocarcinoma.org/punbb Margaret, I too am sorry to hear what you and Tom have been expreriencing and can totally sympathize as Jim &  had a lot of those same experiences.  At the time I was only concerned for Jim's well being, but did do my share of registering complaints where warranted after the fact.  Yes, when it rains it pours, but come here & vent all you want.  We all understand and are willing to listen.  My thoughts & prayers are with the two of you.  I will be hoping to hear better news from you soon. Lots of hugs & love for both of you. Darla Mon, 08 Feb 2010 18:13:22 -0800 http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=26620#p26620 26620@http://www.cholangiocarcinoma.org/punbb Hi Chuck and welcome to our Family but sorry you had to visit. You already are a SURVIVOR and Gavin is so right, this will be a walk in the park compared to what you have been through. I just wanted to add that my husband had cyber knife a year ago. He had a Whipple almost 5 years ago at the age 73 and the CC returned a year ago where his duodenum used to be. Got it with CK. To me CK is a true Miracle. He now has 2 new tumors, 1 near the kidney and the other near the liver but we have already been told they will do CK again! Right now though they are watching as for some strange reason they seem to be shrinking. PET Scan next month will tell us more.  You an read about it under my Posts as Lainy. Good luck and please keep us posted. Mon, 08 Feb 2010 18:10:55 -0800