Hi Lainy -
Thanks for your concern! I do have an excellent GI doctor and to date he has performed 12 ERCPs and replaced each time plastic stents without any issue. It is just at this stage he cannot assist any further because there is too much "sludge" in the biliary tree to be cleared by stents and to lower bilirubin levels. They also consulted interventional radiologists to see if they could clear out the area and they said they had no options to help.
Since diagnosis, we've also gotten 3 other second opinions besides my doctors here and NY Presbyterian, and at this point, none have been helpful and have just proven frustrating (time, money, disappointment).
As for the leakage from my ascites Pleurx drain, I will continue to pursue a route to stop or reduce it with the interventional radiologists who placed the drain. Currently, it's very limiting to my ability to leave the house. I've had several humorous incidents in public in the last few weeks.