Hi Marion -
At diagnosis in December 2013, I was told it was unresectable due to lymph node involvement. We sought opinions from two other facilities, and those surgeons concurred. As you recalled, I started Gem/Cis for 3 mos with poor results.
In April I had radiation to the tumor outside the liver. The tumor showed shrinkage afterwards. They also started me on Xeloda (3,000 mg a day), which I have been on ever since.
In May, I was referred to an interventional radiologist and had three chemo embolizations to the liver (each one month apart), and I have one more to go in September. My response to the embolizations has been very good with significant tumor death in the liver. However, my latest PET scan still shows "active" lymph nodes outside the liver.
So, the next step will be more systemic chemo to keep the lymph nodes in check. My oncologist isn't sure which drug though -- he says there no clear cut option. This is very frustrating.
I am now told if I can keep the cancer growth stable, there is a small chance they may consider a surgery in the future (they have yet to put a metal stent in, which I think is a good sign). I am so very hopeful.
I don't know how others handle years of treatment! I am tired!