Judy - Thanks so much for the info! We aren't seeing Dr. Kemeny, but heard similar resistance to being out of state with the pump.  Your insight is really invaluable to me while weighing my options!

Judy -

I'm sorry, but I've never heard of Ground Glass Opacity.  However, I was curious if your husband was cleared to fly and what the outcome of his scans were.

Coincidentally, I was at MSK yesterday for a consultation/second opinion.  They mentioned the hepatic pump as an option in my case (32 yr old w unresectable with mets to liver and possible lymph nodes), but said they didn't think it was a great option for me since I live out of state and they don't have anyone to maintain it near me.  They otherwise did not have very optimistic options for me besides continuing different chemo (I did not respond to Gem/Cis).

I'd love to hear about your experiences with the pump and if it is working (read some of your older posts) and with traveling to MSK for care of the pump.

I hope all is well and that your husband finds some relief soon.


(10 replies, posted in Hospitals)


I've been doing similar research looking for where to go for second opinions, and I found out Dr Fong from Memorial Sloan Kettering is moving to LA to City of Hope.  I've never met him but have heard he is a wonderful surgeon that has seen a lot of cholangiocarcinoma.  I imagine that he would have an opinion that would be useful even in unresectable cases.

http://www.cityofhope.org/article/yuman … of-surgery