1

(4 replies, posted in Members' Cafe)

How blessed you are to have Teddy visit you. There is no doubt that he is still helping you from afar. I believe too my friend. We went to our beloved labyrinth today to plant some more flowers. After the planting was done, I rested in the center and  as I now love to do, took some pictures. When I got home I looked at them and saw about 10 orbs in this photo, mostly above the Guardian Angel statue. I was in such a peaceful state.
Feeling very blessed and happy that Teddy danced you to sleep.
Here's the picture:
http://s18.postimg.org/v119yjxnp/image.jpg

It's easier to see the orbs on an iPhone than a computer. You can enlarge sections on a smart phone.
Enjoy,
Melinda

2

(9 replies, posted in Members' Cafe)

That is a perfect saying...it has also been one of my favorite and is relevant now since  John now faces some challenges associated with chemo brain. Just wish he could find peace.
I can't explain it either, but as you said, i find great comfort knowing that  "friends" are near.
Be well, dear Lainy.

Such great pictures of loved ones. Enjoying pictures of family is definitely the best medicine.  Sometimes when I get down, I just flip through pics and videos of the grandkids. Such great photos posted on this thread.
Here's John with our son and grandson last week after playing golf together. Only 4 years old but plays 9 holes like a pro.
http://s13.postimg.org/tcw77tztv/image.jpg

4

(9 replies, posted in Members' Cafe)

Lainy, what a huge orb over your granddaughter's head   I think Teddy wanted to make sure that you didn't miss his sign.
In looking at the origin of the Orange "light" you can see several circular patterns. My friend, Sr.  Joanie said those are definitely orbs.. The crazy thing is when I took it, I saw nothing out of the ordinary with "lighting".  I duplicated it the following week when we took my sister to the labyrinth and she stood with John. I tried to see if it worked with me or a friend standing alone and nothing. This was seconds apart. John said not to "test" it but Sr.  Joanie said not to hesitate to show off the energy of her beloved labyrinth.
I'm glad that you were as moved by the picture as I was/am. It is a beautiful and special place for us to garden each week.
Melinda

5

(24 replies, posted in Introductions!)

Thank you all for your encouragement and for making it possible for me to share the picture which, I believe, is in response to prayers. I did post it in Member's Cafe. Thanks to Rick for making pictures available to all and to Marion and Julie for your help and encouragement.
Hugs,
Melinda A

6

(9 replies, posted in Members' Cafe)

As many of you know, when a devastating diagnosis is delivered, family members run a gamut of emotions and, in my case, crank of the prayers to help deal with the unknown. Prior to my husband's last ct scan (resection and chemo done from May -Nov, 2014) we were both getting a huge case of scanxiety. We normally do gardening each Thursday at a labyrinth, owned by a group of Benedictine nuns, and this particular day, John and I were both praying hard that we would receive good news from the MRI and CT scans. I asked that John be wrapped in the Lord's healing grace and that if it was God's will, that he receive good news. I turned to take a quick picture of John as he was walking and praying and thought nothing of the picture until I looked at it a few hours later. What I saw made me immediately start crying. There, in the center of the light rays, is John, deep in prayer. An additional "light source" is also shining on him, from no known source of light. Our nun friend said that the orange light is John's Guardian Angel. The bright light is an answer to what I prayed for...warm, healing light.
John's scans did indeed come back clear and when I showed the picture to his surgeon, his response was, "None of us could have done this without His guidance and blessings". Wow.
It's not often that you get to "see" a hug from God. We feel very blessed.
This may be a bit too religious for some, but I needed to share the picture and what we believe was a response to deep prayer. I hope that it brings you peace and hope as it did me.
God bless all of you who are dealing with cc, be it as a patient, a caregiver, or family member.
Melinda

http://s18.postimg.org/8jx8kb0it/The_Holy_Spirit_in_Action.jpg

Congrats on one year Julie. Red Robin, McDonald's, or Denney's...it's all about celebrating with family. I will keep you in my thoughts and prayers for a positive report on Friday.
Melinda

8

(24 replies, posted in Introductions!)

Duke, I have tried to post an avatar picture in the past. I browse, upload and then I get nothing. I'm usually pretty computer savvy but had a mental block I guess with this small endeavor. I did post the picture on the Facebook cholangiocarcinoma page and many people responded or liked it. I'm not sure how many of you are on Facebook or are a member of that group.
By the way, John's MRI and CT scans, from brain to pelvis, came back clear. I had such a sense of calm going in to get the results. I know that, at this point, there is another purpose for him making it through his difficult surgery and chemo.
Marion, it's up to you if you'd like to remind Rick again. I know that people seem to be inspired by the picture.
Thank you for your interest.
Melinda

9

(24 replies, posted in Introductions!)

Thank you Marion. I sent the picture to "Iowagirl" and she was inspired by it as well. I would love to share it. Could you tell me how, or can I send it to you, as a moderator?
Thank you Marion, Melinda B and everyone for your positive energy. I will keep you all posted.
Melinda

10

(24 replies, posted in Introductions!)

Not sure how to post a picture on this forum. Message me on my facebook page, Melinda LaVenture Aldrian, and I'll send it to you. Or use my email address: melinda.aldrian@gmail.com
It is incredibly inspirational. I have had several people who have experience with angel orbs contact me about the image.
I hope this is ok on this board. I don't want to get in trouble using my email or fb contact.

thanks for your prayers for positive results. mri of brain today as well as ct of chest. tomorrow is ct of abdomen and pelvis. results on wednesday.

11

(24 replies, posted in Introductions!)

Hello CC Warriors! Thank you so much for your support and positive energy and thoughts....oh and for crossing everything possible on a body to bring good JUJU.
Lainy...great idea to just be forthright when talking with others. I'm sure that friends who offer help with word retrieval are put more at ease knowing that it's ok to just say the word that you were struggling to find. John's doctor is working hard to find the correct meds to regain chemical balance in the brain after surgery and chemo. We had an adjustment yesterday and today was the first "great day" in a long time. Hoping it's not just a placebo effect, but I'll even take that and hope it continues.
Hercules...What encouraging words knowing that you are 9 years out from a resection. As far as the cannabis, John got good results from Marinol (synthetic mj) and his surgeon suggested that he try the real deal for appetite and pain. We went to a clinic and spoke to the folks there but haven't pulled the trigger yet. I think John's being an ex Jesuit, may need a bit more persuading. I appreciate your suggestion tho and am keeping an open mind.
Julie T...You are absolutely right in that not being able to keep a thought or process as well as before. That is what really bothers John as well. Based on all of your comments, we had a great talk while walking around the gardens at City of Hope yesterday where we attended Ash Wednesday mass. You're right that whatever is going to be his new normal does not diminish the person that he is. It is what it is.
Marion...thank you so much for your words of support. You're right...surgery and chemo is such an invasion on your body and we just have to accept that each day is a gift and we are blessed to wake up each day and give thanks for all that we have been given.
Gavin...thanks for your well wishes from Scotland. You are always so supportive and I appreciate your contributing your crossed digits and positive thoughts as well.
John and I prayed and meditated at a labyrinth last Thursday and again today. I took pictures of him as he meditated and there was a beam of light enveloping him as he prayed. No doubt, he was inspired by this image and given hope. I wish I could share it with you...  It is an incredible picture.
Will let you know how his scan goes on Monday...results with oncologist on Wednesday, then meeting with his surgeon on March 2 to review results. I love his surgeon. He wants to stay closely involved for at least three years he said. what a blessing.
thank you all
Melinda A

12

(24 replies, posted in Introductions!)

Hi all. I could use some positive thoughts and energy for the coming days as we head into our 6 month scan next Monday. My husband was diagnosed in April, 2014, had 55% resected in May, and then followed with 6 months of gem/cis. At his three month scan, they were unable to use a contrast as his creatinine level was off due to dehydration, but what they did see looked clear.
While John is not that apprehensive about the scan in particular, he has been plagued with incredible "foggy brain" since his chemo that has let to a dark depression. We are seeing both a counselor for individual therapy every 10 days as well as a psychiatrist every month to get the meds right so that the chemical imbalance in his brain might be righted.
I know that stress is so bad for the body and as a diabetic and heart patient, I worry about the toll the constant stress is taking on his body. I have posted before about our worries with chemo brain and how long it takes before it fades away. His oncologist says that sometimes it never goes away. I guess I just needed to vent and ask for your thoughts and prayers for a) good results on his upcoming scan, and b) some relief from the anxiety and depression that he is suffering from on a daily basis.
Thank you so much for your work here in supporting cancer patients and their families. I appreciate you all so very much and wish you well as well.
Melinda A

13

(43 replies, posted in Introductions!)

I am so sorry Teresa. I have no words that will make the hurt go away. All I do know is that your mom was blessed, as you were, to be able to spend time with each other, to smile, laugh and share stories. Sending positive energy your way.
Melinda A

14

(12 replies, posted in Introductions!)

Dear Wensdi, I am so sorry to hear about your son's diagnosis. This is a great forum for advice and support. I hope that you will receive comfort and a variety of ideas here. While UCI is a great facility, you may want to also look at City of Hope in Duarte, CA. It's in the San Gabriel Valley. I know that they do take patients that do not have insurance. They have been incredible in treating my husband's cc and everyone that works/volunteers there is so positive and welcoming. City of Hope also has Dr. Yuman Fong as the chief of surgery. He is internationally known and very well respected. Dr. Singh is my husband's surgeon and we could not be more pleased. He is so reassuring and patient with all of our questions. He was the chief of surgery until Dr. Fong  arrived from Sloan Kettering in NY.
Please check into getting a second opinion there. You wont be disappointed by their compassion and knowledge of cc and all cancers.
I will include your son and you in my prayers and hope that you will continue to reach out to the many wonderful people in this forum.
God Bless,
Melinda

15

(42 replies, posted in General Discussion)

I'm so sorry Sammi. What a blessing to be able to go home to be surrounded with love and care. Sending positive energy and prayers for strength.
Melinda A

16

(190 replies, posted in General Discussion)

Tom and Ben...what a blessing you have been to each other and to the rest of us who have received messages of hope from you over the years. I am glad that you will be at home and that you are at peace with your difficult decision. I will include you in my prayers at Midnight Mass tonight.
Love and strength to you both.
Melinda A

I saw that...pretty incredible. I believe that he might be on to something. I hope he is on to something.

18

(1 replies, posted in Members' Cafe)

Thanks for sharing that. Teddy sure seems like he was such a caring and compassionate man.
What a blessing to all that had him as part of their lives.
Melinda

Beautiful and inspiring words. We can all learn by what you have shared, that we have so much for which to give thanks...
Thanks much...
Melinda

20

(36 replies, posted in General Discussion)

Not jumping the gun is definitely easier said than done, but know that there are many people sending positive thoughts, energy and prayer to you. I think all of us have been there...over one hurdle and faced with another. I try to focus on what I can control, and that is getting the very most out of each day. Yup, I have bad days where I get discouraged. Both my husband and I tend to perseverate on the what ifs. when that happens, I usually binge watch mindless Netflix shows, just to get through that day and on to a better day tomorrow. LOL, works for me.   John works in the yard to keep his mind occupied.  Lainy's sharing of Teddy's thought, "Now we know what's wrong, let's fix it" is a perfect attitude to have.
You are not alone, Porter. The folks on this discussion board have been very comforting to me over the months. Hopefully you will find the messages not only supportive, but comforting.
Let tomorrow go, enjoy the present and move toward a new day...
Melinda A

21

(9 replies, posted in Introductions!)

Thanks for sharing your story Mike. It is truly inspirational to so many families on these boards. Please keep us posted as you continue your journey. Continued success in the coming months.
Best regards,
Melinda A

My husband and I drive an hour to get to City of Hope for infusion and care from our wonderful doctors. Yes, we have Loma Linda, a wonderful hospital, close by but opted to go where they treat many more cases of cc. We tend to make a day of it, often getting a nice dinner after while the steroids he receive improve his appetite. Some of our best conversations occur during our drive to and from. I guess I would be frustrated as well, but my suggestion is to go where you feel comfortable with your doctor and where they have much more experience treating this monster of a cancer. Staying positive is critical to getting through this journey...go where your heart tells you to go.
Melinda A

My husband has diabetes, has had a quadruple bypass and a year before his diagnosis, and had a stent put in the "widow maker" vein in his heart a year before his diagnosis. He was on Crestor for many years but discontinued because of side effects (neuropathy). Put back on prior to his cc diagnosis. John had no symptoms other than weight loss, but he was experiencing major stress/depression since he retired two years ago. He was experiencing some forgetfulness/memory issues prior to retiring...thought it was due to the anesthesia from surgery. I know that stress is deadly to your body and often wonder if that compromised his immune system.
He cardiologist told him last month that he has certainly beaten the odds with all the major traumas his body has been through. Praying that his luck holds out and that I am still giving you updates for many years.
Melinda A

Melinda,
You are certainly an inspiration to the rest of us just beginning our journeys. Congratulations for your healthy immune system and your continued success in fighting this ugly disease.
Please keep posting...you give me such hope.
God Bless,
Melinda A

25

(26 replies, posted in Good News / What's Working)

I feel the same way about this Christmas...receiving a great scan is the best incentive to celebrate and give thanks. When we saw our surgeon on Monday, John gave him a card with a gift card in it, just to thank him for his outstanding work and support over the months. I came home from shopping this morning and John said that his surgeon called him to thank HIM for making his day. John thought at first there was bad news to be delivered, but Dr. Singh just wanted John to know how touched he was by John's inscription. Wow is all I can say.
I just found out that both of our kids will make it home for Christmas (from Vegas and DC) and that all my 3 siblings will also be with us to celebrate. I too feel like celebrating and decorating the house to welcome our two precious grand kids and family members. Going out to buy our tree and some poinsettias right now.
Yes, let's keep in touch.
Merriest of Christmases,
Melinda A