I have found your story extremely useful and also an eye opener of what possibly it is to come.
My sister and I found out 3 weeks ago that our dad,71 years old, and best friend has cancer of the gall bladder and bile ducts. This has been devastating for us. He had an operation 1 week ago but unfortunately it was unresectable (I understand that means that they couldn't take it all out). I understand that they have cleaned a bit around the area but have left everything including the gall bladder. It appears for the moment that the liver is only affected in the area adjacent to the bile ducts and that the nodes around are not affected. We are wondering what to do next.
We have heard of the Mayo and MD Anderson clinics. But now through your story we are now wondering whether we should contact Dr Andrew Kennedy of the Wake Radiology onchology centre in the US first. Could you tell us a bit more about your experience with him? Do you think my dad would be a candidate for the treatment Valerie had?
We are also wondering what treatment is best to follow aside from procedures. What treatment is Valerie following now? We are confused because there are so many Oxaliplatin, Xeloda, Sorafenib, Herceptin (I hear there is a clinical trial conducted with this one at Anderson for this type of cancer), Davanat? We are a bit lost and don't know what to do next? Please advise!
Thank you so much and all the best for your next step in the battle.