I'm looking for any information!  I stumbled on this website and already it has been very helpful. 

My mother-in-law was diagnosed with CC after being misdiagnosed with a benign hemangioma.  She is 65 and was in good health.  By the time the diagnosis was corrected, her tumor was unresectable and quite large.  She has undergone three chemoembolization treatments.  For the most part, she is continuing her normal routine although she tires easily and has moderate to severe abdominal discomfort and back pain.  It seems to be worse after eating.  This has seriously diminished quality of life as she will have good mornings and AWFUL afternoon/evenings.  She has been undergoing the treatments back to back since March.  So far there have been no other complications (like jaundice). 

Her follow up after CT scan is soon and we are expecting the only treatment offer to be systemic chemo.  I have read the mixed reviews and opinions on the site about this step.  We discuss it often and we are at a loss right now as to what to do.  Without any good statistical support, she is not really open to trying it.  So far, her onc just says it MIGHT work so she should do it.  This is a decision we will have to make soon...

Anyway, my real question is about what we should expect in the coming months if she chooses to do nothing but be monitored.  So far, her bile duct is clear and her liver is functioning ok.  That is her biggest fear....that she is headed down a road and nobody can tell her what obstacles lie ahead.  Can anyone shed some light on how this progresses?  I know everyone is different but any info would help her deal.

Also, I'd like to know if her digestive discomfort and back pain are a result of the treatments or are they to be expected with CC?  She is reluctant to continue taking pain killers since it has been 4 weeks since her last treatment but is in a lot of pain.  Any suggestions/experiences dealing with similar problems?

Thanks so much for any information.  This is such a learning experience.  We are still trying to get a handle on what CC is and what it does to the body so we can support her through it.