1

(1 replies, posted in Chemotherapy)

Has anyone had any experience with this?  My uncle is going to start taking it and I'm just curious about side effects, efficacy, etc.

I did a search on the site here where a couple of folks mentioned taking it but no details other than that.

http://www.lowdosenaltrexone.org/

Let me reinforce Marion's words - as a result of your courage to post we will be even more vigilant in our evaluation in the event my uncle is told he is a surgical canddate by Dr. Canady.

Thank you!

My family is also evaluating whether to take this route with Dr. Canady. 

One surgeon (a student of Dr. Jenkins at Lahey) said maybe, but Dr. Jenkins said no. 

We do intend to cover all the excellent questions Truth4u asks, if, by chance, we are told surgery is an option.

We will share our experiences as well.

Best wishes to all on this taxing journey,

Tam

4

(7 replies, posted in New Developments)

Here is recent news coverage:

http://kdka.com/seenon/Canady.doctor.ca … 90203.html

I recently joined this website and I am trying to find some help for my 56 yr old uncle.  He was diagnosed with a Klatskin's tumor in January 2004.  He had a resection - no lymph node involvement, clean margin in the liver but not into the duct going into the pancreas.

Post surgery, he elected to take alternative therapy (vitamin C infusions, diet, etc.) and has had a great quality of life until recently.  He was admitted to the hospital with high fever/shakes and back pain.  Tests revealed a duodenal ulcer (they couldn't do a biopsy) but they couldn't find any source of infection to explain the fevers (I suspect tumor fever).  Scans also revealed a soft tissue mass near the portal vein and initial assessment is that it is a likely recurrence of the CC and not operable.  Chemo and radiation are the only treatments offered to date - both of which he is not willing to do.

He is now at home on daily IV antibiotic infusions (he had a port put in so he can go back on Vitamin C after the course of antibiotics is complete). 

I'd like to be prepared to get a second surgical consult for him as I think this is the only treatment he'd be willing to consider.  Do anyone know of any surgeons who have dealt with recurrence such as this?

6

(0 replies, posted in Introductions!)

Hi, my relative is 3 years post resection but recently has experienced elevated CA19-9 and questionable shadow/soft tissue appearance on scan around the portal vein. 

He does not want to do chemo/radiation and is going back on Vit C IV (which he had done post surgery. 

I have been exploring other alternative approaches - one of which is feverfew which has been shown to promote apoptosis on cc cells.

Does anyone have any experience with this?

Hi, my relative is 3 years post resection but recently has experienced elevated CA19-9 and questionable shadow/soft tissue appearance on scan around the portal vein. 

He does not want to do chemo/radiation and is going back on Vit C IV (which he had done post surgery. 

I have been exploring other alternative approaches - one of which is feverfew which has been shown to promote apoptosis on cc cells.

Does anyone have any experience with this?