I recently joined this website and I am trying to find some help for my 56 yr old uncle. He was diagnosed with a Klatskin's tumor in January 2004. He had a resection - no lymph node involvement, clean margin in the liver but not into the duct going into the pancreas.
Post surgery, he elected to take alternative therapy (vitamin C infusions, diet, etc.) and has had a great quality of life until recently. He was admitted to the hospital with high fever/shakes and back pain. Tests revealed a duodenal ulcer (they couldn't do a biopsy) but they couldn't find any source of infection to explain the fevers (I suspect tumor fever). Scans also revealed a soft tissue mass near the portal vein and initial assessment is that it is a likely recurrence of the CC and not operable. Chemo and radiation are the only treatments offered to date - both of which he is not willing to do.
He is now at home on daily IV antibiotic infusions (he had a port put in so he can go back on Vitamin C after the course of antibiotics is complete).
I'd like to be prepared to get a second surgical consult for him as I think this is the only treatment he'd be willing to consider. Do anyone know of any surgeons who have dealt with recurrence such as this?