Sharon......although their are plenty of signs preceding, always, always we hope for a better outcome. My heart goes out to you and your family.
Your decision to stay on to help others find answers and support those that need it is of immense value to the choangiocarcinoma community in the US and abroad. Thank you for your kindness, it is means much to us all.
The Memorial run for Phil is a wonderful idea, I so much wish to participate. I found that doing something (whatever that may be) helps us in the healing process.
Not sure whether you need guidance or support from the Cholangiocarcinoma Foundation, but just in case, here are two links that may be of use to you:
CCF Guide to Fundraising: http://cholangiocarcinoma.org/wp-conten … e-2014.pdf
and the Fundraising Sign-Up Form: http://cholangiocarcinoma.org/get-invol … n-up-form/
In any case, we like to highlight these events on our social media, including the discussion board:
http://www.cholangiocarcinoma.org/punbb … .php?id=29
Thinking of you and sending a tidal wave of hugs your way,