(37 replies, posted in Members' Cafe)

Dear Percy,

I want you to know that you are always in my thoughts and prayers.
Hugs from New Hampshire,


(37 replies, posted in Members' Cafe)

Dear Percy,
My heart is very heavy as I read your post. Sometimes life gets so busy, I forget to thank the people who have come into my life and enriched it in so many ways. Sometimes, I forget to tell them how much I really do appreciate them for being an important part of my life. Today Percy, you are in the center of my thoughts and my prayers. You are an amazing man and I am honored to call you my friend.
With much Love and Respect from New Hampshire,


(2 replies, posted in Websites)

Gavin, You are amazing. Being here at ASCO and trying to get to all the sessions, poster presentations, and lectures, we miss some of the abstracts. Thank you for all you do.


(5 replies, posted in Websites)

Not sure about roller skates for me - as Marion said I am very organized - and that is what gets me to all the places I have to be.
Looking forward to seeing everyone in Chicago - even though we all will be very busy - it is always wonderful to see the faces of our Cholangiocarcinoma family at ASCO.
Hugs from NH,

Very well stated. I am looking forward to seeing you. As for your accent - I LOVE it.
See you soon - Hugs from NH,


(5 replies, posted in Websites)

Thanks Gavin - I set up all my meeting on iPlanner today.
Enjoy the day,

Hello Marion,
I would love to join you all - my schedule as of today has me at a meeting until 6:00 on Saturday - so it looks like I will be able to.
Looking forward to seeing everyone. Hugs from NH,

Dear Percy,

It is with deep sadness and a very heavy heart that I respond to your post. I am sitting here thinking about the many conversations we had at numerous ASCO and DDW conventions - one that really stands out in my mind is the long breakfast conversation at DDW a year and a half ago. I still make the soup you told me about - they are getting to know me very well at the Asian market.
I hope that you are able to get some relief for the pain and are then able to get some rest. You have been an inspiration to me and many others. Your dedication and support to so many is truly amazing. I will keep you in my prayers, my friend.
Sending healing thoughts and hugs from New Hampshire,


(45 replies, posted in Good News / What's Working)

Great news Lainy. Sending hugs and healing thoughts to you.
Hugs from NH,

The 2nd Annual Memorial Benefit was a great success.  The event was held at Sizzle Bistro In Manchester, NH.  We had over 65 items, which were all donated for the Silent Auction, there was a 50/50 raffle – and my sister (who owns the restaurant donated 10 bottles of wine, which we sold wine corks for $5/each and at the end of the night 10 lucky winners got to pick a bottle of wine.
It was an emotional night of sharing stories – great food – music – and a night to raise awareness and money.  $8,200. total was raised for The Cholangiocarcinoma Foundation - WOW!!!!! As I reflect on the generosity and kindness everyone has shown for Jacques and Becki – it was a very emotional night. Rob (who helped with this years benefit in honor of his mother, Becki Mignogna, who lost her battle with CC on January 17th, 2013 - which ironically is my Jacques' birthday - was not able to attend the Benefit as his first child – a son, Ryan was born at 4:30 PM, the day of the benefit.
Another member of the CC family Suzanne Murch aka Oceangirl, and her family came up from Bolton, MA. She is a sweetheart -  I just wish I had more to talk with them that night - but I was busy with all of the logistics - I did not have much time to socialize.
As I said the night of the benefit - it is because of my amazing family and friends, that I make it through this so called life - for this I am truly blessed.  I have already started making to-do lists and plans for next year's 3rd Annual Benefit. CANCER - I am out to get you - Watch out!!!!!

Hello Oceangirl,
I am so sorry for your loss. I totally understand the pain you are going through. I would love for you to be at the 2nd Annual Benefit. It is going to be an amazing night to raise awareness of Cholangiocarcinoma and to honor those we love. I would love to include your brother in this benefit. You can email me at: barbara6193@comcast.net.
Hugs to you,

I have to add that the Children's Books were donated by beautiful 5 year old grandson, Brayden (he is such an old soul) - he told me that he had to donate these books (as I bought the same ones for him last year) for "his Papi's fundraiser". My darling, Brayden, never had the honor of meeting his Papi, but my daughter was carrying him in the final stages of Jacques life and Jacques spent many hours listening to Brayden's heartbeat with a stethoscope -  I KNOW that my Brayden and his Papi are totally connected.

Hello Everyone,
Well, here in New Hampshire I have been very busy preparing for the 2nd Annual Memorial Silent Auction Benefit - and it will be even busier for the next two and a half weeks working up to the Benefit, which is October 26th. This year the Benefit will again be in loving memory of my Jacques, who lost his battle with cholangiocarcinoma on November 10, 2007 and I am honored to also honor Becki Mignogna, from Manchester, NH, who lost her battle on January 17, 2013. Becki's son Rob is co-chairing this event with me - and let me tell you - I truly know that my path in life was meant to meet up with Rob - he is amazing. This years Benefit is going to be bigger and better than last year.
I will admit, it is a lot of work and entails organization and dedication - but knowing that we are raising money for such an amazing foundation - makes it all worth while. If anyone ever wants to talk to me to help them with a fundraiser - please feel free to email me. I will post an update after the event - although it may be 2 weeks after the event - as the week after the event, I will be traveling to Washington, DC to represent all of you and CCF at the AASLD - The Liver Meeting, November 1 - 4.
Although cholangiocarcinoma took the love of my life, my best friend, my Jacques - it has made me one very determined woman - who will never stop fighting the fight to find a C.U.R.E for cholangiocarcinoma. The one way I know I can help is by hosting this fundraiser to raise money to help with the much needed research. I am truly blessed to have such a supportive family and a huge support system of friends - who are always there for me and always willing to help - and also for bringing Becki Mignogna's son, Rob into my life and getting him involved - which he is so willing and ready to do. Here is what we have so far that will be on the Silent Auction tables for all of our guests to bid on (and bid high, is my wish).
$100. Gift certificate to Super Wok Restaurant, Londonderry
Two $50. Gift certificates to Super Wok Restaurant, Londonderry
Night on the town in a 14 person stretch limo
Wine tasting Party $250 value – Zorvino Vineyards
Life of your car Alignment – Firestone, Manchester
Coach Weekender Bag
Children's Books
NE Patriot's Alex & Ani Bracelet
20  Theme Baskets  (there actually will be many more of these) – Various value
Bruins tickets donated - January 14th vs Toronto - Loge 11 - Row 6 - Seats 15 & 16 . Face Value is     $105/each. Donated by Bernard Thompson of Thompson Motor Group
71 Piece Make up Collection in a Pink quilted travel case.
Teeth Whitening ($500 Value)
Trader Joes gift "sack" full of various goodies from their store
"Picnic Pack" Backpack with items for a picnic (i.e.: silverware, cloth napkins, a wine holder, etc)
Philips "Sonicare" toothbrush pack $70 Value
Philips "Airfloss" high powered flosser $100.
Gift Card for a Massage valued at $100
Gift Certificate (worth $150) for a woman's cut/color from Ame' Salon in Nashua, NH
Autographed/Framed Terry O'Reilly (Bruins) photograph
Gift Card “tree”. Gift cards for various denominations and locations. 
Visa gift card with a "mystery value of at least $100)
Stihl leaf blower $200 dollars value

My thoughts and prayers are always with all of you, my cholangiocarcinoma family.
Hugs from Beautiful New Hampshire - it is absolutely beautiful right now with our foliage,

Hello Elsy,
First I want to say that I am sorry for the loss of your grandmother. I lost my husband, the love of my life, my Jacques, 6 years ago this November 10th. I am organizing my 2nd Annual Memorial Silent Auction Benefit and I thought I would share a few things with you that may help. When I first started planning for the 1st Benefit - I was originally going to do something like what I think a tricky tray is. Is this where you have items and people purchase raffle tickets and then put the raffle tickets in the bin that is for the item they hope to win? If it is - that is a good fundraiser - but to raise more money it is much better to have a Silent Auction - this is where you have bid sheets in front of each item and people put their name and the amount they want to bid on the sheet - as the night goes on others can out bid them. You set a time for the bidding to stop and collect the bid sheets - and then announce the winning bidders. Many people may wind up with winning bids on several items - but they only have to write one check. You will need help to compile the bids and collect the money. Last year was the first time I held a Benefit and I raised $5,000. My 2nd Annual Event is coming up on October 26th and it is going to be bigger and better. I know that you are doing this in conjunction with Bingo Night, which is great because your grandmother loved Bingo. My benefit is held at a restaurant and  will consist of a Silent Auction, appetizers, cash bar, and entertainment (the band is donating their time and the restaurant is charging $15 per person for some pretty amazing appetizers that will be passed all night - Tickets are $25 - so $10 per person goes to the CCF.  People really love it as they come and bid, dance, and reminisce as we honor and remember my Jacques. This year we are also honoring Becki Mignogna who lost her battle with cholangiocarcinoma in January - her son Rob is very involved helping with this fundraiser. Tickets are $25 per person. The success of this Benefit depends on the creative and interesting items we receive as donations. We get many items from local businesses and also family and friends such as: Gift Certificates to local restaurants, stores, florists, spas, tickets to shows, sporting venues, local attractions, toys, tools, vacation packages, hotel stays, handcrafted items, sporting goods, electronics,  Theme baskets etc.
Don't be afraid to go to the chain restaurants in your community - they usually have a department that deals with donations and it only takes filling out a form - the ones I have dealt with were done online.
If you have any questions - feel free to email me. I can tell you that organizing a Benefit is a lot of work - but the feeling of contributing and making a difference is all worth it and everyone that attends will have a great time for a great cause.

Marion, Percy, Lainy, & Gavin,

Thank you all for the kind words. My devotion is my mission, I will never give up raising awareness and doing whatever I am able to do - to fight the beast called cholangiocarcinoma, so one day others will not have to go through what my family and I had to endure.
Percy - you are right about "training my bladder" - that is actually the teacher in me. Whenever you can come to New England - we will treat you to a delicious Maine lobster - THE BEST!!!
I will keep you all posted. Be well everyone.
Hugs from NH,

I am organizing the 2nd Annual Silent Auction Benefit in loving memory of my Jacques. The date and venue has been set; Saturday, October 26th starting at 6:00 pm at Sizzle Bistro in Manchester, NH. My sister actually owns Sizzle Bistro - which has great food and a fabulous atmosphere. There will be music, food, lots of items to bid on, all for a great cause. I know for sure that it is going to bigger and better than last years event - which was amazing. All proceeds will go to The Cholangiocarcinoma Foundation for research to find a cure for the cancer that took my Jacques. I will post more details in the next few weeks.
Cholangiocarcinoma may have taken the love of my life - but I will never stop fighting to help raise awareness and find a cure.
Hugs from NH

Get some rest. You are in my thoughts and prayers.

We could never forget about you. The offer is open for you also. We talked about getting together when you came to Boston - but as you said it was a quick, busy trip. Next time.....
Happy 4th of July everyone. Hugs from NH,


That day will come, my friend, and we will be happy to show you some great New England hospitality.

Dear Percy,
I wish we had celebrated it at ASCO - even if it is in October - Celebrations are great and good people like you deserve to be celebrated.
I am very sad to hear the news of your cancer returning. I wish you all the luck in the world in your treatments and I will keep you in my thoughts and prayers. I know that you are an amazing and very spiritual man and this will help you through. Through all the conventions we have attended together, we have had many laughs and great conversations. I have learned so much from you. I am still enjoying the "herb soup" you recommended to me.
If there is anything I can do for you, please email me and let me know. Until we meet again - you will be in my thoughts and prayers.


(167 replies, posted in General Discussion)

Pam and family,
I do not post often, but I have followed dear Lauren's story and I as so sorry for your loss. She fought a brave battle and I know that she is resing in peace in heaven. My thoughts and prayers are with you all during this very difficult time.
Hugs from New Hampshire,


(8 replies, posted in Members' Cafe)

Your post is very beautiful. It is exactly how I feel about my life story with my Jacques. The book is not finished - the chapters keep continuing.
Hugs to you.


(7 replies, posted in Announcements)

Thank you for the kind words. Percy, you are right - my perseverance and dedication is all in loving memory of my Jacques. You see. I had two choices when the love of my life passed away - do nothing and be angry that the beast called cholangiocarcinoma took my Jacques, or get involved to try to help find a way to help others facing what I went through. I'm so glad I chose the latter, which all came about from me looking for some answers when Jacques was diagnosed and I found the CCF website. I'm so glad I did, as I have met many wonderful people, Stacie - Marion - Percy - Dawn - Sara - Stella etc., and corresponded with many others over the last 6 years.
Today was a great day. It is so exhilarating to hear all the positive comments and the interest from so many people I met from around the world today. I spoke with people from Brazil, Mexico, India, Chile, Egypt, Spain, Canada, France, Germany, England, Iraq and all across the US. We sure have come a long way from my first convention I attended when very few, if any, attendees even knew about Cholangiocarcinoma. Today, there are so many that have visited our site, referred patients to our site, or are very interested in the CCF. A few people stopped to talk to me and said they were glad to meet someone in person, as they love our site. It has so much information for patients, family members, physicians, researchers etc.
Percy, you are amazing - attending as many sessions as possible. We need to get you a pair of roller skates, as you are all over the place. You are also very dedicated.
If anyone out there is thinking of getting involved, but are unsure. I can tell you from the bottom of my heart that after a long day of spreading awareness - when you put your head on the pillow at night - you will have a true sense of knowing you are making a difference!  Do as little or as much as you want - The time you give is time well spent.
Barbara from NH


(7 replies, posted in Announcements)

Hello everyone,
Well, I am in Orlando for DDW  - Percy is here too  - i have not seen him yet, but will tonight. The Cholangiocarcinoma Foundation booth is all set up and ready to raise awareness in the morning.
If anyone from the discussion board is in the Orlando area and would like to meet up with us, please let me know. Our days are busy - but there is tonight, Sunday or Monday night that we would love to meet you. We are on International Drive near all of the restaurants. I would love the chance to share my experiences of representing the foundation at numerous conventions for the past five years, since losing my Jacques in 2007 to Cholangiocarcinoma. It is an amazing feeling to know that I am raising awareness and trying to make a difference.
Let me know if you have a little time to meet with Percy and I. We would love it.


(2 replies, posted in Announcements)

Hello Everyone,

This is Barbara from New Hampshire. Percy and I will be attending DDW (Digestive Disease Week) in Orlando this Saturday, May 18th - Tuesday, May 21st. It is going to be a very hectic 4 days but, we are both free Saturday night - not sure about Sunday or Monday night yet - as if either of us  has the opportunity to meet with physicians, researchers, other advocates etc., we will always grasp any chance we can to raise awareness and gain contacts. If anyone on the board would like to meet up with us Saturday night - please let us know. It is always a pleasure to meet the faces of all of our Cholangiocarcinoma Foundation friends and families.

Send me a message if you are able to meet the amazing Percy and myself.

Warmest regards,