1

(17 replies, posted in In Remembrance)

Lisa,
My condolences to you and your family.  The only positive thing I can think about is my Dad is not suffering anymore. Your dad is now at peace.....I will keep you in my prayers.
Rita

Richard,
As I have just lost my dad 6 days ago, I know the feelings you are going through. I couldn't tell you when the last time my dad went to church or even thought about  God. His side of the family are Baptist and Protestant and my mom's side are Catholic. I never heard him talk about religion but we had Father Louis from the Catholic church that us kids went to when we were growing up, come to the hospital and pray with him and you wouldn't believe how receptive he was to him. He came back 2 days before he passed and did Last Rights and you could actually see him become more peaceful. I know he is in Heaven with his family.
We had a family member sing "I Can Only Imagine" and it was beautiful. Live life to the fullest with your dad for whatever amount of time he has here and remember, all it takes is FAITH.
My heart and prayers go out to you and your mom.
Rita

3

(10 replies, posted in In Remembrance)

Thank you to each and every one of you. We have laid my dad to rest with full military honors and I was presented with the flag which is a great honor, but the real honor was to be his daughter and be loved by him. I was his chosen one, his first born. He adopted me when I was 1 1/2 and I don't know if he ever knew that I knew but I never told him because he was My Dad!!! Love and Prayers to all.
Rita

4

(10 replies, posted in In Remembrance)

My dad passed away this morning from this terrible disease. It has only been about 4 1/2 weeks since he was diagnosed. I want you to know that he was in terrible health before this diagnosis so I don't want anyone to get discouraged because this happened so fast. For those of you that have followed his progression of declining health, you know that he had given up already and wanted to go fast. I prayed to God last night to take him because he was such a proud man and did not want to be a burden on anyone. No matter what I told him, he just did not believe that we were alright with taking care of him. He felt he was a burden on us. I just want to let y'all know that you can fight this. Do not give up!!!!! I have read so many posts on here with wonderful news, so I know this "crap" can be fought and won. My brothers and I will keep all of you in our prayers and I will continue following your stories. Love to you all and KEEP ON FIGHTING!!!!!!!
Rita


                                           Charles O. Glenn
                              May 25, 1930- December 11, 2007

5

(11 replies, posted in Good News / What's Working)

Way to go Lisa!!!!!! Keep it on the upswing.
Rita

6

(3 replies, posted in Introductions!)

Wendy,
Oh my gosh, I can tell how much you loved your daddy. He sounds like he was a wonderful man. It brought tears to my eyes. I am soooooo glad he got to walk you down the aisle. I will join you in your fight for all the unanswered questions that we all have about this horrible cancer.
Rita

7

(5 replies, posted in General Discussion)

Hi Wendy,
So, so sorry about your dad! I am doing all of those things, thankfully. I am glad that I have more days with him instead of him just being gone at the blink of an eye, but I doubt that it is a good trade off for him, having to suffer with this horrible disease. I try to look at the bright side. When did your husband graduate? I graduated in '86 and lived here all my life until I got married. I will have to pull out all of my annuals. Thank you for the prayers!
Rita

I have no clue about it, but I just wanted to tell you that I hope everything goes well whatever decision y'all make. I am praying for him to make a speedy recovery and take care.
Rita

9

(14 replies, posted in General Discussion)

Irene,
You and your husband are in my prayers also!! I hope and pray everything gets better with your husband and make sure you take care of yourself too.
Rita

10

(5 replies, posted in General Discussion)

Thank you Patrice,
I am doing everything I can, but it is not easy to keep my spirits up either, but yes, I definitely put on that front when I am with him. He had a good day today. He even got out of the bed and sat in the chair for about an hour and that is the first time he has gotten out of bed in more than a week. I feel as if he ran a mile. Take care of yourself and Dave and thank you for the hugs!!!!!!!!!
Rita

11

(5 replies, posted in General Discussion)

He had a CT yesterday because he is becoming jaundiced again and the liver enzymes are out of whack. The results are that the tumor in his common bile duct is growing around the stent and it has only been in place about 4 weeks.  How fast does this stuff grow??? His bilirubin is climbing but no itching yet. He broke down yesterday and it was horrible to see him cry. I can't seem to get his spirits up and he has basically given up and the Dr. is telling me (not him) that she thinks he only has 1-2 months left because of how fast this is progressing. They have him on the duragesic patch and dilauded for pain and  his blood pressure is slowly going down. He was only diagnosed about 4 weeks ago so it's like we are still in shock. I wish I knew how to make him feel better because he doesn't have a postive attitude and I think it is making everything worse. Any suggestions????? Love and prayers to you all!!!!
Rita

12

(12 replies, posted in Good News / What's Working)

That is wonderful news! Good luck on the surgery and infinite "No cancer" checkups!
Rita

13

(14 replies, posted in General Discussion)

Thanks Joyce!!! He did tell the radiology oncologist today that he was probably depressed because of everything that we have learned in the past few weeks. He did eat almost all of a muffin this morning along with a few bites of cereal that he let me feed him and drank some apple juice so that was very good. He has tremors also that interferes with his hand mobility to get a fork or spoon to his mouth without everything spilling. This has been going on for a long time so it is nothing new but it seems to be getting worse. They are going to start radiation treatments on Monday on his hip. His bilirubin is climbing so they are consulting with the G.I. doctor again. They also feel that the tumor in the hip is interefering with the bone marrow. They put him on the duragesic patch yesterday and that has helped with pain but his blood pressure is dropping each time they take it. Before I left the hospital tonight it was 82/52. Don't know what all of this  means!!!! It seems if one day is pretty good the next is pretty bad so I am not looking forward to tomorrow but I am trying to keep my hopes up.
Rita

14

(14 replies, posted in General Discussion)

My dad is still in the hospital. The congestive heart failure is better but he is in heart failure so his heart is just slowly giving out. His blood sugar has bottomed out a couple times. His sister came in from Dallas to see him for a few days.(We live in Long Beach, Mississippi) On Saturday morning when we walked in his room, I smiled and said "Hey" and he looked at me and said " Yeah, I want to know what is going on." I didn't know what he meant so I asked and he wanted to know why he was there, how he got there,who brought him there and what was wrong with him. He didn't know anything! Inside, I was FREAKING out but I calmly answered his questions and then told him I was going to find the nurse. My aunt stayed with him. The night nurse said she got the impression that he was like that when he came into the hospital so she did not know that it was new. We figured out that his blood sugar had dropped and they had given him darvocet for the first ime so we thought it was a combination of that because slowly he came back to normal. It took a few hours. They changed his pain med to dilauded and I stayed with him that night to make sure it didn't happen again. He was fine. It happened yesterday morning again after his sugar dropped too low so I guess it is just a side effect of low blood sugar. The Dr. says that every time your sugar drops too low it kills brain cells. They did a needle biopsy on his hip in Tuesday and Yesterday they said it was adenocarcinoma in his hip but still dont know the primary site.(pancreatic or bile duct) He has an appt. with the radiology oncologist today to discuss maybe doing palliative radiation on that hip to stop the terrible damage it has done. It is at the breaking point. My dad is hoping to just not wake up. He told my brother that he wished it was over. It has only been 3 weeks since we learned of this. He cannot eat anymore. He drank a little soup yesterday and drank enough glucerna to take his meds. and the day before that he had nothing to eat and hardly drank a drop. He spiked a fever last night and I looked at his urine bag to his output and it was so cloudy and dark and looked like blood was in it. Of course, I freaked out and the nurse didn't even know it was like that when I got her in there. They sent a sample to the lab so I am waiting to find out what is wrong. This sucks sooooooo bad. I am 39 years old and don't want to lose my dad yet, but I just have a feeling he will not be here very much longer. My heart goes out to all of you as well.
Rita

15

(7 replies, posted in Chemotherapy)

What a trooper you are. I love reading your posts. Best of luck to y'all.
Rita

16

(14 replies, posted in General Discussion)

Dear Joyce,
Thank you for those wonderful words. I know I will have no regrets but I am not sure about my brothers.
Rita

17

(14 replies, posted in General Discussion)

Hi Irene,
That is wonderful news that your husband has surpassed his prognosis. Your husband sounds just like my father when you talk about him being a very private person. My dad is the same and is very ornery and I was pregnant when he had his valve replacement and his bypass and I had to travel about 45 miles round trip every day to make sure he was o.k. and visit at the hospital and then at rehab. When he got out I did the same to visit and get him to Dr. appts.  He had an appt. one day at 9:00 a.m. and I got to his house about 20 min. till because he lives 3 min. from the office and he jumped on me about he was gonna be late and everything. For the first time in my life I felt that I disrespected him but I had to jump back on him because I felt I was doing all I could and I didn't deserve for him to make me feel that I was not doing just as he felt I should. I was crying still at the Dr. office and he appoligized and never has he said a cross word to me again. I love my dad but I have never heard those words out of his mouth. I just told him when he was diagnosed. My 4 year old daughter told him she loved him when we were leaving the hospital a couple weeks ago and he said" I love you too......go take care of my dog."  I about fell on the floor. He is being humbled by this disease as we all are and I am gonna miss him when he is gone!!!! I will update and you do the same. Let's all hang in there.
Rita

18

(14 replies, posted in General Discussion)

Hi Bazel,
Thank you for the reply. That is a good idea about telling him that he is able to spend the rest of his time with us and I know that his quality of life will be better without chemo so I just need to convey that to him. I think he has come around some today and he is realizing that there is nothing they can do. I am staying at the hospital with him at night now to make him feel more secure. Hopefully, he will be able to get out soon and come home with hospice and be with his dog that he loves so much. We are staying at his house to be with him also. This is going to be a very trying time for all of us and we will not forget about all the other people in this world that are going through the same terrible thing. God bless you all.
Rita

19

(14 replies, posted in General Discussion)

Thank you so much for the reply, Jeff. I am so sorry about your situation and I will be praying for you too. I am appreciative for the bluntness. Like my dad says "I don't want any beating around the bush." His doctors are wonderful and have taken very good care of him for a long time before this diagnosis so they kind of tell it like it is and that is good at this point for sure. We did find out today that they are going to hopefully try a needle biopsy on the spot on his hip to at least get a tissue diagnosis to maybe do radiation on that spot because it is so bad that it could fracture at any time. The wierd thing about all of this is that it was not there 2 months ago. I understand about not being able to do chemo and surgery, but he  doesn't want to just lay there because he doesn't want to be a burden on any of us. We just reassure him that we want to be here to help him any way we can. He is just a very proud man and it is hard for him. He is not the kind to show emotion but he is changing before my eyes. They asked today if his heart stopped, what did he want them to do? He has a living will so that took care of that but boy was that scary to think about. Well, take care of yourself and I will be praying for you. Thank you!!!!

20

(14 replies, posted in General Discussion)

My father was dignosed with cholangiocarcinoma or pacreatic cancer.....they don't know which one as they say they can't see the pancreas that well on the images but they do know there is a tumor in the bile duct. He was jaundiced and had an ERCP with stent placement. The jaundice and itching went away but a week later he had a blockage in the intestine. He has recovered from that and they let him out of the hospital but less than a week later he has congestive heart failure and they say that the EKG shows a little heart damage since the last one. He is a type 2 diabetic, had heart valve replacement in 2002 with double bypass, has very weak kidneys and other little things that go on with him. He is 77 years old and active until a few weeks ago when they told him about cancer. They say  his kidneys cannot tolerate chemo as it would take more than two weeks to expel it and it would cause more damage than it would help. No surgery because it has spread to the bone already. No biopsy can be done either so we don't know what kind or anything they just did the CA19-9 blood test and it was 590,000. I don't know what to do. Do we get a second opinion or is his health just too bad for any treatment. I haven't read on here yet of anyone that could not at least have chemo.......They have given him 6 months or less but he would rather them do SOMETHING rather than just let him lay there and die. Anyone have anyone else that has been told the same thing??? I am trying to hang on but feel helpless.....Thanks, Rita

My father is 77 and was jaundiced and had an ERCP done with stent placed in bile duct 2 weeks ago. Dr. cannot do laproscopic biopsy and images are not seeing the pancreas well enough to determine if it is pancreatic or cholangio. MRI showed mets to hip/femur area, pelvis and sacrum. If full body scan done it would probably show more spots. He has very weak kidneys and heart disease so no chemo or surgery possible according to Drs. 3-6 mth. prognosis/Stage 4......My husband and I and our children are moving from out of state to live with him so he won't be alone.....sometimes I feel it could be his last day and sometimes he is doing better so I feel better but it is hard to deal with. I am praying for all of you and please do the same for us.....Thanks for listening!!!