I was so sorry hearing of Jeff's passing.  He helped me tremendously during my precious wife Lana's  7 month battle with cc.  He will be missed by all us who depended on his wisdom, compassion and humor.  Our loss is God's gain.

Steve

2

(6 replies, posted in Grief Management)

My prayers and thoughts are with you and your family.  You are absolutely right.  God does know what He is doing.  He is in control.  Our lives are in His hands. Always have been. Always will be. Know that your husband is at peace now.

Love in Christ,
Steve

3

(38 replies, posted in General Discussion)

Hi Barb,
You are in my prayers.  Stay strong.

Steve

Lisa -
I am so sorry to hear of your Mother's passing.  Try to take comfort in knowing there is no more pain and suffering and that she is in a much better place.  I know there is a big empty space in your heart that time will eventually heal.  God bless you and give you comfort.

Steve

Dear Ron,
   My heartfelt condolences and prayers go out to you and your family.  Unfortunately, I know how you are feeling.  My darling wife, Lana, went to be with her Savior on May 24, our 34th wedding anniversary.  I am joyful knowing where she is and knowing that I'll be with her when I take my last breath but there's not a day goes by that I don't cry, feeling sorry for myself that I can't physically hold her anymore.
   God bless you, keep you and give you comfort.

   Steve

6

(38 replies, posted in General Discussion)

Hi Barb -

     Lots of prayers being sent up from my family for you.  Hang in there.

steve

7

(8 replies, posted in In Remembrance)

After being diagnosed in October, my beautiful wife, Lana, and I lost the battle to this horrible disease on May 24, our 34th wedding anniversary.  She was so strong and tried to win the battle, but just couldn't do it.
I was holding her in my arms when Jesus decided she had suffered enough.
  We had a celebration of life on May 25 which included a pig roast and lots of other food.  There were over 100 people in attendance which is a real tribute to her. 

  I miss her so much and I thank God for the time I had with her.

  This web site has been extremely helpful, educational and informative.

     Keep fighting.  Keep praying.  A cure will be found someday.

God bless you all.

steve

Hang in there Jolene.  This is really a rough row to hoe.  I'm offering up prayers for you now.  Rely on Jesus.  He'll get you through this.

steve

9

(3 replies, posted in Announcements)

Stacie - I'd like to echo Jeff's comments.  This site has been wonderful, full of information and encouragement.  Thanks
Steve

10

(8 replies, posted in General Discussion)

Matt and Val -
 
   Just now sent a prayer up for you.  Stay strong.

Steve

Thanks for the encouragement, Jeff.

No, we didn't find out what drugs will be used in the trial.  This particular doctor is the principal investigator in 2 or 3 different trials. I have heard that she is quite good and is on the leading edge of research in cancers of the billiary, liver, etc areas.  Dr. Elena Chiorean.

I'll keep you posted.

Steve

Great news, Jeff!!!  So glad for you. 

   My wife, Lana had CT scan Wednesday.  Tumor or her liver has not increased in size.  A few spots on her lungs have reappeared.  So, after five rounds of gemcitabine (which she did not tolerate well at all) and six rounds of oxaliplatin, the doc decided to change the treatment to cisplatin along with a smaller dose od gemcitabine.  He also set us us for an interview for a clinical trial at the Indiana University Medical Center.

Anyway ... that's wonderful news from you.

Steve

Wonderful News Kris - - -  God is so good, isn't He.

steve

Michele -

   God give you strength and comfort. I'm so sorry for your loss. Lean on Jesus through this painful time. He will get you through it.

Steve

Thanks for the information on the orphan drug Triphendiol.  I plan on taking a copy of the article to our oncologist next Monday.

    Steve

16

(8 replies, posted in General Discussion)

Charlene,
   I am praying for you both.  God is in control.

Steve

Wonderful news, Lisa.  God continues to work His miracles all the time.

   Steve

Belle -

     My wife's oncologist prescribed MEGACE for an appetite stimulant.  It's a liquid.  Seems to work pretty well.

  Steve

19

(60 replies, posted in Blogs)

To The Stubbs Family -

     My prayers go out to you.  Know that the Lord will give you strength and comfort to get you this.

   Steve

Wife Lana has not had severe itching yet.  But I gather its a foregone conclusion that she will eventually have this problem.  I'm going to tuck away the suggestions in this thread for future use.  Thanks all.

Kristan.  Thank you so much for your story.  It will help all of us.  I personally don't believe in luck.  Miracles, however, obviously do happen.  God bless you.

steve

That's great Oscar!!!  Just goes to show that one should NEVER give up trying.

I pray that the surgery is very successful.

     Steve
___________________________________________________________

   God give strength to everyone affected by this terrible disease.

Lisa -

Glad you had a great time.  Keep posting about your progress.

It's obvious that prayer is a mighty powerful tool.

Steve

-----------------------------------------------------------------------------------

   God give strength to everyone affected by this terrible disease.

Thank you all for your input.  Lana had a good weekend. She was up most of the day. Just a short nap mid-afternoon. It's been nearly 3 weeks since last infusion of oxaliplatin and 10 days since stopping xeloda.

We go for a CT scan Wednesday and another dose of oxaliplatin.  We are praying that this chemo is stopping the spread.  The gemcitabine didn't seem to.

Fortunately we have not experienced any blockage or jaundice yet.

Thanks again,

Steve

   God bless everyone affected by this terrible disease.

Hi Jeff -

   No one prescribed this.  I was just inquiring about the advisability of the drug to combat lack of energy.  I knew that it was prescribed for children with ADD to slow them down, but had heard that it had the opposite effect on adults i.e. to give them more energy.  Lana isn't depressed, she just doesn't have any energy.  We see the doctor next Wednesday for a CT scan and another infusion of oxaliplatin.  I don't know if we will be taking xeloda again or not.  It caused huge blisters on Lana's feet.  The last time she was this tired, she received 2 units of blood (anemic).  The transfusion really helped.

   Thanks for your concern.  I try to always investigate first.

Steve

   God bless everyone affected by this terrible disease.