(4 replies, posted in Announcements)

Hi Marion!  This is just a test. 

Sorry for the downtime this morning everyone!

Today, July 22, is a very special day! Today is Marion's Birthday! 

Happy Birthday, Marion!  Thank you so much for all you've done and all you continue to do! 


Don't miss it, this Wednesday!

"Using “Spacers” for Safer Delivery of High Dose Radiation Therapy"

High dose radiation therapy is effective in the treatment of liver tumors. However, the greatest limitation in the use of radiation is not the liver itself, but rather adjacent organs like the stomach or intestines, which do not tolerate high doses of radiation therapy.

The use of laparoscopically-placed spacers can safely provide critical distance between a liver tumor and these sensitive organs and allow for therapeutic treatment of liver tumors, expanding the number of patients who can be offered potentially curative high dose radiation therapy.

More info: http://cholangiocarcinoma.org/webinar-u … n-therapy/

To register: https://attendee.gotowebinar.com/regist … 2289282562

On behalf of the Cholangiocarcinoma Foundation and the global patient community, we wish to express sincere condolences to the family of Satoru Iwata, CEO and President of Nintendo.

http://www.inquisitr.com/2247229/ninten … -has-died/


(1 replies, posted in Announcements)

Busy, busy, busy month. 

Hey everybody, next week we have another free webinar you should consider attending.

Thursday, May 14, 5:30pm (EDT)

"Photodynamic Therapy, A Ray of Light in Cholangiocarcinoma: The OPUS Trial" presented by Dr. David E. Loren, Associate Director of Endoscopy and Co-Director of the Pancreaticobiliary Section at Thomas Jefferson University Hospital.

Cholangiocarcinoma is a disease that often leaves patients and their physicians feeling that they have few options for treatment. This presentation will discuss an emerging treatment option for patients whose cholangiocarcinoma is not able to be removed by surgery.
Join the webinar to learn about photodynamic therapy and a new clinical trial for the management of cholangiocarcinoma.

click here to register

Today is Marion's birthday!  She's been such an important part of this foundation and one of the main forces behind this message board.  She's an incredible woman.  Thanks Marion!  For everything you've done and everything you continue to do!!


Topic: “Update on Cholangiocarcinoma: What we have learned from the International Hepatobiliary Neoplasia Biorepository”

Date: Monday, July 14, 2014

Time: 4:00 – 5:00 PM (Eastern)

Presenter: Dr. Roongruedee Chaiteerakij, Mayo Clinic, MN

Purpose: Educate patients so they better understand how Mayo Clinic is using the information and bio-specimens they provide to improve care all for cholangiocarcinoma patients.

Register Here!

Great idea Marion, if the same information exists on the new site I will point the old link to the new information. 


Hey folks, sorry the message board was set to not let people pinch and zoom on mobile devices.  That has been fixed.  Pinch and zoom to your hearts content.

Thanks, Rick

Yep, last night we were attacked pretty easily by spambots.  While I was fixing the deadlinks Jason mentioned, I enabled the "old version" of registering for the site.  You register, you get an email, click on the link and you're done.  Wow, I didn't expect 60 registrations with almost 100 spam postings in that short amount of time. 

Needless to say, our registration system's been fixed and all of the spambots/spam deleted.  smile

You guys are so kind.  It's not just me though, we have an entire team working on it, props need to be given to Jose Llerena and Adam Kovitz also. 

We're not done yet though, thanks for putting up with our "dust."


Our new site is built on a completely different platform, (one that will encourage editing and updating.) 

Once its up and we get the kinks worked out, I'd totally be willing to look at doing another wiki.  (but that's really a decision for the foundation board.)

Hey Jason,

We actually did have a wiki for almost 2 years, 2007-2009.  No one used it, and users never made any updates.  (except for spammers that edited it about 10 times a day.)

Of course, that was 5 years ago, I'd imagine our users are more tech savvy now, it will still take some diligence to keep the spambots off.  I'd leave that up to the board if they want to try something like that again. 

The good news is our new site design will make it easier to make updates, so expect a site that will remain current!  smile

orlysud wrote:

Can you please list the "Discussion Boards" as one of your services in the drop menu on your home web page??  I noticed that it use to be in the dop down menu under "get Involved", but no longer is.  I had to type it in the search box. Thank you.

It's under Patient Support, it always has been.  smile  thanks!

Eli, I added our site to Wikipedia all the way back in 2005 or 2006.  smile


(11 replies, posted in General Discussion)

Randi and Lainy, you have an internet browser with stubborn cache.  (Internet Explorer?) 

You can hit CTRL-F5 and it will refresh the page new and not access the cache of your computer.  (but Cornelius is gone, it's not Groundhog Day anymore.)


(11 replies, posted in General Discussion)

Thanks for noticing him, we actually named him "Cholangiocarcinoma Cornelius"

Yeah, sorry about the shadow, but if we have 6 more weeks of the kind of winter we're having around here?  Bring it on.

It's also here on our video page.  http://www.cholangiocarcinoma.org/media.htm  (second row, 1st on the left)

AND!  Have you seen our new "Awareness Month Information" page?
(click the orange banner at the very top of the page to see it, or go to the Calendar of Events in the menu, under Patient Support.)

On that new page is a secret button that takes you to a very magical, important place, that some of you may have not seen before. 

A mystery!  smile


(3 replies, posted in Suggestions)

Thanks PCL,

We delete new users if they don't make their first post within 30 days.  We're working with the polling options now.  Look for it next year.



Yeah, I saw that too.  We don't use that extension because we approve each registration as it comes in.  It's not only disabled, but its uninstalled.  smile


Ok, it looks like it is only a bug with Internet Explorer.  I've seen a lot of webdeveloper boards dedicated to talking about it, and I may have found a fix. 

I've implemented the coding change, keep using the forums for a few days until the old one works itself out of your cache.    Let's see if that works, at least for reasonable sized messages.  Let's try to keep the books to a minimum.  smile 

(and I went and tried it on my wife's computer, you're right, that's pretty annoying.)

I can also suggest:


as fixes.  smile

Thanks Margaret, 

Huh.  That's an odd problem.  I can't even imagine what would cause that. 

Can you tell me what browser you're using (Firefox, Internet Explorer, Chrome) and what kind of operating system you're using (Windows XP, 7 or Mac, etc.) and I'll do some investigating.


Unfortunately, I don't have anything older, neither does my database provider. 

I'll make sure to take steps in the future to make sure that it doesn't happen again, but for now that data is lost.

(I have however found Andy's entry cached in Google and I have restored it.  If you find other posts cutoff, post the link here and I'll see what I can do to restore.)

Thanks, I've looked at my database backup and they're cutoff there too.  I'm checking with older versions of my backup to see what I can do.  I'll let you know.