Dear Susan, Welcome to our remarkable family and the best place to be for CC support. Truly sorry to read about the CC diagnosis of your husband and that you had to join our remarkable family. We know when one hears the word Cholangiocarcinoma it is a whole lot to take in at one time and kind of like being hit in the stomach with a bat. Here are a few items that may help you get through the first leg of the CC journey.
Knowledge is the most important tool at this point to begin the fight. When you have a chance, read some of our Members posts or if you have a question you can use our Search Engine at the top of the page. Type in a word or 2 and many posts will appear on that subject.
Make sure that the Oncologist you choose along with the Hospital for treatment, are very experienced with Cholangiocarcinoma. May I ask where hubby is being treated.
Do not be shy about getting 2, even 3 or 4 opinions. This is a very rare Cancer and no Doctor will mind you wanting more opinions. Keep a folder of all test and LAB results.
I want you to know that we have many patients who were Stage IV at diagnosis and ended up with surgery, our favorite word. What chemo is he on? Please do keep us updated on your husband's progress as we truly care. Here is a site you may find helpful: http://cholangiocarcinoma.org/newly-dx/