1

(10 replies, posted in General Discussion)

Hi, Beatriz. Glad to hear that you can put your Thyroid on a watch and see program. I also had a 2 CM nodule on my thyroid but it was not cancerous and in fact has gone down in size on it's own.

As for your dear Father, honestly, Beatriz, once a decision is made by the Surgeon and a plan is put in to motion the fright will start turning to fight. It is always the unknown that adds to the stress. My Teddy was 73 when we first started this wild journey.

I found that for us a good attitude and handling it with prayer, grace and humor we did quite well. We did not want to look back and feel we should have handled it other wise. We wanted to make more good memories. Sending you bog cyber hugs   {  }  {  }  {  }

To those of you who take comfort as I do that our loved ones really never leave us, I am posting the signs that many see and believe. It brings such great comfort to me and I keep a log  of all Teddy's Visits.

After loved ones cross over, they are anxious to let us know they are okay and are aware of what is going on in our lives. If we are not able to feel them around us, they will often give us signs that we cannot ignore. The person who is given the sign usually knows he or she is receiving a message from the other side. You do not have to look for signs – the signs will come to you. The signs our loved ones give us most often are:
They come through as an animal. Our loved ones are able to use their energy to go inside of an animal, such as a butterfly, ladybug, bird, or dragonfly – for a brief period of time. The animal does something it usually would not do, such as land on us, peck at our window, scream at us, etc.
•    They place common objects such as feathers, coins, or rocks in our path. Our loved ones like to place things over and over again in our path that were significant to them. 
•    They give off fragrances. We can often tell our deceased loved ones are around us when we smell their perfume, flowers, cigar or cigarette smoke, or any other familiar smell they had. There is usually no logical explanation of why the smell is there.
•    They make songs come on at the perfect time. We know they are around when their favorite songs come on at the right time with the exact words we need to hear. 
•    They come to us in dreams. One of the easiest ways for them to come through to us is in our dreams. All we need to do is to ask them to come, and they will. However, we should ask them to wake us up after they come, or else we will not remember the dream. A dream that is a true visitation will be very peaceful and we will know it is truly our loved one. We will remember this type of dream in detail many years later. (On the other hand, a subconscious dream may be frightening or feel bad. This type of dream is not your loved one.)
•    They allow us to feel peaceful for no reason. When our loved ones are in the room, they usually make us feel so loved and at peace. It usually happens at the most unsuspecting time, so there is no logical explanation for our sudden bliss.
•    They place thoughts in our head. Because they in spirit form, our loved ones don’t have an audible voice. Therefore, they give us messages telepathically. Pay attention to thoughts that just “pop” into your head.
•    They love to play with electricity. They turn electricity on and off. They like to flicker lights, turn the television and radio on and off, and make appliances beep for no apparent reason.
•    They make buzzing noises in our ears. Because our loved ones speak to us on a different, higher frequency, we may hear ringing in our ears when they are trying to get our attention. This is a sign telling you to listen to what they are saying.
The list can go on and on, but these are the most common ways they let us know they are around. If you haven’t received any of these signs, simply ask your loved ones to come to you to let you know they are okay. Be patient . And always thank them for coming.

3

(2 replies, posted in Introductions!)

Dear Cathy, welcome to our remarkable family but sorry you had to find us. If you go to our home page there are some valuable site including Treatments, Trials and Hospitals. May I ask where Mom is being treated? We are huge believers in 2nd and 3rd opinions and know that knowledge is our most important tool. I am posting a site below  that you may find helpful as well. Wishing the very best for all of you and please do keep us posted. You are not alone here as we all truly care.

http://cholangiocarcinoma.org/newly-dx/

Teddy had not visited me in almost 3 months but 3 nights ago he pulled a WOW! Teddy was feeling patriotic as he came through the fire alarm light like the 4th of July! I was lying in bed staring at the tiny light and the whole place lit up with bright shooting stars. They were bouncing all over the ceiling. A few minutes later there was a fog like form trying to orchestrate them. I kept thanking him and last but not least I felt the pressure I have felt before of him touching my arm. I now know that he is happy about my new acquaintance with an old friend. Life and after life is pretty amazing!

5

(29 replies, posted in Introductions!)

Dear Tony, please try to take one day at a time and then one day, when you are ready and the time is right, all the good memories will start coming forward and all the tears will be "happy" tears. There really is no set formula, it just seems to happen. For me, I have become a BIG believer in life beyond and it has brought me so much comfort. In fact I am going to post a note today on my latest visit from Teddy. It was unbelievable.  Perhaps stars are not stars at all but rather openings in the sky where our loved ones shine down on us to let us know they are HAPPY!

6

(7 replies, posted in Members' Cafe)

Love the 2 Munchkins but that Rocket Birthday Cake is tooooo much. Should be in a Bakery Museum. Can't wait to see next years cake. Let's hope Robert doesn't want to be a surgeon!!!

7

(1 replies, posted in General Discussion)

Dear Cress, Congratulations on Dad pulling through the Whipple. My husband had one and while it is not life threatening it is the biggest surgery to the human body. I am going to try to help you get somewhere on this. My husband had the same problem but they discovered very quickly that the liquid seeping out was from a small hole that opened up inside along the line of stitches. He ended up in rehab for 3 weeks where the ONC wanted to "starve" the hole so nothing at all would come in contact with it. I could not even bring any type of food what so ever in to the room. He was on an IV for that whole time, he called that his candy bag, BUT it worked. The hole healed without further surgery. He was 73 and they just didn't want to do more surgery. My other suggestion would be to get a consult with another Doctor and see what he says to do. Teddy never had chemo as they said it would not work where his CC was located, this was 10 years ago and hopefully some things have changed. I would ask about a fistula. Not sure but I think that is the word for the hole. Wishing you and your Dad the very best.

Dear Jack, I just emailed you the list. Please let me know that you received it. I pray for a comfortable journey for Diane and you never know how strong you are until "strong" is the only choice you have! You can email me anytime you feel the need. You are not alone.

Yes, I know Shellie, just what you are feeling. When you feel overwhelmed take deep breaths, or a walk. I used to get in the car for a 20 minute drive, put a Mama Mia CD in and sing to the top of my lungs. When I felt better I would go back home. Good luck with Cleveland Clinic! Sending you some huge cyber hugs! { } { } { }

Shellie, I apologize as I am sure I never saw this post. I still feel you need to see an ONC who has treated more patients with CC so has more experience with it. 8 weeks is a long time to go with no treatment at all. This is not a common Cancer as it is still very rare and hard to control and I just have a feeling you need to go elsewhere. I would pick a couple of Hospitals/ONCs and at least get their opinion.  Dr. Javle at MD Anderson in Houston is one of the tops in this field Sometime he will give a treatment suggestion if you sent him copies of all tests and LABs. Closer to you is Sloan Kettering in NYC, Cleveland Clinic, NY Presbyterian, Dana Farber Cancer Institute in Boston.
Treatments do not differ because of age as this is still a very rare Cancer, however being younger does help. Usually the plan would be to use chemo to bring down the size of the tumor and then hopefully surgery can take place, it has happened before even to Stage 4 patients. The plan is to find the right ONC and Hospital and then we hope for the best, it has happened before.
As for the Y-90 treatment IF that is suggested by the ONC, you can read more about it if you use our Search button at the top of the page and type in Y-90. Knowledge is one of our best tools for fighting this Cancer. Wishing you the best, take a deep breath and ne very strong!

11

(19 replies, posted in Introductions!)

Daisy, I am so terribly sorry about what you are going though. I cannot help in any way with advise but I do have a paper with 10 Signs The End is Near. If you email me through this CC site I would send it to you. I believe that part of the anxiety is just not knowing. This paper will give you the sign to look for. Sending you prayers and please try to be strong. You never know how strong you are until "strong" is the only choice you have!

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(10 replies, posted in General Discussion)

Dear Beatriz, I am overjoyed that you did got in so quickly. WOW! You have learned very fast little grasshopper! Your Dad is beyond lucky to have you as his advocate. Job well done. I think the ERCP will tell the ONCs more.
Your resource note is fabulous and should help many members. Thank you so very much for that.
I will be looking for your updates and wishing you all the very best.  You never know how strong you are until "strong" is the only choice you have!

13

(8 replies, posted in General Discussion)

Oh, Dear Jen, how good it is to see your beautiful face as I think of you so often. I know it is 5 years as Dad waited 6 months for Teddy's Italian restaurant to open. Where has the time gone?
The pictures are just fantastic and I am glad to read you are all doing good.  Just how you Dad would have wanted it. I do remember his dreams at the end and I remember his 1st Granddaughter laughing at him making faces at her with her in the rocking chair and I think Grandpa was making faces in the corner!
I have learned dear Jen, that life is for the living and that the heart can regrow those old familiar feelings. I believe the day will come when the 2 Princesses will see Grandpa themselves when they least expect it. Take care and enjoy the girls they grow up in the blink of an eye!

Dear Shelliec, you are both going through so very much no wonder your head is spinning. I have a question for you. Have you given any thought to another opinion? We are big believers in 2nd and 3rd opinions. Like I always say, different DOCs see things differently.  You want to make sure all bases have been covered. Also I am posting a site below  which you may find helpful.

http://cholangiocarcinoma.org/newly-dx/

15

(10 replies, posted in General Discussion)

Dear Beatriz, Welcome to our remarkable family and the best place to be for CC support. I am sorry you had to find us but glad you have joined us.
While UC San Diego is a good place to be we are very strong believers in 2nd and 3rd opinions. Because CC is still very rare I feel that different ONCs will see differently in diagnosis and treatment. Also with another opinion or 2 you will not look back and wonder should of and could of.
You can read up on others who have gone through this in the Profiles at the top. Also if you question a word or etc. we have a Search engine at the top and just enter the word or short phrase.
I am posting a link below that you may find helpful and please do keep us updated on your Father. Hope you get good news as well from your Thyroid surgery.   

http://cholangiocarcinoma.org/newly-dx/

16

(6 replies, posted in General Discussion)

Dear Cathie, welcome to our remarkable family and the best place to be for CC support. I am so very sorry you had to find us for your twin Sister, Konnie. As mentioned previously we are huge believers in 2nd and even 3rd and 4th opinions. All Doctors can see things differently and then you can weigh the differences and suggestions. We have had quite a few members who were diagnosed with spots in the liver and after treatment with the right chemo they went on to have surgery. Wishing you and your Sister the very best and please do keep us updated on her progress as we truly care.

Dear Shelliec, Yes, we have had members go through Y90. At the top of the page is a Search engine and if you click on it and type in "Y90" posts will appear from these members.

Dear Rangani, I go your email and just sent you the 10 Signs and I sincerely hope it helps.  If I can help further just let me know. Thinking about you and sending prayers and strength to you!

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(7 replies, posted in Introductions!)

Dear Lorrie & Art, Welcome to our most remarkable family but sorry you had to find us. Know that you have also come to the best place to be for CC support. Do not question yourselves as you have totally done all the right things. You have seen several Doctors and with that already gained a ton of knowledge which by the way is the best way to fight CC. Knowledge! Yes this CC is what we call a roller coaster ride. Just please make sure that the DOC you end up with is experienced in treating CC as it is still so rare. Below is a site I hope you find helpful and please do keep us updated on Art as we truly care.
http://cholangiocarcinoma.org/newly-dx/

As a Diabetic I graciously thank you! Thank goodness I have never taken that RX!!!!!

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(11 replies, posted in General Discussion)

Dear Faisal,
I am so very sorry to read about your Dear Father. You were so very lucky to have each other and he is now at Peace after fighting a valiant fight. Perhaps stars are not stars at all but rather openings in the sky where our loved ones shine down on us to let us know they are HAPPY!

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(357 replies, posted in Introductions!)

Yea! Matt! Great news and so happy you took a vacation. Years ago I went on BP but they never seemed to work right. About 16 months ago went off and my BP has been more normal than ever before. Go know! JUST SO HAPPY YOU ARE DOING WELL.

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(2 replies, posted in Members' Cafe)

I just have to share this with you as it is funnier than heck!

Friday I had an appt. with my NeuroSurgeon for results after an MRI and he decided I will have another MRI in December and if it is good we will go to a year for the next one.
I go to the scheduler to set up an appt. and the scheduler says "6 months, that makes it December 6th".
I said, "OMG, that is the date of Teddy's 6th year of being gone!"
She says, "Oh, I am so sorry, would you like me to make it the next week?".
I said, "No that is fine, cause if he is here everything will turn out OK"
Without a blink of an eye, she says, "Would Teddy prefer morning or afternoon?"

I have never laughed so hard in my life! Just had to share that one as it will go down in my history!

Hi Catherine and THANK-YOU for your beautiful words but don't forget you have given a lot yourself.
I always feel embarrassed in a way when thanked as I get so much more from this Site then I give.
Always thinking as well that if the whole World could be as loving as all the good people who have posted here, what a  beautiful and wonderful  World this would be.
Many thanks for all you have done and especially at a time when your family really needed you!

Dear Tony, welcome to our remarkable family but so sorry you had to find us. This is the best place to be for CC support. We are huge believers in 2nd, 3rd and 4th opinions until you and your wife feel totally satisfied with the DX. Different Doctors see and feel things differently and it is a good idea to gather the test results and see someone for another opinion. Gem/Cis is usually the first line of Chemo given. I am not sure if anyone has had this exact type of CC but if you go to our Search engine at the top of the page and type in peritoneum posts on that subject will appear and my be helpful. Wishing you both the very best and please keep us posted on her progress as we truly care.