(2 replies, posted in Introductions!)

Hello, Mary and welcome to the best place to be for CC support. Next, CONGRATULATIONS on having a successful surgery. Surgery is our favorite word. Last but far from least you are totally normal as are your feelings. Positivity helps with the stress and instead of you being in denial it is everyone around you in denial and that must be awful and adds to your stress. Your body does not need stress as it hampers healing and you need all your strength to fight CC and  getting back to normal. If it was me and all you have gone through I would have a talk with your family and while being positive sometimes  one just needs and deserves a good cry! Yes, be strong, yes, be positive but don't let them all railroad you with their fears. Talking it all out and having everything in the open brings relief. I know in the beginning you feel as though you were hit with a baseball bat but I swear to you soon your fright will turn to fight but you do need your team of family and Doctors to fight with you. Please keep us updated and I am anxious for the ONC report when you see him and what his plan of follow up will be. Take care and you are not alone as you have a whole new BIG family here.


(1 replies, posted in Grief Management)

Dearest Sammi. Dad is not in the coffin, everything he has will be with you! His spirit, his soul and his love for you. All you have to do is close your eyes and feel him all around you. I had a funny feeling pass over me at Teddy's Memorial. All of a sudden I wondered what I was doing there? Why were all these people there. My Teddy was healthy and safe and happy and he was with me in my mind and in my heart. You can do it and if not, it is not a test where you will pass or fail. Just be you and Dad will like that best.

Thanks, Kris but I got my RX today. They told me that the DR. girl called it in today but the RX says the 27th!!!!!!  Which she told me it would be. So now I know it is the CVS.
Have a Hot dog for me. Enjoy the game.
So, I had a tooth pulled Tuesday, a lower molar (didn't mean to rhyme there). Today went back so he could prep my mouth for a bridge. Well, now I know how to shut me up!!! He was smoothing out some old fillings and the drill slipped off a tooth and caught me under my tongue. Like Julie would say, GAH!!!!!!!!!!  He really felt bad but not as bad as I felt. All I have to say is...."Dear G-d, I know I am considered chosen but please stop choosing me all the time". This too shall improve.

Gav, no super bowl for me and staying away from anywhere near the stadium. The stadium is about 1/2 hour from me.  Anyway, on Sunday only liquids for me. BTW for anyone having to do that Prep, I get tired of Chicken broth but Campbell's Beef Broth is really very good!

Gav, my RX is finally ready. Only took 4 days and many phone calls to the GP and to CVS. I don't like being lied to. Say something I may not like but don't lie. At least I have it now and from now on this late in my life learned I should call a week ahead. Bottom line they are all messing with someone's health. Oh well, easy breezy weekend, storms tomorrow (love it) and Monday early another Colonoscopy!  Poor Michael Jackson but I do love that Propoful! lol


(2 replies, posted in Grief Management)

Sammi, all that you are feeling is sadly, normal. What kind of person would you be if you did not feel that way? I remember before Teddy's Memorial I did take a 5mg valium and that kept me calm and I focused in Church on the pianist. He used to come visit Teddy and we became friends. He would look over at me and give me a little smile and I realized he was trying to get a friend through and it did the trick. So many have felt what you are feeling and somehow they came through just fine.  You never know how strong you are until "strong" is the only choice you have!

Son, so true. I got laughing gas and it didn't do a thing. I laughed and talked through the whole procedure. He still had to give me 3 shots of Novocain. He also RX me Tylenol with Codeine but I am trying not to take it today as I am still looped. Right now more of an ache then a bad pain.
What was cool though is he had that Pandora Music station on and in the first 20 minutes or so 3 of T and my songs came on. I said "T I know you are here and thank you". After that I was there almost 2 hours and no more of our songs. Guess he saw I was ok and had other things to do.
Right now I am so angry and I don't get this angry too often. What to do! I have tried for 3 days now to get a new request for my Blood strips for testing. The Pharmacy claims they are not hearing from the Dr. office and the Dr. office is saying they have not heard from the Pharmacy. I am sure I am switching Pharmacy's but how dare they all play with peoples lives, so to speak.
Guess I better take another Codeine and just go to sleep. Maybe a miracle will happen and I can pick the strips up later. Sorry, everyone....this is me ....frustrated.

Marion, excellent as usual. Not sure how to improve on perfection. A BIG thank you for all those who worked on this! I hope to be like all of you when I grow up!

Cuz, well, one of the best in every category, "Fiddler on the Roof". AND....Phantom and one of my all time favorites ever....Les Miserable.

On codeine right now for the tooth pull tonight. DARN, I should have taken the tooth to put under my pillow. Perhaps T would have given me a raise on this one!
BTW.....the DDS had Pandora on the radio thing and in 15 minutes 3 songs of T and mine came through. I should have given him the bill too!

Dear Wensdi, welcome to the best place to be for CC support. OMG! I wish I knew how a young person of 22 gets CC. I believe the youngest we have had on here was 25 and there was only one. I did hear once of a girl 11 you had it. No rhyme or reason why. I can tell you that once treatment begins your fright will turn to fight. I am hoping one of our family will come along here and may have some insurance ideas for you. You have come to the right place and you are not alone as you have gained a whole new family. Attitude is very powerful and we do not believe in time frames.  We have many members who were given months and they are still here. Please keep us updated on son's progress as we truly care!


(1 replies, posted in Members' Cafe)

And that Julie, is the story of a very good friend, indeed a good person. Enjoy.

Cuz, just got back from the DDS, had a tooth pulled. Still laughing from the laughing gas.

I totally forgot one other singer beside Barbra that I just love: Patti LaBelle

Broadway:   Barbra, Liza, Sarah Brightman and Ethel Merman

                      Nathan Lane (Actor/singer)

I don't know how to set up categories. Going to sleep as that is what the DDS said to do. Later Gator.

Sorry, Cuz, I still stand with Barbra and Johnny, never was in to who wrote and etc. but maybe others can chime in here. I will tell you though that for my Sweet 16 I had a luncheon downtown Kansas City, Mo where the Crewcuts were playing, probably before your time. Also went out a few times with the lead singer of the Rays, was on the KC MO local American Bandstand a few times complete with Poodle skirt and my Bro-in-law is lead tenor of the 4 Lads who are appearing here the end of Feb with the 4 Aces. Guess that is my claim to fame. Oh, and I used to be the babysitter for the little girl who became the Pro Golfer's wife.....Tom Watson.  That's it. Pretty quiet life. OK now for the very best of the best in male category what about Mario Lanza!

Cuz, Tina is a different kind of singer and I love Proud Mary, but Barbara has an unbelievable range, pitch perfect and she can sing anything! Did you know she never had a voice lesson? Also she would not get a nose job as she was afraid it would change her voice.  Harry is good but I cannot put him in Johnny's league.  Notice I am on a first name basis here with them? BTW not sure if I ever told you that Teddy helped give Al Jarreau a start? He was 19, going to College and sang at T and his brother's bar downtown Milwaukee. It was appropriately called The Doll House. He was also very SMART and T would always buy his College books for him. I saw him perform here 2 years ago and got back stage passes as he never knew T had passed. He was upset, of course.

Oh I agree with you! Our favorite was Johnny Mathis. Honestly, I never cared that much for Sinatra or Martin. Oh and I think Barbra Streisand is the all time best in the female category. I don't even understand the songs of today!

Duke, that is hysterical as T and I used to do that. I started setting the watching and would say, I will meet you in an hour at such and such a place.

Oh, CUZ, DUKE! I am so very happy at this post. YIPPEE! I am doing cartwheels, not a nice picture! WOW! Did I tell you how happy I am!!! You are like Willie Nelson now, On The Road Again! I LOVE THIS FAMILY!!!!!!!!!!!!!!!!!!!!!!!!!!!


(9 replies, posted in Introductions!)

Dear Helen, to chemo or not is always one of the biggest questions we get and unfortunately it is such a personal decision. Because you are Stage II but the fact they did see micro cells, if it was me, guess I would do it. You can always go off the chemo and we have a lot of patients on or have taken Xeolda who may be able to give you some advise but the bottom line is it is your decision. You don't want to look back and feel, I should of, could of. On the other hand I know Chemo can be harsh. I think I would ask my ONC what the chances of a return of Cc would be without chemo vs chances of return with chemo. Best of luck on your decision but remember you are already ahead of the game having had surgery and at the Stage you are. Hope I didn't confuse you more but I tried to point out reasons to have or not have it.


(9 replies, posted in Introductions!)

Hello Helen and welcome to the best place to be for CC support. CONGRATULATIONS on your surgery, as you know it is our favorite word. That and the word stable. It is perfectly normal to feel nervous about the unknown but once you start treatment honestly, your fright will turn to fight. Good to hear you feel so good and you also have a winning attitude. Please keep us updated on your success and you have now increased your family by hundreds!!!

I found this timely, because today I was in a store that sells sunglasses, and only sunglasses. A young lady walks over to me and asks, "What brings you in today?" I looked at her and said, "I'm interested in buying a refrigerator." She didn't quite know how to respond. Am I getting to be that age?

I was thinking about how a status symbol of today is those cell phones that everyone has clipped on to their belt or purse. I can't afford one. So I'm wearing my garage door opener.

I was thinking that women should put pictures of missing husbands on beer cans!

I was thinking about old age, and decided that old age is when you still have something on the ball but you are just too tired to bounce it.

I thought about making a fitness movie for folks my age and call it 'Pumping Rust'.
When people see a cat's litterbox they always say, 'Oh, have you got a cat?' Just once I want to say, 'No, it's for company!'

Employment application blanks always ask who is to be called in case of an emergency. I think you should write, 'An ambulance.'

The easiest way to find something lost around the house is to buy a replacement.

The sole purpose of a child's middle name is so he can tell when he's really in trouble.

Did you ever notice: When you put the 2 words 'The' and 'IRS' together it spells theirs.

Aging: Eventually you will reach a point when you stop lying about your age and start bragging about it.

Some people try to turn back their “odometers." Not me. I want people to know 'why' I look this way. I've traveled a long way, and some of the roads weren't paved.

Ah! Being young is beautiful, but being old is comfortable.

Lord, keep your arm around my shoulder and your hand over my mouth.

I had been seeing an ONC every 6 months as 5 years ago I had a GIST Tumor removed. I had told her all about us and that my husband had passed from CC. She said she has 1 patient with CC. I brought in a few brochures for the ONC and she wouldn't even take them. She said to me, "Oh, I don't think she would be interested". Guess what? I left her!!!!!! I am sure you would have done the same. I can't even dignify her answer to me.


(4 replies, posted in General Discussion)

Hi Julie, I am so glad you posted this story as HOPE is what we need and we can never stress enough to seek other opinions. It does not mean an ONC Surgeon is not good it means they are smart enough to have you get that other opinion if they have not had experience with CC. Great Post.

Hi Margaret, I do not recall her and when I did a search her name was not there. I think you are right in that she really belongs with us CC'ers.

Oh, yes I do, Son, thanks you for these posts and stay warm. Met Lexy for a late Breakfast at Denny's and didn't even realize it was only 50o here. For Super Bowl though, it will be in the 70's.


(1 replies, posted in Members' Cafe)

First I woke up to a bright shiny penny. I only get shiny ones from T. Then my only Granddaughter called to meet me for brunch at Denny's. Be still my heart, she asked me! She is 22 and slamming it out of the ball park! What a woman. I told her she would be the first Woman, Jewish, Japanese President. In fact I thought of a name for the 4 of them. My Jewpanese! My daughter did a splendid job in raising these young adults. So, we have a 2 -3 hour brunch, discuss the family, her good fortune at her job and the world. I can be in bed and somehow my whole being comes alive that it was her idea. I gave her a small Jewish gold star of mine that T had bought me and in 9 years it has never come off her neck. There are some really good young adults coming up in our future!