1

(1 replies, posted in Members' Cafe)

Julie, I just answered your e mail and asked the due date. So I now know. April is good as that is my Birthday and my son's Bday. And the cycle of life continues ........another little Robert!

Lisa, I LOVE Champagne but I can't drink as I get tipsy just from smelling alcohol. Never could drink. See? I bet because I am always loosy goosy every one thought I spend the day bending my arm! lol

3

(2 replies, posted in Good News / What's Working)

Lisa, we missed you as well and so glad to see your smiling face again! I know you will have a fantastic Thanksgiving as I know you have so much to be thankful for-------poster girl for CC!

4

(2 replies, posted in Members' Cafe)

OMG! Lisa, I have had the same thing for a long time now. We lived at 713 E 70th Terrace in KC, MO. MANY times when I sign on to the computer it is exactly 713AM!!!!!! I really don't even think about it until after I do it. I say, when the same things happen to many diff. people who believe, how can it not be true! BTW Very good to see you on here today!!!

5

(2 replies, posted in Members' Cafe)

Yes, finally as the last one was the end of  August! I had one of my infusions Thursday. Woke up at 3AM and here is what I saw:
I have a tiny green light on the ceiling from the fire department and it NEVER casts a glow or shadow. Well, there it was. A huge glow running down the back of my mirrored dresser.
It never happened before, ever, nor the last 2 nights! Thank you T for looking after me! Now I am hoping he appears in some way for Thanksgiving. After all he was Mr. Holiday!

Dear Christian, infections are quite common with this monster CC. I am not being funny but I must say I so admire your Mum's spirit! She is one woman who is going to call the shots! Bless her spunky attitude!
When you are ready, I have a list of signs that the end is nearing. Please email when and if you decide you would like a copy. Just click on my name to the left of my post and it will take you to a site email. My husband followed them pretty closely.
Hope Mum gets to go home soon and YES, you did all the right things!

Dear Kathy thank you so very much and may I say it is so good to see your smiling face again. Hope everything is good at your corner of the world. Now that I re read what I wrote I think it sounds better to say I am starting my 6th year cancer free as it is like adding a year already!!!

8

(2 replies, posted in Members' Cafe)

Duke that is just beautiful!!
I know I have posted this one before but I love it:

I asked for strength.     God gave me difficulties to make me strong.
I asked for wisdom.      God gave me problems to solve.
I asked for prosperity.   God gave me brawn and brain to work.
I asked for courage.       God gave me dangers to overcome.
I asked for patience.      God placed me in situations where I was forced to wait.
I asked for love.             God gave me troubled people to help.
I asked for favors.          God gave me opportunities.
                               I received nothing I wanted.
                             I received everything I needed. By Aaron Hoopes

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(1 replies, posted in Members' Cafe)

Thanksgiving is the appointed time
for focusing on the good in our lives.
In each of our days,  we can find small blessings,
but too often we overlook them,
choosing instead to spend our time paying attention to problems.
We give our energy to things that cause us trouble
instead of those that bring peace.
Starting now, let's be on the lookout for the bits of pleasure in each hour,
and appreciate the people who bring love and light to everyone
who is blessed to know them.
You all are those people. On Thanksgiving, I'm thankful for you.
Happy Thanksgiving!

Love Lainy

Dear Christian, I must say you have dealt with a lot but I am sure your Mum is so grateful to have you caring for her. First on the nutrient drinks, have you tried adding fruit and blending it. My husband didn't like them either until I tried Carnation Instant Breakfast in vanilla and blended in a banana. He loved that.
We all felt helpless in the beginning but it doesn't take long, unfortunately, when you will feel like you graduated from CC101. It sounds to me like you are doing great and have it all under control but you never mentioned any pain. Is she not in pain? If so that is great but should she start getting uncomfortable call the ONC right away as it is important to keep her comfortable.
Please do keep us updated and like I said in the 1st post, you are NOT alone as we are all right with you!

11

(6 replies, posted in Introductions!)

Dear Christian, welcome to the best place to be for CC support and you are not alone anymore as you have just gained family the world over. I am so very sorry about your Mum and will not question you here but will look in the post. Glad to hear your Aunt is doing well. I am also happy that you have been reading up on us as knowledge is the best tool to help win this fight. You will soon see what I mean when I say you are not alone! I will wait for your information post and be very strong! That and attitude help so very much!

Shelley, way to go, girl. Always with this CC the ONC should be asked. Good move and I am curious as to what he says. Have a great weekend.

Hi Shelley. Perhaps the mattress is old or he needs a firmer one. I know sometimes my back and arms hurt when I first get up. Mine is only 2 years old but I don't think it is firm enough.
Yes, it takes a long time to heal from these surgeries. If not the mattress what about asking the Doc to write an order for some light physical therapy?

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(3 replies, posted in Members' Cafe)

Hi Duke and Aimee.....I was in the travel business for 35 years, I know you thought I was only 40! I would say that you both would probably enjoy a Motorcoach Tour when you will hit many spots and everything is taken care of especially the driving. You will also meet some interesting people on your tour. Go to a travel agency and pick up a few brochures and find some tours that will fit your desires. Insight and Cosmos have always been good and still are and usually reasonable. Also Trafalgar and Globus. That would give you 4 to compare. I am excited for you!

Dear Shelley, welcome to the best place to be for CC support. First of all Congratulations on your Dad's Surgery as surgery is what all CC patients strive for. I am wondering if your have asked his ONC what may be going on. Does he have a follow up treatment plan in place? Sorry, I have no answer for you but hopefully  others will be along with some suggestions/advice. Best of luck to you all and please keep us updated on Dad's progress.  P.S. I know this is going to sound lame but has anyone checked his mattress?

Wow, thanks Marion, that is really great news! Thanks.

Marion, you are so right. I remember like it was yesterday. Teddy had been itching for 2 weeks. Nothing helped and I told him to go to his GP on a Wed. for LABS. 2 days before we were leaving for Milwaukee. She called us Fri. nite at my sons to tell us not to worry but his Billie Rubin was over 5. A week later he had his aborted Whipple in Milwaukee.  Communication was totally broken down and our site was not up yet. Thank goodness our Docs and Surgeon in Milwaukee were right on it. The problem I see here is that when people are first DX or have symptons they have not heard of CC. Why would they? Perhaps we need more education out there?   Don't know how, though.

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(3 replies, posted in Good News / What's Working)

Hi Kris V and so good to see your smiling face again. Except for your back it is exceptionally good to read all your good news. Yea for Marks test results and keep up all the good work. Good to have you back and hoping to see more of your postings especially the funny ones about Mark. Enjoy your Holidays.

19

(2 replies, posted in Members' Cafe)

Hi Kris, wonderful to see you and yes, reality is funnier than fiction! When will these guys realize that we are usually right!!!!

20

(7 replies, posted in General Discussion)

Dear Nicole, stay encouraged as there is nothing like a great attitude to help push out that rascal, cc!

Marco all I can tell you is after C.K. my husbands Cancer returned to the same spot. IF it had returned somewhere else they could have used it again but they said it would not work in the same place. IF they say no to C.K. have your Oncologist push for you. I know that helps here but not sure about Canada. Wishing you the best.

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(20 replies, posted in Members' Cafe)

Oh yes, Kris. Practice and next. I am not discouraged. But I do think I had a better time with you. lol

23

(43 replies, posted in In Remembrance)

Happy Birthday Kris, we will never forget you!
Hans I am so happy for you and your new life as you give hope to others who have traveled your road. Yes, LIFE IS FOR THE LIVING! I have a feeling that no matter what road you take Kris is very proud of you.

•    I wish heaven had a phone so I could hear your voice again.     
•    I thought of you today, but that is nothing new.
•    I thought about you yesterday and days before that too.
•    I think of you in silence, I often speak your name.
•    All I have are memories and pictures in a frame.
•    Your memory is a keepsake, from which I'll never part.
•    God has you in his arms...I have you in my heart

Dear Surfer, I cannot offer advise except to tell you my husband had Cyber Knife and it was great.
The prep is easy as is the C.K. and is done with in a few days. The only side effect Teddy had was 1 week of tiredness. I remember we were shown a video before making our decision and perhaps they can show you a video on both procedures. Know that the decision you make is the right one
and I am wishing you a ton of luck!!!

Dear Jason, I am truly sorry to read about Andrea. Please accept my humble condolences and
from Andrea to you the following:

If I should be the first to go,
And leave you alone, my Dear,
Let not your heart be lonely,
Nor in your eyes a tear.
Grieve not for me, my Darling,
I’ll not be far away,
With petals of love and tenderness,
I’ll pave for you the way.
To join me in our sanctuary,
And ne’er again we’ll part.
Grieve not for me, my Darling,
I live within your heart.
Take joy again in living,
As you did in years gone by;
God knows what of he’s doing,
And not be questioned why.
Grieve not for me, my Darling,
My life with you on earth
Each moment filled with happiness,
And love so few be worth.
I’ll be waiting for you Sweetheart
Where skys are ever blue,
With eager heart and open arms
Patiently, for you.
Grieve not for me, my Darling,
May faith and my love keep.
Your soul filled with contentment
Eternally, I sleep.