Julie, you know how I feel about this. Words are not enough. With that said, I also know you quite well and I feel once you get over the bruise from being hit in the head and stomach, you will meet this head on and look over all the choices, you do have choices, and proceed to fix it all! I have read up on Keytruda and it sure seems to be a wonder treatment. Sure wish I could be by your side right now. I know I would get a freshly canned pickle! Glad though that you are home safe but maybe not so sound. You have beat this before and you WILL beat it again! That old CC does not know who it is dealing with. Love Me

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(6 replies, posted in Members' Cafe)

HAPPY, HAPPY BIRTHDAY, Marion. Have a wonderful healthy and happy trip around the sun this year! Thank you to the little birdie! Enjoy the Grands!

Dear Brigitte, YEAH! Shrinkage is one of our favorite words! That is just great news. From what I understand blood clots are not unusual with CC and it sounds like your DOC is right on it. I also feel some therapy is good and it certainly is no weakness to ask for some extra help. Stress needs to be relieved so all your energy can focus on kicking the CC. Great work!!!

Marion, what a beautiful story and a beautiful family. G-d really does pick the very best.

5

(15 replies, posted in General Discussion)

Daisy, I am so very sorry to read this post about your loving Mum. What is happening now is what happened to Teddy and they are doing the same things that Hospice did here for Teddy. I just want to add that his Morphine was  pumped up to 350 mg. He was also on Ativan for agitation. Daisy all you can do is be there, talk and touch. I so agree about the Birthday and I sincerely hope she meets her goal. I remember so well how once the passage started all pain and discomfort stopped and it became a day I will never forget as my old Sicilian turned in to a beautiful angel, peaceful and calm and I knew he was going to a much better place. We are all here if you need us. You never know how strong you are until "strong" is the only choice you have!

Oh, Patty, this is MUSIC to our ears! Fantastic! With hope you get miracles and you are a miracle! I am doing cart wheels and word cannot express how happy I am for you! You are leading the ways for others.

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(3 replies, posted in Members' Cafe)

Scott, thank you so much for the wonderful update! Yes, life is for the living! You surely have something good going for you by doing it "Scott's way". I think it must be the little hill billy rebel in you!  What it is, keep it up and keep on going!

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(11 replies, posted in Introductions!)

Dear Jan, sometimes a good cry really helps. I hate to say this but welcome to what we call our CC roller coaster ride. We are so sorry you had to get a ride on this coaster as it hardly compares to an amusement park! Sending good vibes across the water that Mum keeps on improving!

Hi, Shellie, and it is so good to see you! I am thrilled you are looking in to BGJ398 in New York and hope it all gets approved! Great step to take. Got to have lots of HOPE and an abundance of strength. Miracles do happen here. Please keep us posted on the latest and I will pray for the greatest posts to come!

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(72 replies, posted in Introductions!)

Dear Tiah, sending out prayers, good vibes and a ton of great juju for a better Scan. Not sure why different places show different results in scans but I do know first hand that it does happen. Like, everyone needs more worry and frustration, right? Fighting CC is not for sissies which is why I marvel at the strong members on this Board and you are definitely one of them.

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(3 replies, posted in New Developments)

WOW! NICE!

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(29 replies, posted in Introductions!)

Oh, small world. Teddy and I moved out here 21 years ago to an Active Adult Community called Sun Lakes which is about 5 miles South of Chandler. After he "relocated"  5 years ago I moved to Gilbert. Well, if you ever come out here for a visit (preferably in the winter) you will have to give me a call!

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(29 replies, posted in Introductions!)

Dear JD, that is some mighty good news and I am sure it is quite a relief to have hubby feeling better. Wishing him the very best with the chemo and hopefully he will be one of the lucky ones with little side effects. Thank you so much for that awesome post.

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(11 replies, posted in Introductions!)

Dear Jan, keep hoping as we have had many miracles on this site!!!

Hi to my son from another Mum. I know you are busy but I miss you! Hugs to Mum! And yes, I hope T is having his meetings with Vince Lombardi! I got to make you eat cheese one of these days!

SIGNS FROM  LOVED ONES

After loved ones cross over, they are anxious to let us know they are okay and are aware of what is going on in our lives. If we are not able to feel them around us, they will often give us signs that we cannot ignore. The person who is given the sign usually knows he or she is receiving a message from the other side. You do not have to look for signs – the signs will come to you.The signs our loved ones give us most often are:
They come through as an animal. Our loved ones are able to use their energy to go inside of an animal, such as a butterfly, ladybug, bird, or dragonfly – for a brief period of time. The animal does something it usually would not do, such as land on us, peck at our window, scream at us, etc.
•    They place common objects such as feathers, coins, or rocks in our path. Our loved ones like to place things over and over again in our path that were significant to them. 
•    They give off fragrances. We can often tell our deceased loved ones are around us when we smell their perfume, flowers, cigar or cigarette smoke, or any other familiar smell they had. There is usually no logical explanation of why the smell is there.
•    They make songs come on at the perfect time. We know they are around when their favorite songs come on at the right time with the exact words we need to hear. 
•    They come to us in dreams. One of the easiest ways for them to come through to us is in our dreams. All we need to do is to ask them to come, and they will. However, we should ask them to wake us up after they come, or else we will not remember the dream. A dream that is a true visitation will be very peaceful and we will know it is truly our loved one. We will remember this type of dream in detail many years later. (On the other hand, a subconscious dream may be frightening or feel bad. This type of dream is not your loved one.)
•    They allow us to feel peaceful for no reason. When our loved ones are in the room, they usually make us feel so loved and at peace. It usually happens at the most unsuspecting time, so there is no logical explanation for our sudden bliss.
•    They place thoughts in our head. Because they in spirit form, our loved ones don’t have an audible voice. Therefore, they give us messages telepathically. Pay attention to thoughts that just “pop” into your head.
•    They love to play with electricity. They turn electricity on and off. They like to flicker lights, turn the television and radio on and off, and make appliances beep for no apparent reason.
•    They make buzzing noises in our ears. Because our loved ones speak to us on a different, higher frequency, we may hear ringing in our ears when they are trying to get our attention. This is a sign telling you to listen to what they are saying.
The list can go on and on, but these are the most common ways they let us know they are around. If you haven’t received any of these signs, simply ask your loved ones to come to you to let you know they are okay. Be patient .

Oh my, Jan, you have brought such happy tears to my eyes. Thank you for such a beautiful compliment. I assure you that my being on this forum is purely selfish because of the way it makes me feel so good. And, it is all because of people he world over meeting here for one cause and filled with so much caring and love. I think the world could take a good lesson from all of you!

BTW, IF you are also a beyond believer I do have a list of signs that your loved ones are around you that I would be most happy to share. Heck, here it is as I have not posted it in quite a while. No matter how crazy it makes people feel I am the bottom line is the comfort it brings to me. Again, purely selfish! Hugs to you across the water.

HAPPY 22ND ANNIVERSARY TEDDY~ALTHOUGH TEDDY RELOCATED 5 1/2 YEARS AGO, he never forgets our anniversary. which is today! Last night Mel & I went to a dinner party and after dinner the hostess decided to entertain everyone by playing her piano. Of all the songs she could have played, she picked the love song "MORE". "MORE" was sung to us at our wedding ceremony. What greater gift could I have had? You see, loved ones really never leave us after all.

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(17 replies, posted in Introductions!)

Dear Daisy, I am so very sorry to read your latest  post about your dear sweet Mum. You both have fought a very hard battle, one of the hardest and now she is preparing to become another of G-d's  little Angels. Please know that when the time arrives she will still always be around you as I don't believe any Mum's really ever leave their children. Sending prayers and love your way!

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(11 replies, posted in Introductions!)

Jan, I am so very sorry to read about your loving Mum. I would think the most important thing now is to try and get her to a good comfort level. Wish I could give you an answer to where you are in this but I do have a list of 10 Signs the journey is near an end. If you would like it please send me an email through this site and I will send it to you. There are no words that can help when we watch a loved one suffer like this. Be very strong and I agree that there could be a change for the better once they put the stents in. We try to stay realistically optimistic. Please do keep us informed of Mum's condition as we truly care.

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(6 replies, posted in Introductions!)

Great news, everyone is different and Teddy's was 10 years ago so things go a little differently now thank goodness.

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(6 replies, posted in Introductions!)

Dear Joseph, welcome to our remarkable family but sorry you had to find us. My husband had a Whipple Surgery and please know that it is a huge surgery BUT not life threatening. He was 73 at the time and I would say a full recovery took him about 3 months. I was pleasantly surprised to see him sitting up in a chair the 2nd day. To begin with he will not be able to eat as he had and we found that "grazing" all day rather than large meals worked well along with Nutritional drinks like Carnation Instant Breakfast. Teddy like the vanilla and I would blend in a banana. This can take the place of a meal or have it with each meal. The get up and go will be slow but all of a sudden one day it is normal again. At the time he had his Whipple they did not follow up with Chemo but some Doctors do that now, it is up to the ONC. They removed the gall bladder, the duodenum and the head of the pancreas. Your Surgeon may tell you they really don't know much of what is inside until they get there. The surgery was about 8 hours. If you have any questions please feel free to ask away. Wishing your  Dad the very best~ Please keep us updated as we truly care.

Dear Tricia, welcome to our remarkable family and so happy to hear of your success and you are truly already a huge help on this Board. Wishing you much good luck and more good news on your CC journey. Please do keep us updated on your continued success as we truly care. Below is a site you may find helpful for new members. Looking forward to your next post.

http://cholangiocarcinoma.org/newly-dx/

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(4 replies, posted in General Discussion)

Cookie, I can't be of help on this subject as Teddy had stent replacements OFTEN and Never had a problem. With that said I would let them know. T always thought it was not the procedure but the one who was doing it and he would always ask for the same guy.

25

(17 replies, posted in General Discussion)

Daisy, I can't fathom that the Doctors do not kept you informed of what is happening. I know many have received relief by having the ascites drained. Making Mum comfortable should be their goal. I would raise a little steam there. Have they told you that she is declining? If that is the case I do have a list of signs the end is near. If you wish for them just send me an email through the CC site and I will send them to you. Be strong, hang in and hang on see what can be done to make her more comfortable. Sending you some huge cyber hugs! { }  {  } {  }