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(2 replies, posted in General Discussion)

Dear Sharon, I hope so too. Will be sending lots of prayers, good vibes and juju! Please let us know how he does. I would think it may help quite a lot. Sure hope so!

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(9 replies, posted in Members' Cafe)

THANX JUJU, WOW! AMAZING SCOTT,  and you look just like I pictured! You are truly a celeb now.

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(9 replies, posted in Members' Cafe)

Me too!

Hello, my son from another Mum! I am doing quite well. The scar is bigger although the tumor was smaller than the first one. LOVE the Hydrocodone! I have really not had PAIN more like discomfort.  I had gained in 2 days, 9 LBS from the steroids they bombarded me with but have now lost 6LBS.
We will contend with the "thickness" he found on the first one down the road. I think it is just the way I heal. But will have another MRI in 3 months.  Stitches out May 10th.
Mel babysat yesterday and the Grands came to have dinner with us. It was all leftovers from the freezer!
This week I am doing NOTHING but resting. Give MUM a hug!

After she was DX with Cancer she wrote this and I LOVE it!

I would have gone to bed when I was sick instead of pretending the earth would go into a holding pattern if I weren’t there for the day.

I would have burned the pink candle sculpted like a rose before it melted in storage.

I would have talked less and listened more.

I would have invited friends over to dinner even if the carpet was stained, or the sofa faded.

I would have eaten the popcorn in the ‘good’ living room and worried much less about the dirt when someone wanted to light a fire in the fireplace.

I would have taken the time to listen to my grandfather ramble about his youth.

I would have shared more of the responsibility carried by my husband.

I would never have insisted the car windows be rolled up on a summer day because my hair had just been teased and sprayed.

I would have sat on the lawn with my grass stains.

I would have cried and laughed less while watching television and more while watching life.

I would never have bought anything just because it was practical, wouldn’t show soil, or was guaranteed to last a lifetime.

Instead of wishing away nine months of pregnancy, I’d have cherished every moment and realized that the wonderment growing inside me was the only chance in life to assist God in a miracle.

When my kids kissed me impetuously, I would never have said, “Later. Now go get washed up for dinner.” There would have been more “I love you’s” and more “I’m sorry’s.”

But mostly, given another shot at life, I would seize every minute, look at it and really see it…live it and never give it back. STOP SWEATING THE SMALL STUFF!!!

Don’t worry about who doesn’t like you, who has more, or who’s doing what. Instead, let’s cherish the relationships we have with those who do love us.

Dear Brian, welcome and know that you have come to the best place to be for CC support. I feel that you can tell your wife and daughter the truth as they deserve to know so that they can feel a part of healing and helping you. We also have a booklet that explains and answers questions and you may find that very helpful. We do NOT listen to statistics as everyone is so different and many seem to beat those numbers. We also try to remain realistically optimistic. One more rule of thumb is to get more opinions. You want to make sure that you give yourself the opportunity to have a try at different options for treatment. Many Doctors see things differently. Below is a site you may find helpful and please do keep us posted on your progress as we truly care.

http://cholangiocarcinoma.org/newly-dx/

Dear Annie, welcome to our remarkable family and the best place to be for CC support.  Don't worry about multiple postings as our Gavin loves to erase! I am really happy that you are returning to the USA as I think you will find we are more advanced in treating CC therefore giving you more options. Hang in, hang on and please keep us posted on your progress as we truly care.

Jim, I am so very sorry to read about Mary but know that your wonderful attitude is what is getting you both through this journey. Giving in, not up is perfect and will allow you to enjoy what ever time is to be given. When my Teddy went in to Home hospice he told everyone we were on our Honeymoon! You will never look back at would haves, could haves you are doing it all with grace and dignity! Wishing for Mary to be comfortable and keep on making good memories as those are the ones you will remember in time. We are here for you and please keep us posted on Mary's progress.

Dear Sharon and Phil. I have a list of Signs that the end is near. If you would like me to send them to you please send me your email. I am trying to remember if Phil is in Home Hospice. Teddy followed this list pretty closely and I found that it took a lot of the fear away by knowing what to expect. Just send me a note through the CC site by going to my profile.

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(8 replies, posted in Members' Cafe)

Thank you, Brenda! Hope things are blooming on the Farm!

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(8 replies, posted in Members' Cafe)

Thank you so much Catherine and Nancy.

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(17 replies, posted in General Discussion)

Hi, Honey, I'm HOME! I was only in the hospital from Monday morning to Tuesday afternoon, tired but none the worse for wear. He had another CT scan done this morning and it looks like the first area where the tumor was in January is developing thick walls. So we will now have a e month follow up on that one with another MRI. He said it is rare for this to happen but then those of you who know me know I don't do things easily. I don't have time to worry about it and it could be just that...thick walls. Actually came home with Robin and got my RX for Hydrocodone, stopped to eat and picked up some veggies from a market. Mel's daughter called yesterday and Is bringing BBQ Brisket for dinner tomorrow and she will meet Robin. I am doing the sides like salad and veggies. So sweet of her.
Again thank you for the prayers and thoughts. Oh my, Gavin you were right, here I am again! HUGS to all of you!

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(6 replies, posted in General Discussion)

Dear Kay, Oh my gosh! What a whopping diagnosis! At least it sounds like you are in good hands and that the 2 Doctors are working it out together. IF they come up with a Colectomy I just wanted to let you know I had one a year ago and would be happy to talk to you about it.  I did not have Cancer but an ulcerated Colon that would not heal. I can now live life again and so glad I did it. I sure hope they get everything worked out and try to stay very strong. You never know how strong you are until "strong" is the only choice you have! Please do keep us updated as we truly care.

Sirena, good news as sometimes going for a dose of home can really be a big boost to feeling better. Wishing you the best and please keep us updated on Mom's progress.

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(17 replies, posted in General Discussion)

Brigitte, Darla, Kathy, Sharon & Phil, You are all so very sweet and Thank You. Oh my, on top of that which to me is not a big deal for all that you all go through, but am juggling the new Beau and the Passover Seder tomorrow night for 16 people.  I am not going in for the surgery I am going in to rest!!! I have said for a long time I am only getting rid of things I don't need anymore and this surgery should do it. Have to think of another attention getter.
We went to our go to restaurant for family events and the Grands met Mel. WOW! They really hit it off.
Now, all of you stay good until I am back on, ya hear? BTW in case anyone wondered I do not feel any different at 76 than I did at 75! I feel Blessed and thankful and it doesn't get better than that.

Dear Sirena, does your Mom have stents in the bile ducts? If so many time the fever is from the stents being clogged and then they need to be exchanged and the patient gets a very quick turn around for the good. Not sure if RT can cause a fever. I know this is all 100 times harder not being able to be there. Perhaps you could make a list of your questions and have your dad ask the Doctor?

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(8 replies, posted in Members' Cafe)

Thank you my son from another MUM! Had a great time but the best was a letter to me from my Grandson Brandon who is 19. It should be framed. OMG! That letter made my whole life. Love this Momma.

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(17 replies, posted in General Discussion)

Ha, Ha, Catherine. I so love your sense of humor. I just do this for more attention, you know! Thank you for your kind words and yes, I will take all prayers!

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(8 replies, posted in Members' Cafe)

Hi Sissy, it was GREAT! Thank you so much. The Grands met Mel and Lexy said Grandma he is hot. Well, if a man almost 77 can be hot. We all had a great time and Mel was a big success!

Can your Mam see another Doctor with her insurance?
I just want you to know that when you are really ready, I do have a list of the signs that an end is near and all you need do is email me through the site and I will send them to you. This could be way down the road I just wanted you to know. I feel it is actually not scary if we know what to expect. So much for that Doctor he should give up his practice. He gives you the bad news then lets you now he does not know what to do! I feel terrible that there is no medical person you can turn to. It's like the middle ages! I am so wishing you the best!

I don't know how you do it! Added pressures are not needed or welcome. OK, would a Physician be willing to just consult over the phone with a Doctor in UK?  We do have a few members in Ireland and I am hoping they will chime in here.

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(17 replies, posted in General Discussion)

Hello CC Family! As many of you know I had a benign tumor removed from the lining of the brain, in January called a Meningioma. Right after, a smaller one was discovered just a hair away from my Motor Skills and I gave the orders to TAKE IT OUT! So my repeat performance is Monday early morning.
The first was the size of a golf ball and this one is the size of a quarter. I asked my neurosurgeon if he would take a nickel! I am fine with it all as it is not a bad surgery but a long recovery, 6-7 weeks.  However, I will probably only be off the CC site a week. I need something to do, you know. After that I have no other physical problems that I know of. Not bad for 76 yrs old today. Humor, my loves, humor will get you through anything! I only hope that no one bumps the surgeons arm during surgery! Last one was 4 hours and 3 nights in the hospital and this one is 2 hours and 1 night. YEA! Wishing you all well and I will be on here until Sunday night. 6AM check in Monday, can you imagine getting up that early only to be put to sleep???

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(15 replies, posted in General Discussion)

Do you ever look great! You need to come here for a visit as I know a ton of girls who would probably love to meet you. OOPS! That is if you are single!  HAHAHAHAH

Dear CRB, I am not sure how your Medical Care operates in Ireland but is it possible to get Mam in to a place in the UK where they have much more experience with CC?

Dear Sirena, Can you speak to your Mom's ONC to find out why no Chemo? If I may make another suggestion, I would call your own DOC and ask him for something mild to help you get over the edge of feeling helpless. The only thing you can do for your Mom is to be strong for her. You never know how strong you are until "strong" is the only choice you have! Please let us know how Mom does on her new therapy. Hang in and hang on and know that we are here for you!