Thanks...yes I was just thinking of some activities that may help bring about positive thoughts and relaxation... things like small craft activities, scrapbooking (if that's a hobby), etc.
Any ideas are appreciated! Thanks!
1 Wed, 05 Nov 2008 15:21:15
Re: Activities or Things to do during Chemo?? (13 replies, posted in Chemotherapy)
2 Wed, 05 Nov 2008 14:10:28
Topic: Activities or Things to do during Chemo?? (13 replies, posted in Chemotherapy)
Hi,
Does anyone have advice for things to do during chemo? I'm trying to help someone pass the time. Any enjoyable activity to help pass the time, avoid stressful thoughts would be appreciated! (reading books/magazines, crossword puzzles, ??)
Thank you,
3 Wed, 05 Nov 2008 10:57:50
Topic: Hepatic Arterial Infusion; Experiences?... (1 replies, posted in Clinical Trials)
Hi,
Please let me know if anyone has had experience with clinical trials involving hepatic arterial infusion. Current treatment plan is oxaliplatin via HAI + 5FU (with leucovorin) + Avastin.
Thank you!
4 Thu, 09 Oct 2008 15:00:27
Topic: Dasanitib (0 replies, posted in Clinical Trials)
Any experience with this? Clinical trial offered; gemcitabine + dasanitib.
Thank you so much for sharing any experiences you may have!
5 Tue, 07 Oct 2008 07:02:56
Re: Gemcitabine + Xeloda (25 replies, posted in Chemotherapy)
Thanks so much for the feedback!
6 Mon, 06 Oct 2008 12:38:28
Topic: Gemcitabine + Xeloda (25 replies, posted in Chemotherapy)
Please let me know your experiences with Gemcitabine + Xeloda.
Cholangciocarcinoma patient was having success with Gemcitabine + Cisplatin (tumor shrinkage and ca 19-9 down dramatically), however, now has recent mets to lungs.
Doctor is now wanting to try Gem + Xeloda.
Thanks so much for your advice/experiences.
7 Tue, 08 Apr 2008 20:25:33
Topic: Fluid Build-up (Abdomen and Extremities) (9 replies, posted in Adverse Reactions & Side Effects)
Did any of you experience fluid build-up in mainly the abdomen, and extremities (ankles) after chemo treatment? This is after gemcitabine + cisplatin combo.
My loved one did not have this ascites (not sure if she is diagnosed with "ascites" yet, but definitely has serious fluid build-up) before her chemo treatment and now does.
I'm wondering if any of you experienced this just due to your cholangiocarcinoma, or if you experienced this post treatment with gem/cis.
Thank you for your feedback...
8 Wed, 26 Mar 2008 16:20:40
Re: Gemcitabine + Cisplatin vs. Gemcitabine + Oxaliplatin (4 replies, posted in Chemotherapy)
Yes, I did see that. Thank you very much.
9 Tue, 25 Mar 2008 05:52:43
Re: Gemcitabine + Cisplatin vs. Gemcitabine + Oxaliplatin (4 replies, posted in Chemotherapy)
Thanks so much for your honest yet positive message!
10 Mon, 24 Mar 2008 10:13:44
Topic: Gemcitabine + Cisplatin vs. Gemcitabine + Oxaliplatin (4 replies, posted in Chemotherapy)
Does anyone prefer one combo over the other? Let me know of any positive experiences.
My family member will start the Gem/Cis combo soon. I'm not sure why not Oxali, as I've heard there are fewer side effects?
Thanks.
11 Fri, 22 Feb 2008 16:47:19
Re: Orphan Drug Status for Trphendiol (18 replies, posted in New Developments)
Yes, thanks so much for this article. I appreciate you sharing it!
12 Thu, 31 Jan 2008 09:20:57
Re: Raising Money for Research? (3 replies, posted in Suggestions)
Thanks so much.
Stacie, any ideas? Is there a standard way we should do this? My sister and I are runners, so a run seems like the first idea that came into our heads. Any other fundraising ideas seem appreciated. Simple awareness would be good too right? (Just spreading the word to donate to this website.)
13 Thu, 31 Jan 2008 09:03:36
Re: Milk Thistle (4 replies, posted in Complementary & Alternative Treatments - CAM)
Thanks!
14 Tue, 29 Jan 2008 08:02:17
Topic: Mayo Clinic; Jacksonville vs. Rochester (3 replies, posted in Hospitals)
Has anyone, while researching liver transplant options, found major differences between these two Mayo Clinic locations?
The statistics online show that both are fairly comparable, with liver transplant success statistics.
Does anyone know if there are better doctors at either location that deal specifically with cholangiocarcinoma and liver transplant?
Thank you so much for information, in advance.
15 Mon, 28 Jan 2008 17:30:45
Topic: Milk Thistle (4 replies, posted in Complementary & Alternative Treatments - CAM)
Has anyone tried this and found any successful results?
16 Mon, 28 Jan 2008 17:28:11
Topic: Raising Money for Research? (3 replies, posted in Suggestions)
Are there ever any major fundraisers to dedicate funds to cholangiocarcinoma research? I'd love to know how others raise awareness, or raise money for research. I just haven't found much on the internet and am new to this forum.
Thanks.
17 Mon, 28 Jan 2008 10:39:40
Re: Surgery and Transplant (6 replies, posted in Surgery, Resection & Transplant Treatment Options)
Thanks so much for your input.
It's such a hard decision for my mother.
18 Sat, 26 Jan 2008 00:38:49
Re: Surgery and Transplant (6 replies, posted in Surgery, Resection & Transplant Treatment Options)
Also I should include that my mother is only 54 years of age, has never even needed hospitalization besides childbirth and carpel tunnel syndrome, and is in excellent health. There is no family history of cancer. This is a shock for all of us.
19 Sat, 26 Jan 2008 00:37:37
Topic: Surgery and Transplant (6 replies, posted in Surgery, Resection & Transplant Treatment Options)
My mother has just been diagnosed on Christmas of 2007. She is extremely healthy and we have, as a blessing, discovered this cancer as a result of a routine cholesterol test.
Her tumor is a large one however.
We are told that surgery is not an option (size is large, plus the tumor is compressing or occluding the vessels, not allowing for the blood flow needed). We are also told that a liver transplant would be very dangerous, as the immunosuppressant drugs would inhibit her body's immunity from fighting the cancer after the transplant.
Can anyone please help us with any information? I have seen on Johns Hopkins website where there are successful transplants. How does this happen if it is seen as a failure to other doctors? How could these transplants ever be successful if you have to receive immunosupressant drugs??
Thank you so much for your help in advance.
