Mary Anne - I'm glad to hear that Joe is still feeling strong. Chemo is a good option... if it doesn't help to shrink the tumor, hopefully, it would at least stop the growth. Have you guys thought about getting a 3rd opinion? Here's a couple of sites to look at:
Sloan-Kettering - http://www.mskcc.org/
MD Anderson - http://www.mdanderson.org/
I've done a lot of research and there doesn't seem to be a clear consensus on how to treat this cancer. It all depends on where you are in the country and what doctor you go to. This makes it even harder because you have to find the right combination of drugs but what works for one person doesn't necessarily work for the next. I think it's a good idea to have as many options available to you as possible.
Thank you for praying for my dad. Unforunately, he lost his battle yesterday to this disease. He was having a really tough time on Sat. night at St. Mary's. On Sunday morning, we asked to be discharged so we could go home. It was noon by the time we got to leave. We live in the Twin Cities so it's about a 1 1/2 hr. drive.
My uncle rode in the medical transport with my dad and my sister and I followed in our own cars. My uncle said that my dad passed away about half way through the trip. He didn't struggle and it seemed peaceful. I think he was waiting just to go home.
It's really hard to deal with but I know he's no longer in pain and he's no longer suffering. I got to see my father when we got home and he had a smile on his face. It's strange, but this actually brings me peace because perhaps he is/was happy. He was a great man and I'll miss him dearly.
Thanks again for your prayers. Keep in touch and I'll read Joe's blog from time to time. If you ever need to contact me, feel free to email me at email@example.com. Take care. - Angel