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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 14
Best wishes to You and your mother in law . You have to be strong and ready for long and determined fight . And you are not allowed to breakdown - never ! Even when things go wrong - it will go away .
Anna - daughter in law of a great father in law .
Even if the tumor is unresectable - there is ALWAYS hope . My father in low after two unsuccessful operations is on the chemoterapy ( here is his story http://www.cholangiocarcinoma.org/punbb … php?id=558 ) - and there is constant improvment :) So try to find good surgeon , but if you won't find - immediately look for an oncologist .
It's rather irritating than painful. It looks like dilated capillaries on his face ( like blushing ) an really dry skin on hands and legs - skin is peeling off - but it's rather cosmetic than medical problem . He also has a problem with greater sweating . Everything is bearable , and to be perfectly candid - the longer the therapy last - the better .
You have to be tough - results will come sooner or later :):)
We've just receive results of CT after 3 months of taking sorafenib - they are really marvelous:
" In comparison to the CT scan on the day of 12.05.2007 size and number of lesions in liver and size and number of increased lymph nodes ( above head of pacreas and in the area of diaphragm ) without changes . It is necessary to pay attention on weaker saturation after dosing contrast medium - regression? . Despite image of CT scan of abdominal cavity without changes . "
My father is taking two pills of sorafenib twice a day . Despite the itching and skin irritation there is no side effects .
Father is after two operetions and two cykles of standard chemo - cisplatinum with some admixtures . First operation in 2005 he had a resection of a tumor situated just in the center of a liver , and cisplatin sessions after .
10.2006 after the CEA ( up to standard ) and Ca19-9 ( 79 ) checkup , he took referral for tomography and MR . Despite the suspition of bile ducts hamartoma , and fatty degeneration there were three areas of abnormal contrast intensification . First one (diameter 32mm ) was near liver vein , second one ( ~10mm) was in VII segment and third one (30mm) was situated marginal in II segment .
After the second operation the histopatology has shown that rate of malignacy of the tumor decreased from the G3 class to G2.
Three months after operation reccurence occured . Dad is under prof. Szczylik's care . After the first session of Sorafenib there was a shrinkage . After two following months we are really really happy becouse of the slow death of tumor .
My father is unusually , extreamly mantally and phisically strong man . And J hope we are good suppert for him .
My father-in-law has had a CT last sunday ( after 3 months of taking sorafenib ) . When we will have results I'll try to tell you everything what I know . After the first month tumor shrank ( 3mm one and 2mm second )
Thank you for the contact to Sara .
The professor who is my fother's therapy leader has been to the ASCO meeting in Chicago - so we've got information at first hand . I'll try to write something more about the therapy and precise results after consultation with doctor .
I've found an article about dichloroacetate DCA which appears to suppress the growth of cancer cells without affecting normal cells . This drug has been used in clinical trials stage 1 and 2 for matabolic diseases - http://www.depmed.ualberta.ca/dca/ .
I hink it's worth of our attention .
My father-in-low was operated two times in Warsaw , Poland in the Public Central Teaching Hospital of Medical University of Warsaw . First time there was removed a fragment of a liver about 8x6cm . The second surgery was mixed - they cuted out one of the tumor , second and third were thermoablated ( one was just near the portal vain ) . The hospital and docs are great . My fathers doctor is m.d. Fraczek from the liver surgery and transplant medicine department .
After the second operation the histopatology has shown that rate of malignacy of the tumor decreased from the G3 class to G2 - and it gives hope that chemo will be more effective !!!! :)
Jerry You're great !!!
Your Studebaker is beautyful !!! If I lived in the U.S I would ask you for an autograph ...:) All my family , here in Poland , was struck down becouse of its class and beauty - it's a pitty you could't drive me in my wedding day !!!!!!
I'can imagine that beneath your ironic style there is a lot of unpleasant experiences , but I personally admire such a people , and I want to wish you a lot of strenght , and next car in many parts around the house !!!!!
Special greetings from my fother-in-low ( cc since May 2005 ) - he has got similar way with live
Hello everyone !!!!
I've found an article about combination of this two drugs . Maybe it's known by you :
http://jrnlappliedresearch.com/articles … ayashi.pdf
but if not , I hope it will help some way .
Thank you for your answer !
1.After the consultation between surgeons and oncologist there is a great chance for termoablation of all locations . The most difficult part will be the one near the portal vein becouse of the possibility of scald . There are no mets till now !!!
2.I hope you wont thought that the simonton method is a kind of witch-doctor work which I wanted to advertise !!!
Dr. Simonton is one of the most known psychoonkologist - he is internationally acclaimed oncologist, author, and speaker who is best known for his pioneering insights and research in the field of psychosocial oncology. I 've read a lot about his programm - and I think it might be realy helpfull for people with cancer disease - it evolved from the concept that beliefs, feelings, attitudes and lifestyle are important factors affecting health . I really belive that people have a great power for selfhealing , but we fail to use it. I 've read a lot articles and books about simonton programm - and I think it may be helpfull - this is the reason of placing the link here .
3.Unfortunately there is no cyberknife in Poland . I've found gamma knife - but it's used only in a case of brain tumors.
4. Thank you for "the oncologist online" adress - I 'm reading now.
Hi everyone !
My name is Anna . At the beginning I want to explain my poor vocabulary and grammar - I'm from Poland , and english isn't my first language .
I'm here becouse my father in low has got CC ( he doesn't speak english ) , and there is no such a wonderfull place in the web in my country !!!
Year ago he had a resection of a tumor situated just in the center of a liver , and cisplatin sessions after .
Two weeks ago , after the CEA ( up to standard ) and Ca19-9 ( 79 ) checkup , he took referral for tomography and MR . Despite the suspition of bile ducts hamartoma , and fatty degeneration there are three areas of abnormal contrast intensification . First one (diameter 32mm ) is near liver vein , second one ( ~10mm) is in VII segment and third one (30mm) is situated marginal in II segment .
We still have got strong hope - our father is a powerfull , active guy but I trying to find informations where I only can .
You are wonderfull - I pray for everyone of you !!!! :):)
Posts found: 14
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