Hello everyone, this is just to update my previous post.  My father has now been diagnosed with a recurrence in the liver.  It appears that this was at the root of his post-whipple troubles discussed in my earlier post.  We are going to M.D. Anderson in Houston within the next couple of weeks, but the doctors here are painting a very grim picture.  I'm so glad that I found this message board, and may God bless each familiy represented here.

Thanks so much for your replies.  The link to the Johns Hopkins Pancreatic Cancer site has a wealth of information for post-Whipple patients.  Thanks again, and God bless. 

Ann

Hi everyone, my father (age 76) had a successful Whipple operation in November.  It was quite extensive, and he had about 1/2 of his pancreas removed.  His CT scans since then have showed no recurrence of cancer, and he is not taking chemo. 

However, he has abdominal pain, no appetite at all, and is losing weight.  He gets a stomach ache every time he eats, and can't eat at all in the evenings.  He also runs fever periodically for apparently no reason.  He is very weak and is just generally declining - quickly.

The doctors say his stomach seems to be retaining too much fluid, but that's about the extent of their explanation and they are offering little help in the way of medication and/or diet.  We are not satisfied with this, and we are willing to go anywhere in the USA to find a doctor or a clinic that can help him.

Can anyone recommend a doctor or clinic with experience in this disease that will  review his case?  Does anyone have any recommendations regarding diet, etc?  Any information or advice you can offer will be greatly appreciated.

Thanks,

Ann Marie

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(1 replies, posted in General Discussion)

That's wonderful, Kate!  Yes, indeed, long may it continue - and may we all see each day as a gift.  God bless.

Ann Marie

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(3 replies, posted in Introductions!)

Kate and Kathy, thank you both for the warm and caring welcome.  It does help to connect with others who understand, doesn't it?  God bless you both.

Ann Marie

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(8 replies, posted in General Discussion)

Hi Stacie, thanks so much for your reply.  I am very nervous about having the surgery here in Jackson, Miss.  I know how critical it is that they remove it all, and I don't know how many (if any) of these they have done at the hospital we are using.  Unfortunately, I don't think I am going to have much say in the decision - my parents are just trusting the local doctors they have spoken with.  I wish I could load them up in the van and drive straight to M.D. Anderson, but I know that is not realistic.  I am the only one in my family that has researched this disease, and they are not aware of what we are up against yet. 

Thanks again for your support, and may God bless us all.

Ann

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(3 replies, posted in Introductions!)

Hello to everyone,

I just found this site tonight, and I can't stop reading all of the information, blogs, and heart-rending posts.  You see, my father, age 75, was just diagnosed with this horrendous disease.  I had never even heard of this type of cancer before last week, and I had no idea what we were up against when we were given the diagnosis.  Now, I do.  Although I've been crying my eyes out all evening, at least now I have a better understanding of the situation, thanks mostly to this site. 

God bless you all.

Ann Marie

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(8 replies, posted in General Discussion)

Hello Friends,

I am so happy to have found this site.  My father, whom I love dearly, has just been diagnosed with cc.  I am unfamiliar with the terms at this stage, but they were unable to open the obstruction with the less-invasive procedure (they tried twice).  His bilirubin is coming down, and they will be able to do surgery next week.  They say that it is in a good strategic location for them to remove it, and they haven't seen any more tumors so far in the ct scans and so forth.

I would like to know what is considered the leading hospital and/or research organization for this disease in the US?  I want to make sure that he gets the very best treatment, no matter what it takes.  Also, any other general advice you have for me is greatly appreciated.  I am very thankful to be here.

Ann Marie