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Margaret,    I too agree about the time frame.  I am feeling such guilt because I asked my oncologist who I  really respect and even find him to be a funny guy.  I put him on the spot and I wanted to hear the truth so I knew what I was up against.  I feel like I am insulting him .....that is the last thing I would want to do.   He tells me he never knows what to expect with me because my cc has never acted 'normally' which is a good thing.  When I asked how long he said 12 to 18 months and that was about 6 months ago and if anything I feel better now than I did then.  That must be a good sign   I am happy to hear that Tom is still kicking' cancer @$$!  You two must be quite a team!   Thank you for reminding me to write to my son....I begin then I cry and can't see anymore what I am writing.  I will continue to write to all my children....I have 2 biological, adopted son and guardianship of my niece but all have grown and moved on except my baby boy....he will be 14 in December.    The hardest part off this disease is seeing my children's fear....because of the ones I love I will fight like a 'cornered rat'!   thanks for the advice <3

PCL1029....heck of a name   I hope you are feeling well between treatment plans.   I have no problem sharing what info I can REMEMBER..hahaha  Currently I am receiving injection OXALPLATIN0.5mg and injection of GEMCITABINE  HCL 200 and ? injection FOSAPREPITANT? in my chemo cocktail every other week.   Originally I was on xeloda for 12 months and radiation for 6 weeks.  Hope this helps...my cc was in my bile duct and discovered basically by accident.  I was a very lucky woman to have the surgeon Dr. Roger Jenkins as he is the most brilliant and kindest doctor I have ever met.  OK I am babbling, sorry.  Thanks for sharing and I pray for courage and healing for all of us patient or caretakers! <3

Thanks Kate!   I have been around for a while but have not been on site too much   Like many it is so sad and sometimes I feel guilty to be doing so well when others are not.  I was dx'd in 3/2007 and as of today am doing just wonderful..Thank God!  I will try to  check in more often and let others know we can survive this.  I certainly am not anyone special but  have been blessed  with clear scans for almost 4 years now.  I agree it would be hysterical if the tattoos showed up....I still cannot believe I actually got one!  It hurt like crazy but nothing like what I had already experienced with cc.  I am trying to  get up the courage to get another bird added to my' branch of life'.  hugs, deb

Definitely NOT stupid.  In the beginning I itched all over for weeks!  Doctor thought it was  contact dermatitis...and I began to do the change soap...detergent, diet etc...until I turned completely yellow did they figure I might be sick.  I was also barely able to stay awake  for long because I was so tired.  Thankfully 4 years later I am doing very well...no serious issues, clear scans etc   Wishing you the best! deb

I know Marion...such a dork huh?   I almost ran back in but decided I will see him again next month and who knows maybe I can have another?  This is called a midlife crisis.  You know after surviving this cancer....I feel I can do so many things I would never of considered.    I had no idea he was an artist....however that man is next to God for me....nothing should surprise me right? <3

OH Marion....I will make a point of saying a big hello from you to the entire Lahey team!  Julie included....she is wonderful!  Have you met Maria at the desk?  She is a crackerjack   Dr Jenkins seems to have more and more young residents? training under him.  What a wonderful gift to share...he is the best isn't he?  I wonder what he will think of the chickadee tattoo I have sitting on the scar as if it were a branch...my first real tattoo besides the radiation dots ouch   If I get brave enough I want to have other birds perched on my 'branch' of 'life'.   Gotta get my son on the bus....hugs, deb

We are so sad,  we were so blessed,  they are so missed...  forever in our hearts. <3

Hi Kris,   I don't check in too often but as soon as I do I check to see how you have been .  I think of often and send .prayers your way.  As usual you continue to amaze me with your beautiful spirit!  You go have a fantastic time in Paris come home and kick butt with the surgery and then have another beer with lime for the rest of us followed by an anti nausea chaser!  You continue to inspire the rest of us kiddo...thanks...sending love from the states!

My friend also had extremely painful mouth sores...she was given a script for  Magic Mouth Wash, mentioned earlier ,to rinse her mouth with pretty much as need and I think the doctor also lowered her chemo dose...wishing you the best, deb