I have not posted on the forum in a very long time and have such mixed feelings about posting now my most recent news. I very much don't want this to be discouraging for those who have surgery and are so hopeful for a cure. But I do want to make a definite point of the importance of follow up and of taking small changes as significant and therefore acting upon them.
I had a successful resection in May 2008 of an approximately 3 cm intrahepatic tumor and have been followed with repeat CT scans and lab work. My scan this past May was negative and liver enzymes, though a little elevated, were well within the normal range. They were rechecked in September and were further elevated. The decision was made to just recheck them in a month and do a CT if they remained elevated. I felt perfect and it was almost 3 1/2 years since my surgery. I really believed that I was cured so I was definitely not very concerned. They were checked again and were still more elevated. I then had a CT scan that showed a recurrence at the margin of the previous tumor, a little less than 1 cm in size. The scan showed no other areas of concern and no lymph node involvement. When my doctor walked in the room, he said I have bad news and I have good news, a recurrence but still with much hope.
This was on 11/3 and I'm scheduled for surgery this Wednesday, 11/30. My surgeon believes that it is a potentially curable recurrence and I hold on to that hope, not knowing what they'll actually find during the surgery. I didn't have chemo following my surgery in 2008, after geting a number of opinions. I really believe, in the setting of a recurrence, that it is indicated this time. So, I will be seeking a number of opinions regarding this.
I do feel so grateful that I was able to have a potentially curable resection 3 1/2 years ago and that this recurrence was found so early. It truly amazes me, and even more so when I know how rare it is to have such good fortune with this disease. On the other hand, it also is so devastating. I believed, truly believed that I was cured. I feel so fortunate on the one hand and so sad on the other.