1

(8 replies, posted in Members' Cafe)

Lainy, You pretty much have it covered.    Especially bubbler and for me "down by Prange's" or "metcha down by the lake" and we spent a lot of time in the summers "up nort".   Interesting that many people we met through out the country thought we had to be Canadian or Norwegian due to what they called out "accent".  What accent?  smile  Also it is kooler not popsicle.   Oh boy!  I could go on & on, but enough already.  smile

2

(8 replies, posted in Members' Cafe)

Good one Kris and as I am from Wisconsin I totally got it!  smile

3

(8 replies, posted in Members' Cafe)

Gavin,

That's what it's all about, isn't it.  You deserve a good rant now & then too.  After all you do for all on these boards, you need to do for yourself too.  smile   Hope you are feeling better having gotten it all out there and yes we understand and as you know, we all truly care about each other and what we are feeling and going through.  AS you often say, no apologies necessary.  smile

Love & Hugs,
Darla

Happy 1 year anniversary Julie.  Enjoy the celebration dinner with your family.    Will be waiting for the good news on Friday.   smile

Hugs,
Darla

5

(5 replies, posted in Members' Cafe)

smile

6

(20 replies, posted in Introductions!)

Hi Kevin,

So glad you have joined us but sorry for the situation with your mum that brought you here.    Also happy to hear that for now she is stable.    You have a very good attitude and your goal of being cautiously optimistic yet wanting to preserve your mom's dignity and quality of life are commendable.    Please do keep us updated as to how mum is doing.  We are a very caring and supportive community as you already know from reading the posts.  I am sure that your mum's experiences will be helpful to others too.  Wishing all the best for her.

Darla

7

(7 replies, posted in Members' Cafe)

Shelley,

Good luck with the surgery.  Hope all goes well.   I know how you feel.  It is all so much harder to deal with alone.  We would rather have our dear husbands by our side to support us like we did for them, but that wasn't meant to be.  He will be there by your side in spirit.  Know that I will be thinking of you and that you have the support of everyone here on the CC site.    I will be thinking of you and Al today.  Enjoy that cupcake when you get home!  smile

Hugs,
Darla

Dear Jason,

Thank you for sharing your story of Eric's journey with CC.   I am so sorry for what you and your family have been through.      Try to take comfort in remembering  the good times before CC.   He will always be with you in those memories.  Keep him forever in your heart. 

You and your family have my deepest sympathy.

Hugs,
Darla

Dear Teresa,

I am so sorry for your loss, but as much as it hurts, for mom her suffering is over.  You and your family have my deepest sympathy.   Your mom will always be with you in your heart and fond memories.  Take care.

Love & Hugs,
Darla

Glad to hear this.   Relax and take your time healing.  When you're feeling up to it update us on your progress.  Thinking of you.

Love & Hugs,
Darla

Teresa,

My thoughts and prayers are with you and your mom.   I'm glad you have hospice helping you to keep her as pain free and comfortable as possible.  Know that we are all here for you to help and support you in any way that we can. 

Hugs,
Darla

Porter, 

This does sound positive, but I understand your anxiety.  Good luck with the surgery.  My thoughts and prayers will be with you.  Hope all goes well.

Love & Hugs,
Darla

13

(2 replies, posted in General Discussion)

I'm I Wisconsin,  not Scotland, but have read almost all of the Hamish Macbeth books and also her Agatha Raisin series.   Really enjoyed them.   They are very descriptive.  Makes me want to see for myself.  smile  I guess for now I'll just live vicariously through my reading.  smile

Darla

14

(11 replies, posted in Good News / What's Working)

Lisa,

Your anxiety is understandable, but I sure am glad your worries were unfounded  and that everything is "normal".

Hugs,
Darla

Ladies, 

A big thank you to you for being there and sharing your story.  Your excitement and enthusiasm  for the experience shines through in  your posts.    Thank you again for your efforts and dedication to this cause.

Hugs,
Darla

Lovely!  Thanks for sharing.  smile

Thanks Marion for the update on the conference.  I would like to add my thank you's  to Lainy's  to all those who participated. It sounds like the conference was a great success and  a very positive, uplifting and supportive effort for all those involved and also for all of us who have been touched by this disease.   It is good to know that out voices are being heard and that things have progressed so much in the effort to promote, treat &  ultimately to find a cure for CC.

Hugs To All,
Darla

18

(19 replies, posted in Introductions!)

Mary,

I think we all have had similar experiences and feelings both as patients, care givers and those left behind.  Those you thought would always be there for you are no longer there and others will surprise you.  I agree with Lainy, it is on them, not you and you don't need the stress of those who do not want to be there in your life right now.    Just come here and we are happy to listen.  smile

Hugs,
Darla

Taylor's positive attitude will go a long way.   He is young and that is also in his favor.  It sounds like you are doing all you can for him and I am glad he is getting some advice and treatment.  I'm not sure about the clinical trials, but it would be something to look into.   Update us and let us know how he is doing.  My thoughts and prayers are with you all and especially Taylor.

Love & Hugs,
Darla

Alison,

Sounds like things are heading in the right direction and you will be getting more information and input into his situation.  Let us know how things are going as you hear more.   

Darla

21

(21 replies, posted in Introductions!)

Anna-Marie,      Such good news.  So happy for you. Enjoy!

If it includes the Dobash torte, I'm in!

Alison,

Glad you have found us, but sorry you have a need to.    Yes, we are global and several people on here are in Australia.  You will get all the help and support we can give.  Please update us as you know more.   

Darla

24

(12 replies, posted in Introductions!)

HI Amy,
Glad to see you have joined us.   I too was sorry to hear of Matt's latest developments, but know that here you will both get all the help and support we can give.   Thinking of you both and hoping for the best for Matt and you, too. 
Darla

25

(142 replies, posted in Introductions!)

Matt, 

I too am sorry you are dealing with this.  Don't have much to add to all the good advice you have already gotten, but want you to know that I too am thinking of you and hoping for the best for you.  Please let us know how things are going when you can.

Darla