1

(47 replies, posted in Introductions!)

I too am sorry to hear all of this but your positive attitude will help you get through this.   Enjoy every day.  My thoughts and prayers are with you both.

Hugs,
Darla

I can only confirm what the others have said.  My husband's liver enzymes and functions appeared normal until very close to the end, which is why this cancer is so hard to diagnosis.

3

(402 replies, posted in Introductions!)

Matt,

Thanks for posting this great update. Glad you are still doing well and it is so encouraging for others dealing with this disease.   Keep the good news coming.  smile

Hugs,
Darla

4

(5 replies, posted in General Discussion)

Dear Jonathan,

You have my deepest sympathy on the loss of your dear wife.  Glad to know that she was surrounded by those who loved her.  My thoughts are with you at this sad & trying time.

Hugs,
Darla

5

(19 replies, posted in Introductions!)

I am glad to hear that your husbands attitude has improved, especially towards you.  Although I know that my husband had many of those same feelings, he never took it out on me and for that I am grateful.  My husband did experience much of what you described.  He also lost a lot of weigh very quickly and became weak and tired and although he pretty much couldn't do much he also couldn't sleep.  I'm sure some of that was from all the anxiety of what he was going through and also the pain and other physical symptoms.  He did seem fidgety, but I think that was due to discomfort.  He also couldn't focus or hold a conversation the last few weeks.  Like your husband, he could no longer spend even a short time in a grocery store and would just go out and sit in the car and wait there for me.  The only thing I do not recall him doing is what you explained about dumping and replacing things and counting and recounting things.   He seemed more concerned about me than himself even tho' I tried to reassure him that I would be OK. 

Definitely talk all of this over with his nurse.  Hospice may have some suggestions for you.   Try to make the best of the time you still have.  None of this is easy, but you can do this.   Believe me, you are stronger than you know and will get through this.  I did and so can you. 

Take care and let us know how things are going when you can.  Thinking of you.

Hugs,
Darla

6

(98 replies, posted in Introductions!)

Dear Rod,

I too am sorry to hear you lost your wife to this disease, but am glad you have joined us.    Only those of us who have been touched by this cancer truly know how it affects you.   It is definitely a life changing experience.  My husband was 62 and also died in a short time, so I truly know how you feel and what you are going through.  Thank you for joining us and your willingness to contribute and help to support others.

Hugs,
Darla

Bridgette,

Glad to hear that you were not affected by this disaster.  I have both friends and family in that area and some have been OK and others not so much.  It is hard to even comprehend what is all going on there.  So sad.  sad 

Darla

Dear Susie,

Thanks for the update.  Glad you are doing well. 

Yes, it is important to post the good news.  It gives hope to others fighting this disease.   Keep enjoying your life.  This is awesome news.  Take care.

Love & Hugs,
Darla

Dear Genevieve,

That is awesome.  Thanks for sharing.  This is the sort of thing we like to hear more of.  It gives hope to others who are struggling with this disease.  I too hope that  this continues.  My best to both of you.  Take care.

Love & Hugs,
Darla

10

(89 replies, posted in Introductions!)

Dear Gail,

It sounds like you are slowly beginning to get things in order.  I'm glad you had a lot of help and support as it is so needed in the beginning as we seem to be in a fog of unreality.  The camp for the kids sounds like a good arrangement and your sons plans to be a counselor in the future are admirable.  You are definitely doing a good job under these difficult circumstances.

Yes, only those of us who have been in your shoes and dealt with this rare cancer can truly understand.   The effects it has on us never really go away, but it does get better with time.

Just keep on doing the best that you can and take things one day at a time.

Take care and know that we are all here to help and support you in any way that we can.  We understand what you are going through and truly do care.

Lots of Love & Hugs,
Darla

11

(47 replies, posted in Introductions!)

Happy Anniversary!  I'm hoping you will both have a good day tomorrow too.

Hugs,
Darla

Out of the mouths of babes.     That tugs at my heart.  Julie, I am hoping that it will be a long time too.   Children do seem to be able to sense these things, even when they have not been told. 

Short story.  Before Jim was even diagnosed we were at a graduation party for our niece.   They have a neighbor who has a young boy who is severely  both mentally and physically challenged..  That darling little boy pulled himself up next to Jim, leaned into him and kept patting his leg as if to comfort him.  Although at the time we had no idea that he was even sick.   His symptoms started a few weeks later.  He died 2 months after that.     I still can vividly see that little guy with Jim.  It was like he was drawn to him and was meant to be there for him. 

Enjoy those little ones and live your life one day at a time.   Take care dear lady and  have fun furniture shopping.  smile

Hugs,
Darla

I can only agree with all of the above as it is a testament to how much you are loved and admired.  Stay strong dear lady.

Hugs & Love,
Darla

Dear Jonas,

I am so sorry for your loss.    It sounds as if Myrna was a wonderful person and meant a whole lot to you.  I am glad she was surrounded by the love and support of family and friends.  My thoughts are with you and all who knew and loved her at this sad and trying time.

Hugs,
Darla

15

(36 replies, posted in Introductions!)

Keep that good news coming Victoria.    Glad to hear that Patrick is doing so well.   Sounds like you two have made the right decision.  Wishing you the best in the future. 

Hugs,
Darla

Hi Jonas,

Welcome to this awesome group that no one wants to join but are so very glad the can.   I'm sorry you needed to find us, but you will be glad you did as the support and information you will get is amazing.  Unless you have been confronted with this awful disease, others just can not truly relate or understand.   I  am so sorry your sister has been cursed with this disease and that you and the rest of the family also have to deal with the reality of it all. 

My husband died almost 9 years ago after only 2 months  of illness and only 10 days after being definitively diagnosed, so I really can't be of much help as far as suggestions or treatments as we didn't really have enough time to even deal with any of that.  I do know that things have changed a lot since then and there is much more knowledge and more options  then there were back then.   

It sounds like you have already gotten more than one opinion, but if not, 2nd or 3rd opinions can be helpful.  Try to be cautiously optimistic as one never knows how things will go.  No matter what direction her treatment goes in, the most important thing to me has always been that the patient be kept as comfortable and pain free as possible.

I'm hoping others will chime in soon with some suggestions and advice as to treatments etc.

Try to take some time out for yourself and your family when you can.  My thoughts are with you all.  Know that you have a lot of people here willing to help and support you in any way that we can.

Hugs,
Darla

17

(14 replies, posted in In Remembrance)

Dear Patricia,

You have my deepest sympathy on the loss of your dear husband Tom.   Keep him with you forever in your heart and memories. 

Hugs,
Darla

18

(89 replies, posted in Introductions!)

Dear Gail,

Know that I am thinking of you and your sweet children this morning.  I am so sorry for your loss.  None of this is easy, but you are a strong lady.   In time the pain and sadness will ease and you will be able to remember the good times before this terrible disease entered your lives.   May those memories bring you comfort and peace.

Love & Hugs,
Darla

19

(89 replies, posted in Introductions!)

Dear Gail,

I am glad your friends and family are there to help  and support you through this trying time.   My heart goes out to you and your dear children.  Being at his side and keeping him as comfortable as possible is the most important thing you can do for him now.   My thoughts and prayers are with you and your family.

Hugs,
Darla

Theo,

What great news.  So happy to hear this.  We need more of this positive news here.  Take care and keep in touch to let us know how she is doing.

Hugs,
Darla

21

(89 replies, posted in Introductions!)

Dear Gail.

Thanks for sharing.  The picture of the kids is so sweet and I'm glad it was a good day for all. Unfortunately, I agree with you that it is time to tell them what is truly going on.   It does break my heart too for what you are and will be going through.   You need to do what is best for you and your family and if others do not understand, that is on them.   I'm glad that you have  hospice to help and support your decisions.   Thinking of you and the family as you deal with all of this.

Love & Hugs,
Darla

22

(14 replies, posted in In Remembrance)

Dear Ali,

I am so sorry for your loss.  You have my deepest sympathy.   Thank you for sharing her picture.  She was a beautiful woman.   You were a loving and supportive son and did all you could for her.  Keep her in your heart and take some comfort in remembering all the good times before CC.  There are no words to take away the pain and sorrow you are feeling, but know that we are here to help and support you in any way that we can.

Hugs,
Darla

Dear Carole, 

Vent all you want or need to.   It does help to get it all out there.  I'm sorry things aren't going well, but the fact that his blood counts are normal is a positive thing.   It's hard to know how things will go as this disease seems to affect every differently and is hard to predict.  You are doing the best that you can in what is probably the worst situation you have or ever will have to face.   Everyone deals with these things in there own way, so all you can do is be there to help and support in any way that you can,  as we are all here to help and support you in any way that we are able to.

Have you considered getting a second opinion from a different oncologist?  Just a thought.

Keep making the most of everyday, making more of those memories.  Stay strong Carole you can do this and we are all here to help.

Hugs,
Darla

24

(89 replies, posted in Introductions!)

Dear Gail,

I'm so sorry things have gotten to this point.  I agree with Catherine.  There is no right or wrong to this.  Just take a deep breath and do what you feel is best for all of you.  Take care and know that you and your family are in my thoughts as you travel this road that none of us wanted or expected to ever be on.  You can do this.  We are all behind you and ready to support you in any way that we can.

Hugs,
Darla

Another one of the good ones lost to this terrible disease.  She lived her life to the fullest and is now free.  RIP Kris.