1

(6 replies, posted in In Remembrance)

Dear Markssis,

I am so sorry to hear that Mark has passed away.   You and your family have my deepest sympathy.   May knowing that his suffering is over give you some peace.  He will always be with you in your heart and memories.  My thoughts are with all of you at this sad and trying time.

Love & Hugs,
Darla

Congratulation Juile!   Wishing you the best in the future.  Enjoy!

Hugs,
Darla

Hi Darlene,

Welcome to the board.  Glad you have found us but sorry you had to.    Can't add much to all the good advice you have already gotten, but I do agree you may want to get more opinions.    Hoping things are going OK and that the scan brings you some positive news.  Update us and let us know how things are progressing.

Darla

4

(72 replies, posted in Introductions!)

Oh Dear Olga,

I can only imagine how hard this new news is for you and Norbert.    It is just not fair to have two people so close to you dealing with this terrible disease.    I too hope they will come aboard as although we can't make it better, we can be here to help and support.   Keeping posting and venting  all you want & need to.  We are all here for you.  Keep us updated as you can. Thinking of all of you.

Love & Hugs,
Darla

Gavin,  Thanks for sharing.  Love it!  smile

6

(11 replies, posted in Members' Cafe)

Great post Duke.  Love your new attitude.    As for the canyon,  we were there and it is awesome to see, but Jim also was afraid of heights and I had all I could do the get him to even get out of the car for a look.  smile  Needless to say we did not do the trek to the bottom, but I have heard it is worth the trip.   I say go for it.  Keep doing what your doing,  living and loving your life.  Kudos to Aimee she sounds like a smart and caring lady.  smile

Love & Hugs,
Darla

Dear Kevin,

I am so sorry to read what your father, you and your family have gone through.  You have my deepest sympathy and understanding.  My husband died of this disease 6 years ago, much in the same way as your father., so I truly understand what you are feeling.    I am glad you reached out to Marion as you couldn't have found a better person for help and support.  She is an amazing lady.

My heart goes out to you and your family as you  go  through this sad and trying time.

Hugs,
Darla

Melinda,  I am so happy for you and John.  What wonderful news.  Thanks for sharing.

Thanks Gavin.  smile

Julie, 

I agree with Marion.  With all that is going on I wouldn't hesitate to go to the ER if you are feeling the need to.   Just wondering if the infection has anything to do with all of this.  Let us know how you are doing.

Hugs,
Darla

My husband had shingles a few years before the CC was diagnosed.  It was not  a real severe case.  Don't really  think there is a connection, but  anything is possible with CC.   I know at this point it doesn't really help to look back, but I too often think back to things that may have been possible signs that we over looked or rationalized.  This disease is so complex and so little is know about it that it is hard to put the pieces together.  Hopefully the day will come when that will change and we will conquer this beast.

12

(37 replies, posted in Members' Cafe)

Percy, 

Thinking of you.   Hoping you are comfortable  and  feeling all the love and support coming from this site and all the wonderful people here who care about you.

Hugs,
Darla

Thanks for posting this Gavin.  I think it is important for family and caregivers to know what hospice is all about.  We are now dealing with hospice for my 88 year old mom who has Parkinson's along with Lewy Bodies, dementia and all it entails.  She is in a nursing home and has gotten to the point of palliative care and hospice is really doing a good job.   Can't say enough about using hospice when the time comes.

Welcome Caroline.  Glad you have joined us, but sorry you had a need to.  Can't add much to what has already been said, but to tell you to hang in there.,  Things will hopefully settle down and a  treatment plan will be put into place for you dad.   Please let us know how things are progressing.  You have find the best place to be for support and information regarding this disease. 

Darla

15

(5 replies, posted in General Discussion)

Borelandn,

Welcome and although I am sorry you had to find us, am glad that you did.  My first thought is to find  an oncologist who is more familiar with CC and get a second and possibly even third opinion.   You need someone who can give you a more informed opinion and help to lead you in the right direction.  Sorry I can't be of more help.  There are several on this board from your part of the world and I am hoping some of them will be on soon to give you some suggests. 

Take care and keep us informed as to how things are progressing.  We will do our best to help and support in any way that we can.  Take care.

Darla

16

(8 replies, posted in Chemotherapy)

Moontje,

Hoping all went well yesterday.  Thinking of you and Tom.

Hugs,
Darla

17

(17 replies, posted in Good News / What's Working)

Randi,

Such great news.  So happy for you.  Enjoy!  smile

Hugs,
Darla

Dear Cazgirl,

Welcome to the group, but sorry you needed to find us.  You have my deepest sympathy on the loss of your husband to this disease.  My husband passed quickly much the same as you described, so I truly understand what you are feeling and going through.   I found this site a few days after he passed away and got so much help and support.  No one who has not dealt with this disease can possibly understand what it is like to deal with this disease. 

I totally understand your concerns about heredity as I too have two sons.  Unfortunately I don't have any answers for you.  There is research being done, but at this point I don't think there is any way to test for it.

Hoping others will be on soon to welcome you and have more information for you.   

Hugs,
Darla

19

(11 replies, posted in General Discussion)

Fingers crossed that this is the case and that the next scans will look much better.

Hugs,
Darla

20

(17 replies, posted in In Remembrance)

Nancy,

I totally understand.  Know that this is normal and venting is good.  smile   My folks started to decline shortly after my husband died and  are 87 (almost 88) and in nursing care, too.  You feel like you lose your husband and best friend who you could share everything with and always count on for love and support and now have to deal with this too, on your own.  I also lost a good friend a few weeks ago who was very supportive to me after Jim passed away.  All I can tell you is that it isn't easy, but it does get better.  You will now find out just how strong you are and that you truly can do this.  There will be a lot of highs & lows, just like it was when dealing with the  CC, but although it never goes away, your pain and sadness will ease.   I feel that if we can handle all of this, we can handle almost anything.  Come back and vent whenever you need to.  We all understand and are hear to listen and help when we can.  Thinking of you and hoping for better days ahead.

Love & Hugs,
Darla

21

(9 replies, posted in General Discussion)

Nancy,

Sorry to hear about Ron and what you two are going through.   Lot of positive thoughts and prayers heading your way.

Hugs,
Darla

Dear Carlos,

I am so sorry for your loss.  I know she will be greatly missed.   Take comfort in knowing that for her the pain and suffering is over.  Keep her with you forever in your heart and fond memories.  You and your family have my deepest sympathy.  My thoughts and prayers are with you all at this sad and trying time.

Love & Hugs,
Darla

23

(72 replies, posted in Introductions!)

Olga,

Just know that you are not alone.  We all  understand and many of us have been there.  You are already doing what I was going to suggest.  Try to take time to do something for you when you can.  Yoga is a good choice.  It won't change things, but will give you a well needed break and help to keep you sane in this often crazy world of CC.   And the most important thing, take it all as it comes, one day at a time.  smile

Hugs,
Darla

24

(10 replies, posted in Introductions!)

Sam,

Welcome and glad you have found this site.  It sounds like you are heading in the right direction with your wife's diagnosis and treatment.  You will find everyone here willing to help and support you in any way that we can.  Please let us know how things are going.

Darla

25

(9 replies, posted in Introductions!)

Thanks to all of you.  Duke for the posting and Marion and Rick for  making it a "Sticky".    smile