Joe,

So sorry to hear all of this.   It's good that side effects are minimal, but I'm hoping she is getting help controlling the pain.   I'm sure that losing the doctor she is familiar with and who is familiar with her case is hard to deal with.  As if dealing with this disease isn't enough.  Hopefully who ever replaces her current doctor will be someone familiar with her case and this disease and also someone she will be comfortable with.  I too will be hoping for better times ahead for your mom.
Take care.

Hugs,
Darla

2

(112 replies, posted in Introductions!)

Tiah,

So sorry the news wasn't better.   Please keep us updated as how things are progressing and what you find out.  Hoping for something positive.  Thinking of you and hoping for the best.

Hugs,
Darla

3

(112 replies, posted in Introductions!)

Tiah,

Hoping for some good news for your mum tomorrow.  Update us when you can.  Thinking of you.

Hugs,
Darla

4

(7 replies, posted in Members' Cafe)

Scott,  That does sound positive.  Glad to hear this.  Enjoy your break and keep "living your life".

Hugs,
Darla

Gail,  I have so much respect for you knowing what you are dealing with and how you are handling things.  I know what I all went through with my husband.   When I think back I wonder how I managed to do it all and  I didn't have  3 young children to deal with at the same time.   Take all the help that is offered and don't be afraid to ask for more when needed.  Take care of yourself too.  Sometimes we forget to do that in the midst of all the chaos.  Wishing you well and hoping that you will get some positive info from the doctor tomorrow.  I will be thinking of you.

Hugs,
Darla

Dear Gail,

Welcome to the group.  I am so glad you found us but also sorry that you had a need to.   It sounds like you are doing all the right things for now.  Yes, just take deep breaths and take it one day at a time.   Some times you may have to go to one minute at a time.    Please update us on how things are going as you can.  Know that we are all here to help and support you in any way that we can.

Hugs,
Darla

7

(7 replies, posted in In Remembrance)

Dear Jacqueline,

I am so sorry for your loss.  You have my deepest sympathy.  Thanks for sharing his obituary and other posting.  He sounds like an amazing man.   Yes, try to take what comfort you can in the fact that at least now he is no longer suffering.   My thoughts and prayers are with you at this sad & trying time.

Hugs,
Darla

8

(6 replies, posted in In Remembrance)

Dear Tim & Julie,

I too would like to extend my condolences to you on the loss of your son.  You have my deepest sympathy.  Thank you for sharing his obituary.    What a fine young man, lost way too soon.  My heart breaks for all of you.  Try to take some comfort in  remembering the good times and all you shared.  Take care and know that we are here to help and support you in any way that we can.

Hugs,
Darla

Dear Catherine.,

You have my deepest sympathy on the loss of your dear father.  He sounds like a wonderful man and was greatly respected and loved by many.    Thank you for sharing his obituary and that lovely picture. They look so happy.  What a good looking couple.    Yes, I think your mother was meant to beat the CC to be able to help him through this.  I am so glad she was by his side and he was in familiar surroundings when he passed.  She too sounds like a very loving caring person.  Take care  of yourself and your mom now  and take time to heal.   One day at a time. 

Love & Hugs,
Darla

10

(66 replies, posted in Introductions!)

Dear Googily,

I am so sorry to hear of Bill's current situation.   Hospice will be a great help to both of you and keeping him as pain free as possible is a priority.  Know that my thoughts and prayers are with you both and that we are here to help and support you in any way that we can. 

Hugs,
Darla

11

(4 replies, posted in Members' Cafe)

Julia,  What a surprise to see you back here.  As you can see, I'm still hanging out here as well as on Facebook.  So nice of you to pop on and say hi to everyone here. xoxo

In my husbands case there was no inflammation initially.  His cholesterol levels were not serious, just boarder line and the statin he was taking was a very low dose.  Not sure if the amount makes a difference or if just the fact that it was there could be a factor.  So many variables.

Tia,  I agree that the involvement of statins seems to be a common thread.   I have often wondered if this cancer was lurking in his bile ducts for years and  the statins triggered something that activated things and made it so aggressive.  Without the statins would it have just stayed dormant?  I will never know for sure, but my hope is that in the future questions like this and others will be answered and there will be a better understanding of this disease and earlier detection and treatment.

I am answering for my husband who died 8 1/2  years ago at age 62 from CC less than 2 months after first symptoms of any problem.

No other medical conditions  other than recently having started with a low dose statin for border line  cholesterol.

Average activity level  and pretty much ate what ever he wanted with no health or weight issues.
Had not smoked or drank alcohol for many years.

No inflammation or GI issues previous to this.  No family history of liver or gallbladder disease and his  liver enzymes levels were normal until well into the diagnosis.

Adding that he was on an air craft carrier in the waters off of  Vietnam and there is some thought that either liver flukes in the fish and water or possibly Agent Orange could be a contributing factor although I have no proof of this and  can not substantiate it.

Love it!  If you do give this a try Gavin will you be posting it live?  wink

16

(4 replies, posted in General Discussion)

Great post Gavin and I totally agree.  smile

17

(20 replies, posted in Introductions!)

Dear Christina,

I am so sorry to hear of your mum's passing.  You and your family have my deepest sympathy.  Try to take comfort in knowing that she is no longer suffering or in pain.  My thoughts are with you at this sad & trying time.    Take care.

Hugs,
Darla

Marion,

No worries, we've got your back and will keep things going until your return.  Take care.

Hugs,
Darla

Susan, I totally understand what you are going through.  Although this is a rare cancer, unfortunately here your situation is shared with many.  Actually I should say fortunately as you will not find a better place to be then among this phenomenal group of people.  I agree with the others.  Take a deep breath and just try to deal with this one day at a time.  Sometimes it may have to be one hour or even one minute at a time.    More opinions and working with doctors who are very familiar with CC is also good advice.  Please update us when you can and know that we are all here to help & support you both in any way that we can. 

Hugs,
Darla

Gavin, 

So sorry to hear of your aunt's passing.  Thinking of you, your mum & all of those who loved and cared for her. 

Love & Hugs,
Darla

Joe,

So sorry to hear of this set back in your mom's treatment but hoping that the new combo will be more successful.  I don't have any experience with these, but I'm sure others who have will be here soon with some helpful suggestions.  Thinking of you all and hoping for the best results for you mom's treatment.  Update us as you can.  We do care.

Hugs,
Darla

Dear Catherine,

Lots of thoughts, love & prayers being sent your way.  I am so sorry things have gotten to this point and hope that your dad will be kept comfortable and pain free as he transitions for this life to the next.  Sending strength to you and your mom as you go through those trying days.  We are all here for you to help and support you in any way that we can.

Hugs,
Darla

Works for me too. smile

What a beautiful and amazing lady.   You go Lisa!  smile

25

(13 replies, posted in Introductions!)

Dear Wyatt,

I am sorry to hear that your dad has passed away.  You & your family have my deepest sympathy.

Hugs & Love,
Darla