Christian,

I can only agree with the others.  Unfortunately this is common with this disease and the ups & downs are just the nature of CC.  You definitely did the right thing.  I know your mom understands and appreciates your concern, help and support.   Let us know how things are going.

Hugs,
Darla

Dear Christian,

Thank you so much for sharing the details of what is going on with your mom .  I am so sorry for what you have all had to deal with the past few years and now this.  I do totally understand as I lost my husband to this disease and have lost several other close friends and relatives since and although we do begin to handle things differently than others who have not been through any great loss in their lives, it still is not easy.   

Stick with us, we are all here for you and truly understand what you are dealing with and going through.  Let us know how mom is doing and how things are going.  We truly do care.

Love & Hugs,
Darla

Hi Christian,

Welcome.  Glad you found us, but sorry for your reasons for having to.  You are in the best place to get help and support when dealing with CC.  You will get all the help, support and knowledge we can give you.   I too will watch for your  post with more information on your mom and how she is doing. 

Hang in there.  You are not alone. 

Darla

4

(43 replies, posted in In Remembrance)

Hans,

Think of you and Kris often and even more so  as another year passes.   Kris was an inspiration to all who knew and loved her.  Thanks for checking in and updating us on your life.  Always good to hear from you and know that you are doing OK.

Hugs,
Darla

Dear Jason,

I am so sorry for your loss.  Take some comfort in knowing that she is now in a better place and no longer suffering or in pain.  Keep her with you forever in your heart and memories.    You and your family are in my thoughts and prayers at the sad and trying time.

Love & Hugs,
Darla

6

(8 replies, posted in General Discussion)

Dear Erin,

I am so sorry for what your mom, you and your family are having to deal with.  Know that we are all here for you to help and support in any way that we can.  Thinking of all of you and hoping that mom is comfortable and not in pain.  Please let us know how she is doing.

Hugs,
Darla

Randi,

Good to hear from you and glad to hear that all is well.   Hoping the rescan will be the same.  Pop in when you can.  Always good to hear from you.

Hugs,
Darla

8

(9 replies, posted in Members' Cafe)

As a matter of fact, he very well could have been the one saying that.  smile  In jest of course.  wink

9

(9 replies, posted in Members' Cafe)

Duke,

My husband would have been one of the ones laughing, knowing that I would take it all in good humor.  smile   We knew each other well, both the good, the bad and the ugly.  smile   

Darla

10

(9 replies, posted in Members' Cafe)

Duke,

Love it!  I don't know about anyone else, but it actually made me laugh out loud.  Thanks for that.  smile

Darla

11

(6 replies, posted in Introductions!)

Dear Kris,

I am so sorry for your loss.  Sometimes these things go quickly and before we are even able to wrap our minds around the fact it is over.  My husband passed away 7 weeks after the first indication that there was anything wrong.   Although when it goes this quickly it is hard for those of us left behind,  try to take comfort in knowing that she is no longer suffering or in pain.   Remember all the good times and keep her with you forever in your heart and those memories.

My heart and thoughts are with you and your family at this sad and trying time. 

Love & Hugs,
Darla

Hi Angela,

I can't really ad much more than what has already been suggested, but understand that even just responding is supportive at a time like this.    Please don't ever think that people don't care or are distancing themselves as I don't believe that is the case with anyone on this site.  We all care and will do what we can to help and support you in any way that we can.  We have all dealt with this disease either as a patient, caregiver, family or friend and know  what you are going through.   I'm hoping you can get answers to some of your concerns on Wednesday. Please let us know how you are doing.  We truly do care.

Love & Hugs,
Darla

13

(11 replies, posted in Members' Cafe)

I'll second that one Lainy and I think it should be at the top of our wish list.  It would be just awesome!

14

(6 replies, posted in Introductions!)

Dear Jim,

A warm welcome from me too.  I also think a second opinion is a good idea at this point.   Keep us informed as we do care and you will get a lot of help and support from all of us here.   You and Kimberly have found the best place to be when dealing with this disease.

Love & Hugs,
Darla

15

(16 replies, posted in Introductions!)

Dear NolaPat,

Ditto from me.  A warm welcome and be assured you will be glad you are here.  I too am concerned about the pain and feel it needs to be addressed.   I'm thinking you may also want to get a second opinion.  Let us know how things are progressing.  We care.

Love & Hugs,
Darla

Thanks for sharing your positive news.  smile

Love & Hugs to you and Tom.

Darla

17

(40 replies, posted in Clinical Trials)

HI Melinda,

Slow and steady is good news.  Glad to hear it and thanks for sharing your good news with everyone here. 

Hugs,
Darla

18

(6 replies, posted in Members' Cafe)

Hope the date went well.  Would love to hear more if you want to share.  smile

Hi Barbara,

Thanks for all you are doing to benefit the foundation and to continue to educate people and get the word out about this disease in Jacques memory and also to Rob in memory of Becki.  Well done and greatly appreciated by all who have been touch by this disease.   

Hugs,
Darla

20

(9 replies, posted in Members' Cafe)

Lainy,

What a beautiful  tribute and remembrance to Teddy.  I too know how you feel, as I feel the same way.   Although we were both lucky to have had something some never are fortunate enough to experience, we wanted more.   I am not ready to leave either, but no longer fear passing on as I know Jim will be there waiting.  smile

Enjoy your dinner and celebration with the kids.  I'm sure Teddy will be there to hear you sing happy birthday.  Heck, he will probably be singing right along with you.  smile

I will be thinking of you tonight.

Love You,
Darla

21

(3 replies, posted in Members' Cafe)

Hi Caroline,

So nice to hear from you again.  Not sure I can be of much help as far as the dreams are concerned, but I think this is an interesting subject and hope others will also chime in with their experiences.

My husband passed away a little over 6 years ago and I still have dreams that include him.  My experience has been somewhat the opposite of yours. 

When awake, although I do believe that he is happy, health and no longer in pain or suffering,  sometimes the thoughts of those days & weeks just overwhelm me.    In dreams I see him as he once was and living a normal life.  The odd thing is that the situations, place and people involved are usually ones that we never experienced when he was alive.  Not sure what to make of that.

It does get better with time, but I do think that these things will always affect us in some way or another.  We just learn how to better deal with it all.   It hasn't been that long since your mom passed away, so what you are going through is probably normal for you in you grieving.   I have learned that everyone grieves differently and at a different pace.   We just have to go with it.   
Sorry I can't be of more help or make it better.  Hopefully time will do that.

I'm sure others will be here soon with their experiences and suggestions.

Take care dear Caroline.  Keep in touch and let us know how you are doing.

Love & Hugs,
Darla

22

(57 replies, posted in Members' Cafe)

Thanks for posting this Marion and thanks to Stella for representing all of us and expressing what all of us feel.  Percy touched so many and I am fortunate and proud to say that I was part of his life through this wonderful foundation. 

Love & Hugs to All
Darla

Hi Michelle,

Welcome.  I'm glad you have joined us, but sorry to hear why.   You are definitely in the right place.   Please let us know how you are doing and if we can help in any way with info and support, we are here for you. 

Hugs,
Darla

Lainy,

Glad to hear this.  I  agree, that compared to some we can't complain.  Well, I guess we can, but what good would it do?   smile   Although some days I wonder if God thinks we are stronger than we think we are.  smile   Yes, in many ways we are blessed.    Take care.  Always thinking of you.

Love and Hugs,
Darla

25

(6 replies, posted in In Remembrance)

Dear Janet,

You have my deepest sympathy  on the loss of your dear husband  Pete.  There are no words that will take away the pain and sadness, but  I am hoping that knowing he is no longer suffering or in pain will help to ease yours.  He will always be with you in you heart and memories of your life together.  My thoughts and prayers are with you and your family as you grieve your loss. 

Love & Hugs,
Darla