You are not logged in. Please login or register.
La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 13
Just remembered he is on compzene and zophran. Thanks for all of the responses and help. I pray for everyone that is here and hate the things tht everyone is having to go through.
Just wanted to update you on my step dad after they changed his pain med to morhphine and put him on a new nauseau med which I can't think of right now it start with a c but he has been doing a little better got up on Thurs and felt like a new man was hungry and ate quite a bit Thurs and Fri. Sat Sun and Mom weren't as good not able to eat too much. Last night he got up and fell. He wasn't hurt but said his legs were heavy. The hospie nurse came today as she is only coming once a week or as we need her and said he is probably having fluid build up in his legs that is causing the heavy feeling. It is just so good to see him able to eat again and it actually taste good to him. Has anyone had the heavy leg feel? He even looks better and sounds better. It is so weird.
I am so sorry to hear what you are going through and I know the Tarceva is going to do the trick. You are an inspiration to everyone and I know that God is going to take really good care of you. Keep in touch. Our prayers are with you during this time.
Thanks for the replies. His nauseau has been constant and at night had been almost unbearable. After they switched to the compozene and zophran and ms Contin he is doing much better. They got his mouth wash to us as well which is really helping with the bad taste he has. He got up yesterday morning feeling like a new man wanting to eat doughnuts, sausage biscuit and drink some milk. He laster had some vegetable soup, and ate pimento cheese and crackers and this morning he got up wanting brawts. It is amazing what the right meds can do and I just pray that it will last. I think if he can eat and get his strengh back he will stay with us for a while at least I hope so. He loves my mom so very much and he is honestly the most loving and compassionate man I have ever met. He never complains about anything and is always worrying about everybody else. It is just so sad for my mom to have found him and is going to lose him. I hoe they can have one more Christmas together. Thanks for the advice and let's pray that it continues to work for him.
I have been posting on introductions and thought it was time to move over. I was wondering if anyone has been on Compozene for the neaseau. My stepdad's so sick at his stomach that a single bite of food or water just makes him sick. They are taking him off of the phenergan and putting him on the compozene and also zopran in between as needed. they are also switching his oxycodone to ms contin. Has anyone had this and what to expect? He doesn't seem to have much pain but the neaseau is just so severe that he hasn't eaten and barely drinking in over 6 weeks. His last chemo treatment was 2 weeks ago which was the last. Just let me know if any have had taken these and if you know anything personally about them. Thanks so much in advance.
Well here I am at my Mom's as i have been trying to spend as much time as possible here with mom and my step dad. He decided onFriday no more chemo and to just do hospice. The chemo is literally killing him faster than the cc is. He hasn't eaten a full meal in weeks and is so week he can hardly take a shower. He sometimes can take a bite of food and that is all and just to take a drink of water just makes him sick. He says he has the worst taste and that everything he puts in his mouth just makes him so sick. He is so pitiful and it is so heartbreaking. He hospice nurse has been in and has added a second neausea medicine in hopes that it will help. He is just so neausous he can't stand it. The weakness is getting worse from lack of food. He says he isn't having much pain but from the looks on his face and the moaning that he does I think he is in pain which he is on Oxycodone and Loratab. We are trying everything we can to help him overcome the bad taste but just aren't having any luck. He is literally skin and bones except for the large abdominal area. If anyone has any suggestions on what to do for the severely bad taste and neasea Please let me know. I know he gets so tired of us asking if he wants to try this or try that but it is so hard to watch someone not eat or drink or if they do it looks as if it is so painful. What to do? The only good thing is that he is resting really well at night sleeps about 10 or 12 hours. The doctors had told us that he probably only had about 3-4 weeks left. How do they know that? I do know that when my dad had colon cancer they gave him 6-8 months without chemo and 8-9 with chemo and he was with us for 8 1/2 months. I just feel so helpless and wish I could do more as I know everyone here does.
I just wanted to update you on my stepday as it has been a few weeks. It is now at a crucial stage I am afraid. He is requesting for hospice which is just tearing my mom apart but he can't eat barely can drink and has no saliva in his mouth. Mom tries everything to get him to eat and usually can only take one bite and I think that is to appease her. When he went for chemo last week they only did the gemzar and his blood work wasn't good. It shows the cancer is spreading. I doubt he will have any more. He is so sick at his stomach and so uncomfortable. I am taking some time off or work to go be with him and my mom as I fear the end is near. I haven't seen him since he got this bad and I dread it so much.
Thanks Jeff for sharing and he did feel better for maybe a day. Hasn't been able to eat any solid food drinking Ensures mostly. Had a really really bad weekend and thought they were going to have to call an ambulance. He was just in a lot of pain stomach getting really large and hard again, restless, having difficulty breathing and just really sick. They did call the Dr on call and they had him take a couple of pain pills and neausea medicine. A couple of days later he still wasn't better just getting worse. They went in yesterday to drain more fluid but it wasn't fluid. they said that he has a large blood clot in his lung and has to have a shot in his stomach every day. Is this related to the cc or what? I hate not being there because my mom just doesn't ask a lot of questions just because I think she just doesn't want to know. He has a pet scan a couple of weeks ago and ultra sounds and blood work yesterday but they don't know any of the results from the pet scan. I just hate that he is going through so much and just is happenning so very fast. Just a month ago he was doing so well considering. Mom said yesterday that he looked really bad.
Everyone here is just so sweet and helpful and it is truly a godsend that they have thse forums now. I wish I would have had this with my dad. Anyway, my stepdad went in on Monday and had a chemo treatment and then on Tuesday they had him come in for an ultrasound of the stomach area. They drained over 6lbs of fluid off of his stomach and that was all they could do at one time or his blood pressure may bottom out. He was feeling a lot better which I can only imagine and was starting to eat a little bit again. What causes all of the fluid?
So sorry to hear your mom has this terrible disease. My stepdad has it and yes a second, third or however many opinions it takes is so very important. If we hadn't gone for a second opinion my stepdad would have passed 2 years ago. Even after that in June after we were told to let nature run it's course we still didn't stop. We went back to his surgeon who did his liver resection and he said absolutely we can do something. It is not going to cure him but it will at least give him more time with us and most importantly help with pain. I lost my dad, grandmother, father n'law and sister n'law to cancer and you have to consistently search for new and better treatments as there are people out there who have dedicated their lives basically to finding help for people. I think the main thing is knowing for sure what is wrong and that you did everything that medicine can do and then the rest is up to only one person. Hang in there!!
Thank you Jeff and I have a read a lot about you and you are definitely an inspiration to all. do you mind if i ask how old you are? I not only lost my dad to colon cancer but I lost my grandmother to milenoma my father n law to a rare lymphoma and my sister in law to breast cancer. This is just nasty stuff. My stepdad and mom and in Louisville,KY today as he is going in for a shot today to prepare for the chemo tomorrowDo you have a lot of pain with where all of your tumors are? I know they say the chest wall is very painful and especially where it is "tickling" your spine. They have only done chemo on him one other time and I think it was the gemzar and he tolerated it pretty good. the bad thing is now he is swelling really really bad in his stomach area and I wonder if that is causing him so much pain and making it hard for him to breath. Mom said yesterday that he couldn't hardly walk. it is so hard to know what to do but I told mom that they may need to drain some of the fluid. he is eating so very little and that is so concerning. I wanted to ask if many people have heard or talked to Dr. Jerome Canady and what you thought? I also wanted to see about the clinical trials and what are your thoughts?
Update on my stepday and hope for some words of encouragement and help. I posted last in June about my stepda'd oncologist telling us it was time to let nature run it's course and we decided to go back to the surgeon who did the liver resection almost 2 years ago and he hadn't even been cc'd on anything in regards to what they were doing for him. He said he wanted him back on chemo which he had only taken once and that was a year and a half ago. Well, 2 weeks ago they did a pet scan and then put in the port to start chemo which is suppose to begin this week. But over the last 4 weeks he has gone down really fast. He can't eat, sleeps all the time, is in a lot of pain and is having trouble breathing. Why do they wait so long to take action? I just don't get it . This is a precious life we are talking about and they just see when they can put it on the schedule. His cancer that we of is back in the liver, many lymph nodes in the stomach area, the entire chest wall cavity and the sternum. Has anyone been at this point and found help or treatment that worked. My mom is just having such a hard time and we are not giving up. It is just not fair. Where do we go from here? What happens toward the end?
I am so sorry to hear about your husband. I just can't believe it happend so fast. My stepdad has been fighting cc for almost 3 years and has gotten really bad really fast. I just wondered where all was his cancer and what all happend. I lost my dad to colon cancer 10 years ago and this is just so not fair to my mom. This wonderful man literally gave my mom her life back and gave her back to us. I just hope that we are not out of options just yet but he has just gone from playing golf and running around all of the time a month ago to not being able to eat, sleeps a lot and is in a lot of pain. And now is starting to have trouble breathing. Could you share a bit more of your husband's story if you can. And again, I really am sorry about your loss.
My husband Jim passed away last week Tuesday 9/02/08 at the age of 62. He was a healthy normal functioning man 7 weeks ago. The past 2 months have been so intense. Full of questions & promises. Watching the progression of this terrible, disease that so quickly claimed his life was horrifying. Everything I have been reading on this site is exactly what we have been through & more. Finding this site has answered a lot of unanswered questions for me & has given me some comfort. Right now I am feeling empty & hopeless. I was only 15 when we first met. We had 45 wonderful years together which I am grateful for, but I guess I selfishly wanted a lot more. Now all I have left is the memories. As time goes on, hopefully I can be of some help & comfort to others who come here seeking it. I am so glad I have found this site & hope that others in our situation will be lead here also. Thanks to all of you for being here.
Posts found: 13