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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
Due to recent news about new cancer treatments, CCF is gathering information about your experience with genetic testing of your tumor. Whether you have or have not
had any genetic testing it is important to answer the questions to help us make progress in cancer research.
Take the Survey
Posts found: 2
Thank you Darla, Lainy & Karen for watching this site so closely and responding so quickly. I appreciate your honesty and respect you for the courage it takes having this disease as part of our lives. You are now part of my life and part of my prayers. This weekend is the beginning of our journey, it has changed our lives completely. We seem to be in a "dream like" state not knowing our path in life from here on out. Tomorrow we will start facing a road that we have never been down before, a very scary road. (PS: Lainy-our doctors and hospital we are dealing with are in Appleton, WI.) Thank you for your support!
Hi my name is Kathy. The time is 2:41 a.m. As you can tell I cannot sleep tonight. Earlier today I was in the hospital with my mother (age 73) waiting for her to come out from "out patient gall bladder surgery". When the surgery was over, the doctor came in to consult myself along with my brother & sister on how it went. To our complete surprise and shock, we were informed that the gall bladder could not be removed and that a tumor was found on her liver. An immediate biopsy was done and we were told that she has CANCER! Doc said it was not "liver" cancer and that it looks as if it started in her bile ducts and spread to her liver. He called it Cholangiocarsinoma and that she was in STAGE IV. Because I know nothing about cancer (being blessed this has never struck anyone in our family), I started researching it and found this website. I am so scared of losing mom and do nothing but cry. My father passed away 6 years ago and I am not prepared to lose mom. This came up so fast, she is never sick. It all started approx. 1 month ago when she woke up at 3 a.m. with a stomach ache and nausia thinking it was from eating a few nibbles of raw cookie dough. After severel tests it came down to them telling us her gall bladder should be removed. This is truly unexpected! Next week we are scheduled to meet with a "Cancer" doctor to answer all our questions and explain to us the next steps to be taken. I am aware that stage 4 is the worst and last stage of cancer - Doc told us there is no cure and she will die from this. What bothers me is the time frame we are talking about? I know going forward we will keep our chins held high and take one day at a time, knowing we are blessed to have that day and continue to pray for a miracle. However, not knowing is really hard for me to deal with. I appreciate your comments - all good and bad ones. I want to hear of those who has or had this and things I can expect. I realize each one of us are different - but knowing what you went through will help me understand what we may face tomorrow. Thank you - God bless!
Posts found: 2