Dear Kami,

I am so very sorry to hear of the passing of your dear mum. Please accept my sincere condolences. Thanks so much for sharing your poem with us all, it is beautiful. My thoughts are with you and your family right now.



Brilliant news Patty, well chuffed for you!!! Thanks so much for your donation to the foundation and I hope that your speech goes well, good luck with that!




(6 replies, posted in General Discussion)

You got it Susie, fingers crossed for you and loads of positive thoughts heading your way from over here. Hawaii sounds real nice! Enjoy it and try not to think too much about the upcoming scan. Have a great time!




(50 replies, posted in Introductions!)

That's great news about your wounds healing Matt. Hope that you enjoyed your bath too!

Best wishes,


Hmmm, that link doesn't seem to take you to the search I did. So follow the link above, type triptolide in the search trials box and it should throw up 5 trials of which 3 are recruiting and 2 closed but none of them for CC.


Hi Julie,

I haven't heard of anything for this and CC as of yet but if I hear or see of anything coming up I will of course post the details here on the site. I did a quick search and came up with this, but none of it seems CC related.

Best wishes,


Thanks for that Marion, link put on the FB page.

Not all of this piece is relevant but much is.

Advances in Interventional Oncology: Percutaneous Therapies. … ltext.html


(35 replies, posted in General Discussion)


I just want to echo what the others have said to you my friend. Please know that you are much loved by us all and I am thinking of you lots.

Wishing only good things for you and sending strength and positive thoughts your way as well.



(11 replies, posted in Members' Cafe)

Good idea Lainy!

Found this very interesting.

Goggles help surgeons ‘see’ tumours.


(0 replies, posted in Websites)

Reading a Pathology Report. … ogy-report

Helen of AMMF just confirmed on Facebook that sadly Elena has CC. Just thought I'd share that here.

Clear cell papillary cholangiocarcinoma: A case report with review of literature.

Science Snaps: designer drugs. … ner-drugs/

Found this interesting -

Triptolide induces apoptotic cell death of human cholangiocarcinoma cells through inhibition of myeloid cell leukemia-1

Triptolide -

Non-Surgical Therapy for Unresectable Hilar Cholangiocarcinoma. … carcinoma/


(8 replies, posted in Members' Cafe)


I too am sorry to hear of your Aunts passing. Please accept my sincere condolences. Your family sure has been through so much these last few years and you are in my thoughts right now.



Prevention and Management of Chemotherapy-Induced Peripheral Neuropathy in Survivors of Adult Cancers: American Society of Clinical Oncology Clinical Practice Guideline. … lt-cancers

LOL! You got that one right!

Tweetup details for ASCO in May for those who are interested and won't be able to attend.

The Architecture of Recovery: Can Design Affect Your Health? … our-health

The picture in the link above is of the Maggie's Center here in Dundee, in the grounds of Ninewells Hospital. It certainly is a striking building and the work they do there for patients, families and carers etc, well I have nothing but good things to say about that! … es-dundee/

List of Maggies Centres throughout the rest of the UK -

For UK members, well worth checking our your local center if you can.



(9 replies, posted in Good News / What's Working)

Brilliant news on the shrinkage Duke, much happiness does indeed abound! Living life to the fullest, I like the sound of that,a lot!!

Hope you enjoy Easter!



(9 replies, posted in Good News / What's Working)

That's great news about Mark Kris!!! Fatten him up indeed and I hope that you both can enjoy life right now!