1

(2 replies, posted in Members' Cafe)

Nothing's too off topic for us Julie, especially here in the Cafe and especially when it involves food!! smile

That's great about growing the sweetcorn, I bet they tasted goood! :-)

Hmm, raccoons. No experience of them over here in Scotland, but if they were eating my hard grown veggies then I'd be chasing them off somehow! As for the deer being the culprit and not the raccoons, I have a solution to that as well and we have deer over here in Scotland, lots of them in fact and let me just say that they are mighty tasty!!!

Problem solved! smile

Hugs,

Gavin

2

(7 replies, posted in Introductions!)

Hi Sam,

Welcome to the site. Sorry that you had to find us all here and I'm sorry too to hear about your wife. But I'm glad that you've joined us here as you're in the best place for support and help and you'll get a ton of both from all of us. Not really much that I can add to what the others have said to you already but I wanted to welcome you here.

Duke is so right about what he says about a positive attitude and that will carry both you and your wife far indeed, and i also agree from what you have said that she does indeed sound like a fighter with a great attitude. Please keep coming back here and know that we are all here for you. We'll help as best as we can and you are not alone in this now. Looking forward to hearing more from you.

My best wishes to you and your wife,

Gavin

3

(0 replies, posted in Websites)

http://www.mascc.org/assets/documents/N … pt2014.pdf

Hi Midsis,

Yep you are so right, cancer sucks, big time! I too have plenty of phrases and none of them I can repeat here on the site to describe how I feel about this cancer! It sounds like you're having a rough day today so you go ahead and vent as much as you want to, that's what we are all here for and we've all been through these days as well. Venting so helps at times like this.

Getting angry every now and again I feel is good as it gets all the build up of it out and we all need to do that don't we. We have a punch bag at the gym and punching the living day lights out of that helps I feel! "Jerk face", I like that one! Hope your day gets better, much better.

Hugs,

Gavin

Dear Sara,

I am so very sorry to hear that Nicole has passed away. Please accept my sincere condolences. Nicole is now at peace and suffering no longer. I so wish that there were words that I could say right now that would help. This is such a tough time for you all and please know that my thoughts are with you and your family right now.

Hugs,

Gavin

Gemcitabine Hydrochloride and Cisplatin With or Without Radiation Therapy in Treating Patients With Localized Liver Cancer That Cannot Be Removed By Surgery.

http://clinicaltrials.gov/ct2/show/NCT02200042

Plasma Autoantibodies against Heat Shock Protein 70, Enolase 1 and Ribonuclease/Angiogenin Inhibitor 1 as Potential Biomarkers for Cholangiocarcinoma.

http://www.ncbi.nlm.nih.gov/pubmed/25058392

Hi Jane,

Welcome to the site. Sorry that you had to find us all here and I am sorry to hear what your mum is going through as well, but I am glad that you have joined us all here as you're in the best place for support and help and I know that you will get loads of each from everyone here.

When my dad was diagnosed with his CC in 2008 it was deemed inoperable for the same reasons that your mums seems to have been in that it was located too close too major blood vessels and unfortunately this is quite common with this cancer. I too can not believe that your mum was told by a doctor that because the bile ducts are so small and a tumour blocks them quickly then that means that the symptoms show up at an early stage. If your mum really was told that by a doctor in a major cancer center then I would be horrified by that as this is most certainly not the case. For far too many patients, my dad included, symptoms do not start to show until the CC is quite advanced hence why it rules out surgery as an option for so many people.

It could certainly be the case that your mum is looking at things here through the rose tinted glasses or that she has not heard correctly what the medical team have told her and that is quite common as well. My dad did that a bit too if I was not there at his meetings with his GI team and I hope that you will be able to attend these meetings in the future with your mum.  I agree with Lainy and Kris that getting more opinions on your mums CC is a good thing but if your mum is determined not to do this I understand the situation you are in. I am my mums carer as well and can so get where you are coming from with all of this also!

As Kris said, shrinkage through chemo leading to surgery at a future date is an option and some of our members have had that happen so please do not give up hope here. And keep coming back here too, we are here for you and know what you are going through. Keep doing your research and keep asking the questions as well. And please let us know how things go for your mum, you are not alone in this now.

My best to you and your mum,

Gavin

9

(5 replies, posted in General Discussion)

http://www.ncbi.nlm.nih.gov/pubmed/24788596

I forgot to mention the prunes Kris so thanks for the reminder on them. My dad had them a lot for breakfast each day and in the hospital here they are on the menu each day as part of the breakfasts. I love prunes myself and have a handfull each day of dried ones as well for breakfast. I know they are not everyones cup of tea but my dad felt that they helped him along with the lactulose as well.

Thanks again.

Gavin

Yay Kris, excellent news about your son! And I agree with Lainy, you post anything you want when you want and you are so right, this is a huge milestone and I'm glad that you posted it here. Hopefully the next 4 checks will go as well and yes cured, what a great word!!

Hugs,

Gavin

12

(2 replies, posted in Clinical Trials)

Hi Kim,

A few links for you, hopefully some of them will be useful. My dad never used this so no personal experiences to share with you.

http://www.cancer.org/treatment/treatme … /mistletoe

http://www.mskcc.org/cancer-care/herb/m … e-european

A search of posts here on the site on mistletoe -

http://www.cholangiocarcinoma.org/punbb … =974482312

Hope these are of use to you and please let us know how things go for you with this.

My best to you,

Gavin

Ouch, nasty Marion! Have you ran scans and stuff to try and clear it?

Hope you can get it fixed, nothing worse than nasties on your pc. Well there are worse things to happen but you know what I mean Marion!

Hugs,

Gavin

Dear Sara,

I too am so very sorry indeed to hear about Nicole. I so know what you are going through at the moment having been where you are right now with my dad.  I hope for peace for Nicole as well as for her to be comfortable throughout. I also wish you every strength for this period although I know that you are already strong. You know we are here for you and my thoughts are with you right now.

Hugs,

Gavin

Thanks for that Patricia. Speed issues on pages loading etc seem only to happen here for me. I use a desktop only, none of these new fangled gadget techy type things! Guess I'm a tech dinosaur still! smile

Hi Pyderman,

My dad had some issues with constipation as well and for that he used Lactulose which seemed to work quite well for him. He tried Movicol as well but that didn't really work too well for him so his GI guy put him on the lactulose instead. He took it twice a day, morning and night and it worked better for him than the Movicol.

Found a link for you that I hope is of use -

http://www.cancer.gov/cancertopics/pdq/ … ient/page3

http://www.cancerresearchuk.org/cancer- … nstipation

I too hope that the onc and the pain team can get this under control for your mum and please let us know how she gets on with this.

My best wishes to you and your mum,

Gavin

Thanks for that, great story and great puns from Lainy too!

Thanks for the reminder of the latest presentation Marion, I still have to watch the webinar! Been so busy here.

Hugs,

Gavin

Macrophage density and macrophage colony-stimulating factor expression predict the postoperative prognosis in patients with intrahepatic cholangiocarcinoma.

http://www.ncbi.nlm.nih.gov/pubmed/25052379

The Brave New World of Patient Portals and Accessing Test Results Online.

http://www.cancer.net/blog/2014-07/brav … lts-online

Osteopontin: a new player in regulating hepatic ductular reaction and hepatic progenitor cell responses during chronic liver injury.

http://gut.bmj.com/content/early/2014/0 … 12.extract

What brilliant news! Thanks so much for sharing that with us all and I know that news like yours gives so much hope to everyone else! My fingers are so crossed for you that your next 2 scans are equally as good so that you go onto the yearly ones.

Hoping that the good news continues like it has for you and please keep us updated on everything.

My best wishes to you,

Gavin

23

(19 replies, posted in Introductions!)

Hope that your wife's biopsy goes well for her Jet. Please let us know how things go.

My best to you both,

Gavin

24

(3 replies, posted in Members' Cafe)

Wow, our family gets bigger everyday and now I have a brother! Never can have enough indeed! smile

Glad that you 2 had a blether and it sounds like it went well! Next time you should have a cuppa as well though!

Hi John,

What great news about how your wife is doing, excellent! Like Lainy and Kris said, we love hearing news like this here! Hope that you keep the good news coming and my fingers are so crossed for that!

My best wishes to you both,

Gavin