Welcome to the site. Sorry that you had to find us all here and I am sorry to hear what Mary is going through right now. But I am glad that you have joined us all here as you are so in the best place for support and help and you will get loads of that from all of us here. If we can help in any way we will, just ask and we will do what we can.
As Lainy says, I too am from the UK, Dundee up here in Scotland and we have many members here on the site who are from the UK. My dad was diagnosed back in 2008 here in Dundee and was also treated here as well with PDT.
You are so right what you say about the Christie in Manchester. It is well known throughout the UK, Europe and the USA as well. Can I ask who Mary's oncologist is at the Christie, Is it Prof Juan Valle? If so I would say that Mary is in very good hands indeed with prof Valle. Prof Valle is the Vice Chair of the Medical Board for the Cholangiocarcinoma Foundation and has much experience in dealing with patients with CC.
I do have a few UK specific links that will be of interest to you and Mary. Have you heard of AMMF in the UK? It is the UK's only specific webiste and charity for CC and it can be found here -
You will find a lot of UK specific info there regarding other major treatment centers and treatment options.
http://www.ammf.org.uk/cholangiocarcino … options-2/
http://www.ammf.org.uk/cholangiocarcino … atment-uk/
http://www.ammf.org.uk/cholangiocarcino … t-centres/
Helen who runs AMMF is a gem and I am in touch with her frequently about lots of things CC related. Should you wish me to contact her on your behalf about any other facilites or options in the UK then I would be happy to do so for you.
I hear what you say about treatment under the NHS and all that but there is quite a lot being done now for CC in the UK. I assume that surgery was ruled out seeing as Mary was only offered chemo, did Mary seek a second opinion on surgery if that was the case?
Should Mary want to seek further options in the USA then I will leave that to some of the USA members to discuss with you as they know far more than me about things on the other side of the pond.
I do hope that you keep coming back here Judith, you are not alone in this now. We are here for you and we care.
My best wishes to you and Mary,