(1 replies, posted in Members' Cafe)

You are sooo right that I am salivating right now! Sounds like a great day and a great feast as well and no wonder T was salivating! I still have to try and make that pasta sauce of yours sometime!

Some day indeed! smile


(5 replies, posted in General Discussion)

Dear Alex,

I am very sorry to hear of the passing of your dad. Having also lost my dad to this cancer I so know the pain that you feel right now.Please accept my sincere condolences. I am glad though that his passing was peaceful and that his last days were spent at home surrounded by his loving family.

Please know that we are all here for you and my thoughts are with you and your family right now.


Dear Darius,

I am so very sorry indeed to hear of the passing of your dear mum. Please accept my sincere condolences. I so wish that I could say something that would help ease the pain that you feel right now but please know that we are all here for you.

Thank you as well for your very kind offer to help those who need more information on testing and stuff, that will be of help to many.

Please know that my thoughts are with you and your family right now.



(8 replies, posted in General Discussion)

Hi Chuck's daughter,

I am sorry to hear this latest news about your dad. Please tell him that we are all asking for him and of course rooting for him as well.

Your dad will know this but I just want to say to you as well, if we can help in any way what so ever then please just ask and we will all do what we can. We are all here for you always.

My best to you and your dad,


Excellent, thanks for posting this Marion. Very very useful and tons of stuff that can be read here.



Hilar bile duct tumors: Endoscopic or percutaneous drainage? A prospective analysis.


Screening and surveillance for occupational cholangiocarcinoma in workers exposed to organic solvents.



90Y Transarterial Radioembolization (TARE) Plus Gemcitabine and Cisplatin in Unresectable Intrahepatic Cholangiocarcinoma.


Last nights webinar now online and can be found here -

http://cholangiocarcinoma.org/webinar-u … n-therapy/


Cholangiocarcinoma: Correlation between Molecular Profiling and Imaging Phenotypes

http://journals.plos.org/plosone/articl … ne.0132953

Hi Christine,

Have you tried using the search forum function at the top of the page? That will throw up any discussions on this or any other issue by the members here on the site. I can't share any personal experiences on this as my dad never had chemo of any type but am hoping for others to share their experiences with you on this.

My best wishes to you,


Hi Monica,

Welcome to the site. Sorry that you had to find us all and sorry to hear everything that your dad is going through and please, no apologies are ever needed for the length of a post. So you go ahead and write that book if you want to and sometimes writing about things really helps. I know it helped me when I first came here when my dad was diagnosed.

Thanks for sharing everything and I too hope that things will improve dramatically when the infected port comes out. Big grrrr to infected ports! Please let us know how things go and know as well that we are all here for you. Looking forward to hearing much more from you.

My best wishes to you and your dad,



(4 replies, posted in Members' Cafe)

Mine seems to be the same as always, but then again I haven't tried to change it though!

T as always looking out for you Momma! smile

How your donations help.

The second Cholangiocarcinoma Foundation Annual Conference brought together 108 physicians, researchers, and those invested in the study of bile duct cancer from 45 U.S. and international cancer centers. This conference is the ONLY opportunity in the U.S. for the medical and scientific communities to share the latest global research in cholangiocarcinoma.

Learn more and see many of last year's presentations at -

http://cholangiocarcinoma.org/misc/2015 … onference/

The newly launched Research Fellowship Program has awarded five grants totaling $260,000 to outstanding scientists throughout the country to raise awareness about cholangiocarcinoma and inspire innovative, quality research.

Learn more about each grant and scientist at -

http://cholangiocarcinoma.org/professionals/our- grants/

The International Cholangiocarcinoma Research Network is a global collaboration of research groups from renowned institutions working to improve knowledge about prevention, early detection and treatment for bile duct cancer.

Learn more at -

http://cholangiocarcinoma.org/internati … h-network/

Your support propels us to aim higher, reach further and work harder to ensure we continue this forward momentum.


Effects of Yttrium-90 selective internal radiation therapy on non-conventional liver tumors.


Data set from the proteomic analysis of Bithynia siamensis goniomphalos snails upon infection with the carcinogenic liver fluke Opisthorchis viverrini.


Thanks for this Julie. Will keep my eyes open for stuff about this and will do some digging for info later when I get a bit more time.

Thanks again.


Adjuvant Chemotherapy With Gemcitabine and Cisplatin Compared to Observation After Curative Intent Resection of Biliary Tract Cancer (ACTICCA-1)

https://www.clinicaltrials.gov/ct2/show … amp;rank=1

Saw this last night on CNBC, very very interesting I thought and wanted to share it here.

http://video.cnbc.com/gallery/?video=30 … amp;play=1

You'll probably have to wait for the advert to play out before you get to the video unless you have ad blocking software on your pc. Worth watching in my opinion even if you do have to put up with the short advert! Natural killer cells, very interesting.

And my posting this video is in absolutely no way whatsoever a recommendation to buy shares in the company in this video.


Predictors and patterns of recurrence after curative liver resection in intrahepatic cholangiocarcinoma, for application of postoperative radiotherapy: a retrospective study.



(8 replies, posted in Introductions!)

Good luck with the chemo Moose, hope that it all goes well and works very very well. Will keep everything crossed for you and please let us know how it goes.

My best to you,



(54 replies, posted in Clinical Trials)

Thanks for that Marion!


(6 replies, posted in Good News / What's Working)

Hi Genevieve,

This is such great news, thanks loads for sharing that with us all! Cycling and going to the gym, love it and long may that continue!!

My best to you and your husband,


Thanks for that Marion. Do you want this put on the FB page as well?