Well I am new to this site and was diagnosed with CC one year ago (3-08). However in "checking out the tumor" the Dr. inflamed my pancreas and I developed Pancreatitis with neucrosis(sp) in April 2008. In any case that almost "got me" and after major "clean out" surgery, installation of two stents in bile ducts and rermoval of 4 liters of fluid from my abdomen, 4 weeks in hospital, I began my recovery towards being strong enogh to resect my tumor (as it was operable at that time) Well they scheduled the operation for October, up till then (March till October) I was given no treatment what so ever... Well once they "opened me up, they saw a spot on my liver, so they took my gall bladder and closed me back up, electing not to do the resection of bile ducts.
Well I was by now not too confident in the Dr's or Hospital so I came home and did some research and called Cancer Treatment Centers of America... (the oncologist at the Previous hospital gave me 3-9 months) Cancer Centers immediatley started me on a every 21 day fractionated Chemo therapy after confirming tumors in bile duct and three on liver, at that point my CA-19-9 tumor marker was 305.
After first treatment my CA 19-9 went down to 226. After second treatment it went down to 46. After third round of chemo it went down to 26 and scans that were ordered after round three revealed no evidence of tumors and bile ducts had no dialation were open and in fact one of the stents had fallen out.. after treatment 6 CA-19 is at 17,
Well they wanted to quit chemo after six but as I was going back for complete set of scans this month I "volunteered" for one additional round for good measure.
All through my previous six rounds I have been fortunate enough to not have suffered many side effects and in fact have been able to resume work full time except during and for three days post treatment (very tired). All my liver, blood, billirubin, all bloodwork numbers returned to and have been normal since first treatment. I have no pain, no symptoms no nothing to this point... I hope and pray it continues and wish all who have this terrible disease the very best...