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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 13
I am happy to hear you are having such great news. It gives us hope too.
Like Michael from San Diego stated, it is the oxaliplatin that is the cold sensitive part of the regiment. It is the only drug to have such cold sensitizing side effects. I have made my share of mistakes with it. Take things slow when ingesting liquids. You don't want to end up in the ER.
I had a busy day yesterday so took the liberty of sleeping in. Dinner was a hit last night and it was certainly a pleasure meeting both you Jean and Lisa. it was unfortunate that the battery went died on the second photo shot. Perhaps a call for another get together soon. Thanks for making it a memorable moment for me knowing I am not alone.
6:00 sounds good to me
Has anyone mentioned a time for this significant event? I look forward to being there.
I believe you are right about the restaurant and the purpose for meeting. I didn't mean to suggest otherwise. Looking forward to meeting wherever it is on the 8th.
Jim here. I hope I do not offend anyone but Azteca is not really Mexican food. I found some more authentic food in Mukilteo on 99 around the casino and Jimmy Jacks. Don't know the name. It's a bright orange building right on 99. I will get the name in a few days. I have a good friend that is a wonderful mexican chef in Issaquah. He owns the Las Margaritas there. I ask for Oscas special and food comes out of the kitchen that is not on the menu. I wish I could say the same for Italian. I do know of a spendy pizza and wine place in Mukilteo. But I am open to meeting anywhere for our first gathering. I am often in Mukilteo on the weekends.
The 8th might work out better for me because I get infusions on the 13th & 14th. I can't predict how I will feel the following Saturday (15th). I don't know about restaurants in the Seattle area but I can inquire. I will check back to see when and where our meeting will take place. Look forward to meeting you all sometime soon,
Good Luck and wishes for a positive MRI report. I'll say an extra prayer for you too. Fairchild AFB is on the other side of the state. I have already found insight and support here. Thanks for being there and being so strong.
I am not real sure how to use the discussion board format to reply to you individually yet. Thanks for the email support. It makes me feel special and accepted. Social Security was not too difficult. I applied and in less than 4 months I was approved. I have a whole set of Doctors from a primary care physician at the Seattle Indian Health Clinic to a nuclear medicine doctor at Virginia Mason Hospital. Tumor growth rate plays an important role in determining frequency of embolisms. And keep in mind there are 2 lobes done one at a time and about 3 weeks time separate procedures. My oncologist and my systemic infusions are done at Pacific Medical downtown. I also have a urologist and a gastro team at PacMed. This all began as a serious stomach ache about 4-5 years ago and a bottle of zantac and 14 days made me able to work again. Then later they found a benign tumor in my groin and then colon cancer in my sigmoid colon and a mass on my liver first thought to be colon metastasis. Now claims to be cc. I have a background in chemistry and on my first day of chemo I drew the molecular diagram of oxalyplatin. It's a long story.....I get personally involved with my medical care. So far, I have survived everything thrown at me and I intend to keep doing the same here. Since I am retired now I will have more time to play guitar and pay it forward. Holidays are coming!
Enjoy the fall colors: from a window or a car if you are able...
Thank you all for the quick replies. I woke up this morning to phone payment problems and the web is my only outlet today. But that's ok. I was approved for Social Security Friday. I am playing guitar today and don't need it. By this time next week will have this taken care of. Then I would like to look into helping out in some way. I have passed information from your medical updates to my oncologist. The choice to use a certain ingredient in my chemo cocktail was a result of that. Lisa I like you idea for a dinner. I spend a lot of time in Mukilteo so that puts us closer at times. I think.
Getting old is tough and this makes us even tougher. My prayers are with all of you and your success in beating this condition. Thank you for allowing me to become a member of your group.
Oh, I would be interested in handing my oncologist a few of your brochures. I help their social group out sometimes.
13812 8th Ave S
Burien, Wa. 98168
My name is JIm Haury and this summer I was diagnosed with intrahepatic cholangiocarcinoma. A single liver mass thought to be colon cancer metastasis turned out to be this unusual biliary tract cancer. Consequently the liver resection was not performed on the mass and my case went before a cancer tumor review board. Tests indicated in the pathology report suggested the current diagnosis. I have had 2 chemo embolizations since and must say they work well on me. Doxyrubicin was used the first time and cis-platin was used the second time due to the unavailability of the doxy. Recently a small mass was seen on one of my lungs. I started a regiment of systemic chemo again to stabilize the lung mass while it is small. My liver appears stable but that could change and have considered embolizations again sometime after the holiday.
I live in the Seattle area and wonder, since it is such a rare form of cancer, who are the others that have this unique condition. I would like to meet them if possible. Thank you for letting me ramble...nice to virtually meet you all.
Posts found: 13
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