Dear Gavin, I just read your post and wanted to touch base and let you know you're in my thoughts. Those anniversaries are tough and healing... Wishing you peace in the new year.

It's wonderful that you remain strong as a supporter for this board, you have a wonderful team... we both know what an amazing (and needed) support system they are, and that you have been.

Best to you,

Dear Hollie- I've thought many times of your Aunt Sophie. My heart goes out to you and your family & my prayers are with you.


Hall of Fame broadcaster Ernie Harwell who spent 42 years as the playbyplay voice of the Detroit Tigers died yesterday at age 92, of cc. … 4317_x.htm

"Baseball is the President tossing out the first ball of the season and a scrubby schoolboy playing catch with his dad on a Mississippi farm. A tall, thin old man waving a scorecard from the corner of his dugout. That

Hi Kristin ... my thoughts are with you. I travelled the CC road hand in hand with my Dad.  I am no stranger to the emotions of hate & anger towards this cancer, but I certainly understand your feelings. 

The Liver

Many a song will chant of the heart
But my fondness goes out to the liver
Not because it

You are in our thoughts and prayers Heather.



(17 replies, posted in Introductions!)

Dear Alisa, you and your Mom are in our thoughts. This is a wonderful community of support, no question too small. Your Mom is lucky that she has you to fight with her- and don't underestimate the power or hope!



(11 replies, posted in Grief Management)

Hello friends and thank you all for thinking of us and for your continued support! You guys are definitely in my thoughts!

hugs to you,


(11 replies, posted in Grief Management)

Thanks so much for touching base you guys & keeping us in your thoughts. We had a great evening!

Best to everyone!


(11 replies, posted in Grief Management)

Hello dear friends! Today is the one year anniversary of my dear Dad's passing. A neighbor has offered to make us dinner and bring it over. Mom & my brother and the whole family will be together tonight to enjoy it.  I know there's no right way to celebrate life or grieve on such a day - but I'm certain that Dad will take great pleasure in seeing us all together for dinner and it will be a beautiful way to honor him.  Even if we don't talk about him, or the 'date'... there's something healing in not ignoring this milestone.  Baby Jack (who just turned 4 mo.) will take Grampa Jack's seat at the table tonight... which seems quite fitting in that he looks much like his Grampa!

Love to you all, and wishes for strength and hope in your own journeys with CC.

P.S.  Please say a prayer for my Dad today .... 


Dear Jennifer, I am so sorry to read of your loss.  You're right, there is no justice is death at 30. My prayers are with you and your family.

Hugs to you,


(9 replies, posted in In Remembrance)

I am so sorry for your loss Pat, Marjorie sounds like an amazing spirit. You are in our prayers.


Gavin, It feels like you've become family to this group, the way you let us all into your life and your Dad's journey through cc. My heart breaks to think about how hard your Dad's passing must be on your heart.  You've helped so many of us, with your supportive and kind words, and you were an angel to your Dad.  Please know that you and your family will continue to be in our prayers.

Your friend,

"Current Surgical Management of Hilar and Intrahepatic Cholangiocarcinoma: The Role of Resection and Orthotopic Liver Transplantation"

H. Petrowsky, J.C. Hong

Cholangiocarcinoma (CCA) is a rare but devastating malignancy that presents late, is notoriously difficult to diagnose, and is associated with a high mortality. Surgical resection is the only chance for cure or long-term survival. The treatment of CCA has remained challenging because of the lack of effective adjuvant therapy, aggressive nature of the disease, and critical location of the tumor in close proximity to vital structures such as the hepatic artery and the portal vein. Moreover, the operative approach is dictated by the location of the tumor and the presence of underlying liver disease. During the past 4 decades, the operative management of CCA has evolved from a treatment modality that primarily aimed at palliation to curative intent with an aggressive surgical approach to R0 resection and total hepatectomy followed by orthotopic liver transplantation.

Pfleger Liver Institute, Dumont-UCLA Liver Cancer and Transplant Centers, Department of Surgery, David Geffen School of Medicine at University of California, Los Angeles, California

Volume 41, Issue 10, Pages 4023-4035 (December 2009)

Johnny C. Hong, MD, FACS, Assistant Professor of Surgery, Division of Liver and Pancreas Transplantation, Department of Surgery, David Geffen School of Medicine at UCLA, University of California, Los Angeles, 10833 Le Conte Avenue, Room 77-120 CHS, Box 957054, Los Angeles, CA 90095-7054

http://www.transplantation-proceedings. … 1/abstract

"Ernie Harwell's Christmas card to all of Detroit" - 12/25/2009

He writes...

"This year, I'm not sending cards. Last July, doctors gave me only six months (more or less) to live. That was five months ago. I am still hanging around. But, while getting ready for my new adventure, I'm not dying to send out cards." … of-Detroit-

Abstract title: Does intrahepatic cholangiocarcinoma have better prognosis compared to perihilar cholangiocarcinoma?


Background and Objectives
Cholangiocarcinoma can be classified as intrahepatic (ICC) or perihilar (PCC). The objectives of this study is to evaluate the surgical outcomes of patients with PCC and ICC, identify the main prognostic factors related to survival and compare the outcome and the prognostic factors of PCC and ICC.

Ninety-five out of 152 patients observed between January 1990 and December 2007 at Surgical Division of University of Verona Medical School underwent the resection of ICC (33 patients) or PCC (62 patients).

Overall median survival was 24 months with a 3- and 5-year survival rate of 45% and 23%, respectively. Prognostic factors for survival were macroscopic types of the tumor, the resection of extrahepatic bile duct, radical resection, lymph node metastases, and macro-vascular invasion. Survival was related with the macroscopic type of the tumors with a 5-year survival rate of 26% and 13% for ICC and PCC, respectively. Univariate analysis identified that negative clinico-pathological factors where significant more frequently found in PCC compared to ICC.

We identified that ICC have longer survival rate compared to PCC. PCC showed a higher frequency of negative clinico-pathological factors such as non-radical (R+) resection, perineural infiltration and macro-vascular invasion. J. Surg. Oncol.

Dear Kristi, I am so sorry for your loss. My heart breaks for you, yet there are no words to ease your pain. You will continue to be in our thoughts. My prayers are with you and your family, and particularly your sister's children. 


I just received an e-mail from a visitor that I met on this board some months back. Emmanual 'blehmeign', has lost his 26 yr. old brother to cc.  He has asked that we keep his family in our prayers.



(7 replies, posted in In Remembrance)

It is a beautiful letter Stan, and happy birthday to your Dad....


Hi Michelle, yes, you and your Dad are in our thoughts and prayers.



(19 replies, posted in In Remembrance)

Dear Amy, children have a special way of communicating and understanding things that we can't see... she knows well where Gramma is- take comfort in that. I am so sorry for what you are going through, you're in our thoughts and prayers.



(11 replies, posted in In Remembrance)

Jan, I've thought about you and your Dad so many times since I joined the board back in Nov. Your correspondences helped my family through more than you know, and it breaks my heart that you too know the pain of losing your Dad to this. I am glad that it was a peaceful passing, and I know that you fought with and for your Dad all the way... so does he.

Here's hoping our Dad's can touch base on the other side...

I hope that you do pursue Hospice, you will continue to be in my thoughts.


Dear Amy, I am truly sorry for what you and your Mom are going through. You will definitely be in my prayers.


Dear Elizabeth, I too am so sorry for your loss. My heart breaks for you, in both your loss and the suddenness of it all. I'm just really sorry for what you must be going through, it is a very difficult time.

You're in my thoughts.


Hi John and welcome! Never rule anything out... you just never know what the future holds, and cc impacts everyone differently.  You will find a wonderful support group here to help with any questions that arise.  The fact that the Docs are wanting to move quickly and collaborating together on a plan for you is one of the best possible scenarios.  Come back and pulse the group if issues come up that you have questions on.

You're in our thoughs.



(13 replies, posted in Grief Management)

Hi Louise, I too am so sorry for your loss. You are in my thoughts.  You're right, life doesn't provide us adequate time or space for the grief we need, but it is a beautiful thought that you're able to see you parents together and to know that you'll see them again.