Ginger, I live in Derby, Kansas. My husband, Ted was diagnosed with Cholangiocarcinoma (Klatskins Tumor) in August 2008. His tumor was unresectable. We went to John's Hopkins hospital in Baltimore, Md. However,
he received followup treatment in Wichita. The surgeon in Wichita, Dr. Duane Osbourne was instrumental in setting us up with a colleague at Johns Hopkins, Dr. Pawlik who performed the surgery. Both wonderful! Dr. Osbourne is very familiar with CC. You might try to contact him and get an opinion. Ted's oncologist is Dr. Parva Reddy (Cancer Center of Kansas) in Wichita, he is also familiar with CC and his treatment plan has worked well for Ted. He was recommended to us by an oncologist specializing in Bile Duct Cancer from KU Med. Center. Ted also received daily radiation from Dr. Joseph Kelly at the Cyberknife Center in Wichita. Excellent doctor! If your daughter needs to have surgery you really need to be at a hospital like Mayos, MD Anderson or Johns Hopkins where a team of surgeons specializing in CC will be able to help you. The doctors I have mentioned above are in Wichita and able to advise you. Ted's tumor was unresectable but was treated with Xeloda and Radiation and he has responded well, to the point they can't see the tumor on the PET/CT scans and MRI tests that he has done every 3 months. It has been almost 3 years since his diagnosis and we are very grateful to all the doctors that treated him. If you would like to talk anytime, please let me know and I can share more information with you.