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|La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
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Posts found: 1 to 25 of 451
Hans,I thought of her on her birthday,she was such a good sort.Hope you are ok,I think I will never forget Kris,just all that we shared,not just the illness stuff!
I think most of the time this one is the quick and nasty cancer.....the one that bowls you over
Happy Mother's Day to you,mums are special all days.It's not mother's day here,we have it in May!....it is one of those days that vary a bit between countries.
Have a great day and live it up for the rest of us mums round the world
What a shocking time you are having,it does at times feel a bit unreal.I was in your shoes 5 years ago and it is so hard,actually I am reminded that I need to be very kind to myself when I visit this site.
But for you ..now you need to take every support that is offered both professional and friend's offers,you need good sleeps to get you through,you need to eat really well and try to get out and walk even just for 20 mins
Lainy ,very happy you don't have another health problem to deal with.Now you can concentrate on getting that brain of yours in good order!
I think your husband's situation is complicated and pretty unusual,Percy mentions one other similar case but I am not sure how that worked out.
Some people,I think just saw the word transplant and assumed he had it for the cancer and of course that is quite different.
The transplant history changes the treatment options a bit but they can juggle a bit with the immunosuppressants,reduce or change them when giving chemo,other than that I think it will be a wait and see type of thing and hopefully it had not spread much further than the nodes.
How strange that the cc wasn't picked up before they operated but it is a weird cancer in that way.
As we always say here ,just be optimistic but realistic
Kindest regards Janet
All good Tiff,nothing like a beach to truly lift your spirits
I think its quite clear what is needed and that it is a family reunion because of a sick grandfather.
I see money being raised for all kind of scenarios,sometimes it's a case of who you know or are connected to ,it can be rather random really ...but I wish them luck in reconnecting
Sorry I am in another country so can't help practically
Pam,thank you for keeping us all updated on Lauren.I think a lot of us have been concerned about her and you.
Thanks for these interesting reports....well done!
Pam....you and your family have been constantly in my mind these last few days.I so wish you all well Janet xx
Thanks Lainy,I think we all had a bit of a shock with this one!
Pam how worrying for you and the family.I am hoping this all goes ok for Lauren and fixes whatever needs fixing......but please look after you during this stressfull time too x
Pam,wishing everything to go ultra well for Lauren
sending heartfelt good wishes and vibes from the other side of the world......
I think when you get to the time of year when things were tough it does come back at you a bit,quite unbidden,you can be trying to distract yourself but the memories are a bit too strong and break through and make you feel a bit ordinary.
......But time eases it .For me the Christmases have been pretty awful as thats when our worst time was and Joel died early January but this last christmas I enjoyed the day and I thought "Well now this is progress"I had tried to enjoy the others even booking into a very expensive restaurant for us all one year-
I enjoyed the food but it was still a very average day.
Darla is right about these feelings coming in waves and we surf through them and get past them.So just keep doing what you enjoy and what makes you happy and sometimes it will work
Truly fantastic news,Pam
That is great news Pam and nice to have it before they go on their holiday to Mexico ..... all good Janet
A difference in BP on the different arms(or legs ) can be related to the aorta or heart.Blood pressure is usually higher on the dominant arm(usually the right) normally so depending on which arm it was it might not be a huge difference.
If it is related to tumour pressure that would be unusual and I dont think we have had that presentation before.
I hope your mum picks up quickly and is able to go home
I remember him on the horse! he seemed like a game for anything sort of bloke.I doesnt feel like 3 years ,although we have all been through a lot together in these last few years
love from your friend Janet
Good luck from me to you both..from the other side of the planet .., we are a big worldwide family here
Kindest regards Janet
I still miss her a lot,she was so funny always and so interested in all of us and our families.We both loved swimming in the ocean.
My kindest regards to you Hans
ps Lainy,Im not sure if sweet is the right adjective for Kris,she was pretty outrageous really!...and we loved it
Mandy it certainly is difficult as a partner and rather overwhelming at times and when you have a busy household with kids you do feel this huge sense of crippling responsibility and concern for the future.
I think counselling is really helpfull ,as a couple or separately.I t is important that he goes to the important apointments but for the chemo and some of the others perhaps a friend or other family member could go with you.You need to access as much family/community support as you can because your family needs it and your husband needs support too,he may be feeling a bit burnt out.
Hopefully your marriage will evolve and strengthen as this all plays out...but it will never be the same,you will all be changed as a result of your experiences but you will come through together
Hi there Mandy and welcome.We do have a few members from Australia here to keep you company.I think you have done pretty well,what hospital were you treated in? its good to know for any future enquiries we might have.
The treatment you have had sounds all good,what the future brings who knows but the surgery gives you a good chance
I dont wear my wedding ring now.My husband has been gone for three and a half years and I dont remember when I took it off,after a couple of years perhaps...I just felt like removing it at that point so did so. My mum at age 80 still wears all her rings and my dad has been gone for 10 years AND she has a man friend these days.....so it is very individual really.
take care Janet
Posts found: 1 to 25 of 451