Tess wrote:

Hello Asif, two leading cc specialists at Mayo follow:

Dr. Gregory Gores
gores.gregory@mayo.edu

Dr. Boris Blechacz
Blechacz.Boris@mayo.edu

Appointment Office For Mayo Clinic (Rochester Minnesota)
1-800-446-2279 (toll free)
507-284-2111 (advanced appointment desk)

507-284-8884 (Mayo International Office- they'll set up appt. for international patients)
Open 7:30-5:00 Central Standard Time

Asif, as you are calling/visiting from Pakistan, you'll want to use the international patient number.

Wishing you the best,

Tess

Dear Tess,

I am really thank full to your efforts.

Best Regards
Asif

devoncat wrote:

If you look under the section Newly diagnosed (very top of the page) there is a section on major cancer/treatment centers and there is contact and other information  there.

Kris

Thanks kris,

I know the newly diagnosed section there is contact information but i need first to discuss my case with specific doctor because i have contacted in Singapore and the heapatobilliary surgeon refuse that he cant do surgeroy now.
and about newly diagnose section or any other medical web site they said come to hospital and take the appointment. And you know how much is the expenses only travel from Pakistan to USA or UK with residence approximately US$ 40 to 50K so How i can bear all these expenses only for appointment and after doctor will said sorry we can not do any thing.
Yes if doctor will said ok we can do any thing come here we should travel to anywhere.
So now i think you understand to my point of view.

Regards
Asif

Dear All members

I need the specific information for cholangiocarcinoma treatment in John Hopkins Hospital and Mayo clinic. If any body knows Hepato Biliary Surgeon and Oncologist(Cholangiocarcinoma) of John Hopkins and Mayo Clinic kindly send me the email and direct phone number.
I am leaving in Paksitan so I need to travel USA if they (docotr) say yes you can treated us so please send me the contact information i need to contact them urgently.
for case history pleasego to below link
http://www.cholangiocarcinoma.org/punbb … hp?id=3049

Thanks
Regards
Asif

Dear All members

I need the specific information for cholangiocarcinoma treatment in John Hopkins Hospital and Mayo clinic. If any body knows Hepato Biliary Surgeon and Oncologist(Cholangiocarcinoma) of John Hopkins and Mayo Clinic kindly send me the email and direct phone number.
I am leaving in Paksitan so I need to travel USA if they (docotr) say yes you can treated us so please send me the contact information i need to contact them urgently.
for case history pleasego to below link
http://www.cholangiocarcinoma.org/punbb … hp?id=3049

Thanks
Regards
Asif

All Members.

My name is Asif Iqbal.
My brother has diagnosed Cholangiocarcinoma for detail pelase read at
http://www.cholangiocarcinoma.org/punbb … hp?id=3049

Here My doctor adviced to us should find any expert hepatobiliary surgeon for surgery becase they can do any successfull in this.
So I request to all members please help me for this and also suggest me any other surgical treatment please.laso can give me email adress of that doctors or any patinet who use this surgeory.

Best Regards
Asif Iqbal

hi Violarob .

My brother diagnosed CC and I need you help regarding MD Anderson Hospital and CC.
Please contact me through email or give me your email address i want send you all reports and case history.
Kindly reply me soon.I shall be very thankful.
anishaq2@gmail.com
theasifiqbal@gmail.com

Regards
Asif

debrah wrote:

Asif,  I have not been on this site in a while but just noticed you had asked for Dr Jenkins email address.  His email is:  Roger.L.Jenkins@Lahey.org      I am also his patient...and fellow cc survivor!  He and his staff are miracle workers.  Best wishes to you and your brother.   debbie

Dear Debrah.

Thanks for your reply and help me for DR.Jenkins Email address.

Best Regards
Asif

mahipal33 wrote:

Dear asif
i have send you an email giving my opinion about your brother. No one can tell you as how long any body survives. there are many factors attributed to life and death. CC In india and pakistan is rare . its the very old  psyche  and old teachings  in 80s and 90s. there are lots of changes in the management  and early detection of the case which cures or prlonges the life  un heard in india and pakistan  by yesterdoctors. Iam the living example with CC  detected in 2007 july resected in march 2008 and living with perfect health and work.  i had trekked 15000 ft nathullpass last oct08 and even till this day doing marathon walks of 25k every month  and mind you never rested  but for the 4weeks during surgery . its the attitute that is every thing . be positive .  Dr Mahipal reddy

Dear DR.Mahipal

I am really very thankful to your detail answer and very positive thinking to hope fully for my brother.I pray for you GOD will give you long and healthy life.

Regards
ASif

mahipal33 wrote:

Dear Asif  my email addresse is mahipal33@gmail.com

Dr.Mahipal reddy,

I have sent all the reports on above ur email.

Thanks
Regards.
Asif

10

(20 replies, posted in General Discussion)

Kristin wrote:

Dear Asif,

When doctors say that your brother will live only 4-6 months, please remember that doctors aren't God-- they don't KNOW how long we will live, they can only say what usually happens. Doctors once told me I had 6 months to live, but that was three years ago.

Sending all my best wishes to you and your brother!

Kristin

Dear Kristin,

Thanks for reply and Pray. Yes GOD can do any thing and I hope GOD will help me for longer life of my brother.

Asif

11

(20 replies, posted in General Discussion)

mahipal33 wrote:

Dear Asif
as per your letter the way it looks your brothere might have diffuse metastasis in the liver and lymphnodes which might have been the reason for aborted attempt of surgery at chennai. if you can send me the reportsof  ct /mri /mrcp/ any biopsy with HPE reports  then i can comment on the case . any way  my good wishes r with your brother in this dark arena of the disease . i hope for a good light  of hope at the end of the tunnel of cc
Dr.Mahipal reddy

Dr.Mahipal reddy,

Thanks for reply and prayer for my brother.
I can send you all the reports through email.
Kindly contact me through email at
theasifiqbal@gmail.com
or send me your email.

Thanks
Regards
Asif

12

(7 replies, posted in General Discussion)

Hi Kay

As per Internet searches and my docotrs advices me CA 19-9 test never come eaxctly and very help full some time for a infection the level can be increase you can search it in internet and you can find lot of things about CA 19-9.
But here is good news you dad has passed 2 years.
Asif

13

(20 replies, posted in General Discussion)

marions wrote:

Asif.....Phone: (781) 744-2500  Fax.: (781) 744-5743.  You will be in touch with Julie Doyle, the administrator for Dr. Jenkins. 
Good luck,
Marion

Thanks

14

(20 replies, posted in General Discussion)

Mario and other members.

I want also one thing that here in Pakistan and India Doctors are saying the life of Cholangiocarcinoma patient is 12 to 18 months maximum and my brother has passed 12 months after first diagnosed so they are are saying its enough now your brother life is not more than 4 to 6 months. So I requested all of you can you let me know exactly or atleast as per your expereince and knowledge how much is life expected of cholangiocarcinoma patient and specially after reading my brother case for him.
Thanks all of you.
Regards
Asif

15

(2 replies, posted in Introductions!)

devoncat wrote:

I am sorry your brother is facing this. It is hard on family and friends as well. I had a very wonderful surgeon in Edinburgh at the Edinburgh Royal Infirmary...his name was Professor Garden. It is a wonderful  place. Other people in Britain have highly reccommended Prof. Lodge (I think in Liverpool?). I now live in Sweden and really cant recommend anyone here...I feel like I am teaching the doctors about this cancer.

There are several good centers in the US and if you look under the section newly diagnosed, there is a list of hospitals that have experience in treating this cancer. Many doctors will accept your brothers medical files  and scans and offer an opinion without meeting you. Just contact them or their department with the information.

I hope you find what you need.

Kris

Kriss
Thanks for your reply and  detail information.
I will contact them through newly diagnosed section.
And if you find any update kindly emial me.
Thanks
Asif

16

(20 replies, posted in General Discussion)

marions wrote:

Asif....I am so sorry to hear about your Brother but, I am happy to see that you have found us.  Do you have all medical records availble such as, blood tests, CT scans, doctor's reports, etc?  If so, then you might want to get in touch with Dr. Jenkins.  Others may have suggestions, also.
Dr. Roger Jenkins
Lahey Clinic
Burlington, Mass
(781) 744-2500
Julie Doyle
Administrator

Good luck and keep me posted.  Let me know if you need additional help. 
Marion

marion
Thanks for your reply I am really very happy to see ur reply.
If you can send me email address of Dr. Roger Jenkins I will send him as well if you need. I can send you through email all reports.
my email is theasifiqbal@gmail.com
Thanks
Asif

Dear All members.

I am new here My Brother name Mr.Iftikhar Ahmed age 43 years.
He had been working in Jeddah-Saudia Arabia Since last 15 years. IN LAst August 2008 Diagnose Jaundice Total Biluribbon was 16 Drs adviced him should admit and after ultra sound and ERCP they Found a blockage in Bil Duck and suppose may be its Tumor and its Cholangiocarcinoma.
We decided should back to Pakistan and we will go to Singapore India or any other good place but unfortunately when he was coming Dr.Inserted 2 Metallic Stent for Bile passing ( Now I have read stent place in last when Doctor decided nothing is possible). IN Pakistan lot of Doctors advice should go to India there is good facilities for Liver transplant and surgery so They went to India Apollo Hospital Chennai In October. Doctor took Surgery but they failed in operation and after that they decided now he is better and can go his home country.IN March 2009 Again Jaundice and after CT scan Structure increased and again blockage so IN Pakistan Doctor again insert third stent for bile passing but recently LFT shows problem in bile passing and jaundice is continue at same level 12 to 13.
Now I requested all of you member specially who are leaving in USA and Uk Please contact me and discuss My Brother case with your docotrs and take advice now what is possibilities if they think still any thing is possible we can move any where but should be confident that what can be happen now?
I shall be very thnak full all of member efforts please do some thing for me and for my brother you all are hope for me and my Brother.
Please reply me I can send you all reports through email.
theasifiqbal@gmail.com.

Please contact me and help me.
Asif Iqbal

18

(2 replies, posted in Introductions!)

Dear All members.

I am new here My Brother name Mr.Iftikhar Ahmed age 43 years.
He had been working in Jeddah-Saudia Arabia Since last 15 years. IN LAst August 2008 Diagnose Jaundice Total Biluribbon was 16 Drs adviced him should admit and after ultra sound and ERCP they Found a blockage in Bil Duck and suppose may be its Tumor and its Cholangiocarcinoma.
We decided should back to Pakistan and we will go to Singapore India or any other good place but unfortunately when he was coming Dr.Inserted 2 Metallic Stent for Bile passing ( Now I have read stent place in last when Doctor decided nothing is possible). IN Pakistan lot of Doctors advice should go to India there is good facilities for Liver transplant and surgery so They went to India Apollo Hospital Chennai In October. Doctor took Surgery but they failed in operation and after that they decided now he is better and can go his home country.IN March 2009 Again Jaundice and after CT scan Structure increased and again blockage so IN Pakistan Doctor again insert third stent for bile passing but recently LFT shows problem in bile passing and jaundice is continue at same level 12 to 13.
Now I requested all of you member specially who are leaving in USA and Uk Please contact me and discuss My Brother case with your docotrs and take advice now what is possibilities if they think still any thing is possible we can move any where but should be confident that what can be happen now?
I shall be very thnak full all of member efforts please do some thing for me and for my brother you all are hope for me and my Brother.
Please reply me I can send you all reports through email.
theasifiqbal@gmail.com.

Please contact me and help me.
Asif Iqbal