wonderful news lainy..we are happy for you xxx

2

(4 replies, posted in General Discussion)

tom is having a very hi pieptone in his ear..and has also neuropathy in his feet.. the feet is better but the ears are not.. but not everyone is the same

3

(4 replies, posted in General Discussion)

hi dan

my husband has also hearing loss,and the onc say it wil not get better..tom have 2 cicles of cisplatine, and he had too stop the chemo..

god bless moontje

4

(5 replies, posted in General Discussion)

thanks kris & marion..we will ask the onc..

5

(5 replies, posted in General Discussion)

hello big famlie,

tom wil have his second round of gem/cis next friday. he tolerated very well, only he is very hungry all the time, and must eat something.. if he do"nt do that he gets very nerveus,trembling hands and body.he isn't sleeping very well. and complaining about higher back pain.. he is very strong and i am proud of him..

we want all of you to wisch you a merry christmas and a happy newyear.

tom &moontje

6

(5 replies, posted in General Discussion)

thanks for the information, it is indeed very difficult to make a choice... but the cancer is microscopisch so must we do the chemo now or later if the scan detected tumors... is the chemo better when there are microscopische cells ...or when there are tumors??? please advice us... tom is not sick he feels like he can do everything ....

again thanks very much to you all,for the advice..   tomorrow whe are going to see the dokter and onc.. hope they give us more information.. and whe let you now what they say..

god bless moontje

7

(3 replies, posted in General Discussion)

hello patzel,

I am very sorry that you are in the same situation..it is desirable in germany but not in holland..does chemo help i don'nt now.. its frustrated not nowing what to do.how is your boyfriend  fealing? does he also have a R1 resection stage T3,N1, V0, R1.

god bless

moontje

8

(5 replies, posted in General Discussion)

hi marion,and pcl1029

the  T.N.M.classification is..G2,ypT3,pN1 (2/7), L1,V0,pN1,R1 the onc says that  the chemo will not help to be cured or to live longer!!! there are no evidence of that in the hole world..
that is what they say in holland. in germany they say to give us a chance.. 2 different options whe don't now anymore what to believe..and what the best thing is to do..

thanks

gr moontje

9

(5 replies, posted in General Discussion)

hello everyone,

its bin a rollercaoster...in october tom had 70% of his right liver removed...microscopic he has rest tumor.. they advised adjuvante chemo.. in holland they wont give the chemo ... the dokters and onc gives us not good advice..what to do...its almost they have given up on him...what must we do... the insiurence want pay the chemo.. dont now how much money it wil be for chemo... i think a lot of money... we are so scared... help us please what to do...

thanks everyone moontje

10

(3 replies, posted in General Discussion)

hello everyone,

its bin a rollercaoster...in october tom had 70% of his right liver removed...microscopic he has rest tumor.. they advised adjuvante chemo.. in holland they wont give the chemo ... the dokters and onc gives us not good advice..what to do...its almost they have given up on him...what must we do... the insiurence want pay the chemo.. dont now how much money it wil be for chemo... i think a lot of money... we are so scared... help us please what to do...

thanks everyone moontje

11

(7 replies, posted in General Discussion)

hello everyone,

tom his operation is tomorrow at 7 in de morning..60% of the right liver.. hope everything is going to be ok.. i will let you all now how he is doing after the resection.. thanks to all xxx

greetz moontje

12

(4 replies, posted in General Discussion)

HELLO EVERYONE,

TOM HAS HAD HIS EMBOLISATION EVERYTHING WENT WELL, BUT THE LAST SCAN SCHOUWED ANOTHER THING BETWEEN THE LIVER AND BELLY OUTSITE THE LIVER... THEY WIL GO FOR A BIOPT OF THIS IF IT IS A TUMOR THEY SAY THAT THE BIG OPERATION ON THE LIVER IS THEN NO OPTION... AND HE WILL GET CHEMO ....WE ARE SO DEVESTATID OFF THIS ALL EVERYTHING IS GOING WRONG... WHAT MUST WHE DO I DON"T NOW, LET ME PLEASE NOW WHAT TO DO...IS THIS THE END.....

GOD BLESS YOU ALL MOONTJE

13

(6 replies, posted in General Discussion)

THANKS EVERYONE, FOR THE INFORMATION. WHE WILL KEEP ARE HEADS UP AND GO FOR IT.
POSITIVE THINKING IS SOMETHIMES HARD,,TOM IS A VERY STRONG MAN.. I LOVEYOU  HIM SO MUCH AND WIL STAND BY HIS SIDE ALL THE WAY.

THANKS AGAIN FOR THE INPUT YOU ALL GAVE TO US,,AND LET YOU ALL NOW HOW TOM IS DOING AFTER SURGERY..OKE!!!

GREETZ MOONTJE XX

14

(6 replies, posted in General Discussion)

hello everyone, tom his cancer is back. after 5 years. at the moment he has a embolisation of the vena porta,and about 2 weeks he wil have a resection of the right lobe of the liver 60%.
the tumor is very small,but it is on the same side as a klatskin. is it better to get chemo or radiation before the operation or not, and after??? wll he for ever be cured,after resection or does it always come back..whe are so afraid again.. thanks everyone for being there for us.

moontje

15

(6 replies, posted in General Discussion)

hello everyone..
bad news!!! the cancer is back after 5 years... it is a metastase from the the tumor that tom have had 5 years ago..it is very small,
we have to wait 8 weeks to see if it is grow bigger..because only the pet scan see it..then he must go onder the mri..
they say we want to cut it out from the liver... but it must be bigger. then we can see where to cut... any suggestions are welcome
we are so scared..5 years ago they send us home cancerfree and now it is back..i don't think he will  ever be cured about this cancer.

thanks everyone and god bless you all

moontje

16

(4 replies, posted in General Discussion)

HELLO EVERYONE!!!!

THE SCAN SHOWS SOMETHING IN THE ROUX Y LIS ..WHAT GOOD IT BE!!!
TOM HAD A OPERATION 5 YEARS AGO OF DISTAL BILEDUCT TUMOR...THEY MADE A ROUX Y LIS  OF DUONENUM IN TO THE LIVER...CAN IT BE CANCER AGAIN...

GREETINGS MOONTJE

17

(3 replies, posted in General Discussion)

thanks marion and lainy..

the onc said there is now recidief to see on the mri..so none cancer cells detected..

greatings moontje!!!

18

(3 replies, posted in General Discussion)

hello everyone,

the onc said,we can not see on the mri, what these spots are.. it good be air from the lis thy maid to the liver...tom wil have a pet ct scan over 2 months..to look for any chainching..if not it is falls allarm..we doint no wwhat to think about it..but for now we are happy... hope it is nothing...

thanks to you all for being here for us.. and we let you all now what the scan will do in 2 monhts...
god bless you all..

moontje

19

(6 replies, posted in General Discussion)

hello lainy,, thanks for your reaction..friday we will hear more from the onc.
i will let you now oke!!

and a big hug for you xoxoox moontje

20

(6 replies, posted in General Discussion)

hello everyone..

tom his cancer is back..2 spots has been seen..in de liver,and one billarytrack in his liver is bigger as normaly..pffffffffffffff and that after 5 years cancer free.. can enyone help me what to expect..i am so helpless and my world is spinning around...

thanks moontje!!!

thanks everyone and god bless you all xxx

moontje

hello everyone!!  its bin a while....when i  posted here, but i have some great news!!! my husband tom is in 2 months 5 years cancerfree, oktober 15.. we are going to cellebrate this, 5years ago they send us home with the news that  he has one year to live!!! but take a look at us now. i post this that i want to give you some hope for you all.. and that everthing is possible. and i want to thank you for this board it helpt us to go true this,,,, thanks!!!!!!

god bless you all.... greetz moontje xxx

23

(9 replies, posted in General Discussion)

THANKS LAINY, FOR YOUR RESPONSE.

MOONTJE

24

(9 replies, posted in General Discussion)

hello micky, my husband tom is now 4 half year cancerfree, of this horreble disease.
but his brother has past 13 years ago from cc. you see everyone is different and his other siblings are very healthy. tom only got surgery, and no other treatment, and he is very healthy.now the 5 years mark wil come in oktober, and we are blessed. the docters told us,that tom has 1 year to live,and check us now. but when i was you, i would go every year for a scan, early detection is the best thing to survive this.

moontje

25

(4 replies, posted in Good News / What's Working)

thasnks everyone, we are so happy.

best wishes to you all

moontje