1

(5 replies, posted in Chemotherapy)

thank you gavin.. duke and marion

we try not to panic, but it is very hard to do not .. i let you all now what the scan says...
thanks for your input and positive thoughts...

hugs moontje

2

(5 replies, posted in Chemotherapy)

hello everyone

tom has had 4 rounds of chemo...gemox...he will have next week round 5.. and then he get a scan to see if the chemo is working.. he has a few side afects but overalll he tolerates it well.
there is a chance that the chemo is not working...my question is what to do next... when its not working?? they told us that there are now options if the chemo is not working,,,please help us what to do next... another chemo regime...or radiation we do''nt now what to do anymore...
i was thinking to get a second opinion in new york...has any of you an idee how much money it wil be.. to  do so.. and how i can arranged that...?? i am desperate at this point...and overwelming by fear..don't no what to do... i wil try everything to keep him safe and as long as possible alive...that is our gaol...7 years he is fighting this disease..ups and downs... a rollercoaster it is... but we do'nt give up....

god bless you all... greetings from holland ...moontje

3

(8 replies, posted in Chemotherapy)

thanks marion for the good information...

we are going today to belgium,and talk about 5flu and irrotecan..hope they wil start next week...

we will let you now what the plan will be..

and thanks again..

moontje

4

(8 replies, posted in Chemotherapy)

thanks lainy!!!!

5

(8 replies, posted in Chemotherapy)

hy everyone

tom is stil doing great.. he has several metastases..and we had an second opinion in belgium.
they say there is stil something to do..chemo..only gemsitabine...or a new chemo 5flu dont mow if my spelling is good...we dont now what chemo we must choose...please advice us ...in the netherlands they give tom no options...but in belgium they give us hope...
so glad with the foundation.. and all off you... thanks

moontje

6

(12 replies, posted in General Discussion)

thanks snowbord for the information...very helpfull...

we wil give it a try because there is nothing else we can do..

thanks again moontje

7

(12 replies, posted in General Discussion)

THANK YOU ALL VERY MUCH...

HAS EVER HEAR OF CANNABIS OIL... FOUND SOME GOOD THINGS TO CURE CANCER...

THAT MEN LIVES IN CANNADA AND HIS NAME IS RICK THOMPSON..WE ARE GOING TOO TRY IT...
HERE IN THE NEDERLANDS THEY CAN DO NOTHING FOR TOM , SOO WE ARE STAND WITH  OUR BACK TO THE WALL... HOPE THAT SOME ONE NOWS ANYTHING ABOUT IT..

THANKS FOR LISTENING TO US

MOONTJE

8

(12 replies, posted in General Discussion)

THANK YOU ALL VERY MUCH...

HAS EVER HEAR OF CANNABIS OIL... FOUND SOME GOOD THINGS TO CURE CANCER...

THAT MEN LIVES IN CANNADA AND HIS NAME IS RICK THOMPSON..WE ARE GOING TOO TRY IT...
HERE IN THE NEDERLANDS THEY CAN DO NOTHING FOR TOM , SOO WE ARE STAND WITH  OUR BACK TO THE WALL... HOPE THAT SOME ONE NOWS ANYTHING ABOUT IT..

THANKS FOR LISTENING TO US

MOONTJE

9

(12 replies, posted in General Discussion)

hello everyone...
has the results from the scan..

they found a tumor and several metastasen...there is nothing to do the onc says...
but can any one tell me what too do... please advice us...what to do...heartbroken.....

thanks moontje

10

(12 replies, posted in General Discussion)

hello everyone...

tom is doing great..he feels fine is fulltime working. but i have a question, he had a check up last week..and they found a lobe in his scar tisschue..and they say it is back..is it possible to have a tumor there..his blood is good, now evedence of cancer..we are so scared..next week we have the results of the pet.ct scan,and the punction..i hope some one can tell me something about it...
thanks for beiing here for us....

moontje

wonderful news lainy..we are happy for you xxx

12

(4 replies, posted in General Discussion)

tom is having a very hi pieptone in his ear..and has also neuropathy in his feet.. the feet is better but the ears are not.. but not everyone is the same

13

(4 replies, posted in General Discussion)

hi dan

my husband has also hearing loss,and the onc say it wil not get better..tom have 2 cicles of cisplatine, and he had too stop the chemo..

god bless moontje

14

(5 replies, posted in General Discussion)

thanks kris & marion..we will ask the onc..

15

(5 replies, posted in General Discussion)

hello big famlie,

tom wil have his second round of gem/cis next friday. he tolerated very well, only he is very hungry all the time, and must eat something.. if he do"nt do that he gets very nerveus,trembling hands and body.he isn't sleeping very well. and complaining about higher back pain.. he is very strong and i am proud of him..

we want all of you to wisch you a merry christmas and a happy newyear.

tom &moontje

16

(5 replies, posted in General Discussion)

thanks for the information, it is indeed very difficult to make a choice... but the cancer is microscopisch so must we do the chemo now or later if the scan detected tumors... is the chemo better when there are microscopische cells ...or when there are tumors??? please advice us... tom is not sick he feels like he can do everything ....

again thanks very much to you all,for the advice..   tomorrow whe are going to see the dokter and onc.. hope they give us more information.. and whe let you now what they say..

god bless moontje

17

(3 replies, posted in General Discussion)

hello patzel,

I am very sorry that you are in the same situation..it is desirable in germany but not in holland..does chemo help i don'nt now.. its frustrated not nowing what to do.how is your boyfriend  fealing? does he also have a R1 resection stage T3,N1, V0, R1.

god bless

moontje

18

(5 replies, posted in General Discussion)

hi marion,and pcl1029

the  T.N.M.classification is..G2,ypT3,pN1 (2/7), L1,V0,pN1,R1 the onc says that  the chemo will not help to be cured or to live longer!!! there are no evidence of that in the hole world..
that is what they say in holland. in germany they say to give us a chance.. 2 different options whe don't now anymore what to believe..and what the best thing is to do..

thanks

gr moontje

19

(5 replies, posted in General Discussion)

hello everyone,

its bin a rollercaoster...in october tom had 70% of his right liver removed...microscopic he has rest tumor.. they advised adjuvante chemo.. in holland they wont give the chemo ... the dokters and onc gives us not good advice..what to do...its almost they have given up on him...what must we do... the insiurence want pay the chemo.. dont now how much money it wil be for chemo... i think a lot of money... we are so scared... help us please what to do...

thanks everyone moontje

20

(3 replies, posted in General Discussion)

hello everyone,

its bin a rollercaoster...in october tom had 70% of his right liver removed...microscopic he has rest tumor.. they advised adjuvante chemo.. in holland they wont give the chemo ... the dokters and onc gives us not good advice..what to do...its almost they have given up on him...what must we do... the insiurence want pay the chemo.. dont now how much money it wil be for chemo... i think a lot of money... we are so scared... help us please what to do...

thanks everyone moontje

21

(7 replies, posted in General Discussion)

hello everyone,

tom his operation is tomorrow at 7 in de morning..60% of the right liver.. hope everything is going to be ok.. i will let you all now how he is doing after the resection.. thanks to all xxx

greetz moontje

22

(4 replies, posted in General Discussion)

HELLO EVERYONE,

TOM HAS HAD HIS EMBOLISATION EVERYTHING WENT WELL, BUT THE LAST SCAN SCHOUWED ANOTHER THING BETWEEN THE LIVER AND BELLY OUTSITE THE LIVER... THEY WIL GO FOR A BIOPT OF THIS IF IT IS A TUMOR THEY SAY THAT THE BIG OPERATION ON THE LIVER IS THEN NO OPTION... AND HE WILL GET CHEMO ....WE ARE SO DEVESTATID OFF THIS ALL EVERYTHING IS GOING WRONG... WHAT MUST WHE DO I DON"T NOW, LET ME PLEASE NOW WHAT TO DO...IS THIS THE END.....

GOD BLESS YOU ALL MOONTJE

23

(6 replies, posted in General Discussion)

THANKS EVERYONE, FOR THE INFORMATION. WHE WILL KEEP ARE HEADS UP AND GO FOR IT.
POSITIVE THINKING IS SOMETHIMES HARD,,TOM IS A VERY STRONG MAN.. I LOVEYOU  HIM SO MUCH AND WIL STAND BY HIS SIDE ALL THE WAY.

THANKS AGAIN FOR THE INPUT YOU ALL GAVE TO US,,AND LET YOU ALL NOW HOW TOM IS DOING AFTER SURGERY..OKE!!!

GREETZ MOONTJE XX

24

(6 replies, posted in General Discussion)

hello everyone, tom his cancer is back. after 5 years. at the moment he has a embolisation of the vena porta,and about 2 weeks he wil have a resection of the right lobe of the liver 60%.
the tumor is very small,but it is on the same side as a klatskin. is it better to get chemo or radiation before the operation or not, and after??? wll he for ever be cured,after resection or does it always come back..whe are so afraid again.. thanks everyone for being there for us.

moontje

25

(6 replies, posted in General Discussion)

hello everyone..
bad news!!! the cancer is back after 5 years... it is a metastase from the the tumor that tom have had 5 years ago..it is very small,
we have to wait 8 weeks to see if it is grow bigger..because only the pet scan see it..then he must go onder the mri..
they say we want to cut it out from the liver... but it must be bigger. then we can see where to cut... any suggestions are welcome
we are so scared..5 years ago they send us home cancerfree and now it is back..i don't think he will  ever be cured about this cancer.

thanks everyone and god bless you all

moontje