Ok gang, I need some help brainstorming some questions that I should ask my oncologist on Monday the 25th if January.
First of all, I was diagnosed in Mar of last year. Had a liver resection, my gall bladder removed, part of my bile duct and a lymph node. I followed that up with Gemzar.
During my last month of Gemzar, my CA 19-9 marker began climbing. I went from 16 on two tests to 50 something the next month to 93 the next month. In December we did a PET/CT scan and my oncologist said that I was good to go, that there was no positive in the PET and that something else could be causing the marker to climb.
That brings me to January. Last week I had a follow up CT scan and a meeting with my surgeon at Stanford Medical Center. I also presented my PET/CT scan from December. When I got to see the surgeon, he arrived with the bad news that I now how 2 spots on my lung that are a bit smaller than a pea and a spot near the lymph node area around my liver. He indicates that the lung spots are cancer and that they were PET positive on my December scan.
Now my oncologist wants me to do a CT Guided biopsy using fine needle aspiration on the porta hepatis.
This oncologist replaced my first MD who left to Washington. He seems to be disinterested at best when it comes to my condition and the treatment... and now it appears he wants to do tests that I'm not so sure I wish to do again unless he has a really valid reason. I mean... I have cancer already... do I really need to go through another painful biopsy?
So, for your help in this...
What questions should I now be asking? Some that I have on my notepad already are...
1) Why the biopsy?
2) What is our plan of attack? Chemo, Radiation?
Any others? Your help would be greatly appreciated on this.