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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 5
Thank you all so much for your support. That letter from heaven poem is so touching and made me feel better. I think I will print it up and give it to my Dad and his grandchildren. xoxoxo
My Mother passed away peacefully shortly after 11 pm on 9/30 as I held her hands in mine and told her how much we all loved her and will miss her. It was the hardest thing I ever did, but I am grateful that I was able to be with her as she passed into heaven. Her fight was truly an inspiration and I hope I can be half as strong as her! Thank you all for your thoughts and prayers. Our family has asked for donations to this foundation in her name. Please we must find a cure!!!
Well, my Mom fought for 6 years and 3 months, never once accepting her prognosis with CC. She is a warrior and an inspiration. I have been with her since she was moved into the Hospice House 11 days ago. She knew that I was there in the beginning and would respond back to me with an "I love you too" but would be in and out of confusion. She is only 66 and was otherwise healthy and strong, which is why her body is holding on so strong now. Its torturous however to see her like this. She is unrecognizable since just 11 days ago. I just want her to be at peace. It is so hard to see my Dad cry over his "sweetheart" each morning when he walks in. He retired two months ago to care for her. It's so sad that they will not be able to enjoy retirement together. She is so young and the best "Nana" anyone could ask for. One of my hardest days was holding my children close as I told them that the doctors could not do anything else to make Nana better and that she would pass away soon. So damn unfair that I have to explain cancer to a child! We need to find a cure to this deadly cancer!! Especially if it is genetic, I don't want my children to someday have to hold my hand at a hospice house and watch me fight death....
Wow! Thanks for the warm welcome, and words of encouragement. I didn't realize how much more it would mean coming from people that are actually dealing with the same battle. Its hard trying to talk to people about it when they ask, because I do not want to cry. But here, I can talk and no one knows that I have tears streaming down my face......
I'm, sitting here with my Mother in her hospital room at Johns Hopkins. She is 62 yrs old and was diagnosed with CC shortly after her tumor was found in July of 07. She underwent a work up to look for mets but when none was found, she had a very successful liver resection in March of 08 at Hopkins. She has a small recurrance that unfortuately couldn't be removed. So, we will regroup after the Holidays and decide on radiation and or chemo options. She is a very strong and determined woman facing a very scary and unpredictable future. My Father and I will be beside her to fight with her....
Posts found: 5
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