Awesome!  that worked Marion.  I see others were suffering from small font syndrome as well!

Brilliant Lainey!!  Good news to hear.
I haven't been on the board in a bit because everytime I do (including this time) the screen is super small and it's hard to read, but I could definitely read your good news!:)


(3 replies, posted in Suggestions)

Hi all,

When I log into the sight and go to the discussion board everything is really little and does't fill the screen like it used to (and is when I am not logged in). 
Anyone else experiencing this?



(57 replies, posted in Members' Cafe)

I am so sad to see this post.  Your father meant so much to so many.  He will be greatly missed.  He was so kind and so smart and  such a help to me and so many others.  My thoughts and prayers are with you and your family.


Great news Lainy!!


(57 replies, posted in Members' Cafe)

So sorry to hear about Lynn.  My thoughts are with her family and friends at this difficult time.

=Randi- … ocialPosts

Thought this was an interesting article.


Great news!  Bravo!  Enjoy all of the celebrating.



(17 replies, posted in Good News / What's Working)

Thanx everyone.  Nancy: you'll have to remind me again what normal is smile


(7 replies, posted in Members' Cafe)

So good to hear Kris!  Part time is awesome. You are amazing!


(57 replies, posted in Members' Cafe)


I do miss your wise and caring voice on this board. Hope, like Lainy, that you are occasionally coming out to this site and can feel the love and support everyone here has for you.  Hoping you are comfortable and surrounded by love.



(17 replies, posted in Good News / What's Working)

Thank you everyone!  I really did not think I would be here in 2014, much less be healthy.  I try and take each day as it comes and these past five years have been some of the most rewarding (and challenging) for me.  I met so many wonderful people on my CC journey.  Thanx again!


(17 replies, posted in Good News / What's Working)

Went for my 5-year scan on Monday and to see the oncologist today and the good news is that my scan was clear!  There was some "transient" things on the scan that seem to show on all of my scans in different places on different scans.  It has something to do with the way the contrast is picked up in my liver but doesn't represent anything other than noise on the image.  My oncologist said he is almost done with me.

I feel blessed and lucky and only wish that everyone on here could get the same good news.

Best wishes to all,

it's my 20-15-5 survivorship year and I am enjoying every minute. smile


I am so sorry to hear of your mother's passing.  I hope that soon wonderful memories of your mother replace the sadness and loss you are feeling right now.

Best wishes,


(57 replies, posted in Members' Cafe)

Think of you all often.  Sending positive thoughts your way.

Great news about the scan!  Congrats to you and great to hear.


Great news!! Thanx for sharing.


Hello Sharon and congratulations on your husband's successful resection!  Some doctors will say when they have completed surgery and had clean margins that the cancer is "gone."  No one can truly say that cancer is cured because it can be microscopic, but at different points you can be cancer free and that may hopefully be forever.

I chose to have chemo after successful Whipple surgery for extrahepatic cc.  I did not do radiation.  This is all such a personal decision for each one of us to make.  I wanted to do the chemo even tho they couldn't tell me it did anything because they told me it was very "tolerable chemo: and I wanted to do the things I could.  I didn't do radiation for personal reasons that I won't go into here.

My best advice is to get all the information you can, read what you can, and make your decision.   Once your decision is made, don't second guess yourself because it will do no good and will only cause you distress.

Best wishes for you and your husband and whatever decisions you make are the right ones for you.


Too funny Lainy!  One of the best thing my in-laws did for us was to have all their arrangements made years before they died.  We plan to do the same thing for our children and have set a goal of getting this done before our trip to Ireland in October.

Glad you worked things out about the eternal rest with Teddy!


(57 replies, posted in Members' Cafe)


I remember when I first came to this site and read your information filled posts and how comforting they were for me.  I too am a person who looks at things in a clinical way and need facts as well as comfort and you fulfilled all of those things for me.

The measure of a person is not what they have but what they give, the impression they leave on others who are lucky enough to cross paths with them.  You, my friend, are beyond measure.  You have helped so many, even when you yourself were suffering, always with dignity and care.

I too hope that you are comfortable and that your family is being taken care of. I will keep you in my thoughts and prayers.  I am hoping for peace and serenity for you.

With love and great respect,


(12 replies, posted in General Discussion)

Hey guys!

My two cents is that some people don't tell what "kind" of cancer they have because they want to be surrounded by hope and some cancers just don't come with that hope built in (like breast cancer has hope because of new treatments, etc.).  I find myself telling people, when I do tell them, that I am survivor of cholangiocarcinoma and then say liver cancer because most don't know what CC is.  People understand liver cancer because it sounds 'serious'...nobody even knows they have bile ducts!

Also, another thing that may cause people to hold back on the type of cancer they have could be because of judgment (lung cancer = you did it to yourself smoker).  Or it's in private parts (anal, colon) and people don't want to people to know.  I think Michael Douglas said he didn't say the correct cancer because the usual treatment for the cancer he had was disfiguring.  When people find out I have had 3 cancers they imagine that I am feeble and sick all the time, hopefully until they meet me!  Assumptions abound for sure.

I am a straight forward person and say it like it is for most things, good, bad, or indifferent!), but I get why others want to be private.

Sorry I haven't been around a has been all encompassing.  Working with those with addictions and mental illness is challenging for sure and I have not mastered the art of leaving work at work yet.

Glad to see all of you online when I stop by and read.  Take care all.....-Randi-


(6 replies, posted in General Discussion)


First I am so very sorry about your father's death.  Because he had CC does not mean that you automatically get it.  The fact is, many people who get CC have no family history of CC. 

Then i want to say that a lot can happen in 20 years.  There can be a lot of progress on treatment and diagnosis.  You are very aware of things, so you can be very proactive about your health.  You can adjust your lifestyle, for example, eating better, exercising more, etc.  Unfortunately none of us has a crystal ball.  You know, control the things that you can.

I am sure that doesn't make you feel any better because you lost your wonderful father to this disease and life is feeling pretty fragile and unpredicable for you right now.

My best advice is to stay in the moment, enjoy your days, love the people you love, do the things you like to do,...well you get the picture.  All things that are hard to do when you are grieving.  Take your time, accept how you feel and try not to judge it or yourself too much.

I hope that wonderful memories of your father replace your sadness soon.



(9 replies, posted in Good News / What's Working)

Wow, surfing!!  I did it once and it is damn hard thing to do.  Lots of respect here!



(16 replies, posted in Good News / What's Working)

Wow, that is awesome news Porter!  You are an inspiration to everyone on here!  Enjoy the summer.


(8 replies, posted in Introductions!)


I am so very sorry to hear about your mum's passing.  Sounds like she was quite a lady and I am sure she will be missed by many.  Take care of yourself.