1

(9 replies, posted in Introductions!)

Wow Mike!  You are a superstar.  You've had such an amazing result from your treatment.  My hope for you is that you continue to feel good and those nasty tumors stay away!

-Randi-

https://reimagine.me/magazine/hard-stuf … razymaking

Interesting article.  I related to all 10!

Hugs to all,
-Randi-

3

(11 replies, posted in Members' Cafe)

Happy Thanksgiving everyone!  Even in the most difficult times there is always something to be thankful for.  I  am thankful that this site and the people on it were there for me when I most needed them. I am thankful that I am here 5 years later and that I can reach out to others in their time of need. I am thankful for the friends I've made here and along my cancer journey(s).

Have a great day all, whether you celebrate Thanksgiving or not big_smile

So my friends, I had a re-scan after my 5-year scan in August because they saw a shadow on that one.  I was not freaked out about it because there have been these things they call THAD (transient hepatic something or other) that have shown up in different places on all of my scans.  They go away and then show up elsewhere and are really nothing, just a blood flow thing, nothing to worry about.  However, my new-ish oncologist wanted to re-scan me in 8 weeks to see if it changed.  Well it did change, it got smaller, but he still thought it shouldn't be ignored and suggested a liver biopsy or perhaps have the area  surgical removed.  I was really not on board with either of those things and he said he would bring it to "treatment team" which includes oncologists, tumor specialists, surgeons, and others.  He just got back to me yesterday and said that they all agree it is a blood flow thing and nothing to worry about.  He suggested a re-scan in 6 months. 

I was worried, but in my heart of hearts didn't believe it was a problem since I had been through this "scare" before (and opted for a biopsy which was negative).  I am so grateful that things were fine. But it is a reminder to not to just take things at face value and be sure you investigate fully before acting.

I am not out on this site as much as I have been in the past.  I think about everyone on this site often and you are all in my thoughts and prayers.

Hugs,
-Randi-

5

(27 replies, posted in Members' Cafe)

this is such happy news Lainy!!  I love your focus on happiness and seeing good things in others.

OMG Lainy!  That is exactly what I say when people say nice to see you! 

I like to assume people have the best of intentions in all things.  Helps me feel better when I make that assumption over assuming that they are being jerks.  And I don't think I need a snappy mean comeback because that makes me feel bad afterward.

-Randi-

Awesome!  that worked Marion.  I see others were suffering from small font syndrome as well!

Brilliant Lainey!!  Good news to hear.
I haven't been on the board in a bit because everytime I do (including this time) the screen is super small and it's hard to read, but I could definitely read your good news!:)

9

(3 replies, posted in Suggestions)

Hi all,

When I log into the sight and go to the discussion board everything is really little and does't fill the screen like it used to (and is when I am not logged in). 
Anyone else experiencing this?

-Randi-

10

(57 replies, posted in Members' Cafe)

I am so sad to see this post.  Your father meant so much to so many.  He will be greatly missed.  He was so kind and so smart and  such a help to me and so many others.  My thoughts and prayers are with you and your family.

Hugs
-Randi-

Great news Lainy!!

12

(57 replies, posted in Members' Cafe)

So sorry to hear about Lynn.  My thoughts are with her family and friends at this difficult time.

Hugs.
=Randi-

https://www.whatnext.com/blog/posts/8-w … ocialPosts

Thought this was an interesting article.

-Randi-

Great news!  Bravo!  Enjoy all of the celebrating.

-Randi-

15

(17 replies, posted in Good News / What's Working)

Thanx everyone.  Nancy: you'll have to remind me again what normal is smile

16

(7 replies, posted in Members' Cafe)

So good to hear Kris!  Part time is awesome. You are amazing!

17

(57 replies, posted in Members' Cafe)

Percy,

I do miss your wise and caring voice on this board. Hope, like Lainy, that you are occasionally coming out to this site and can feel the love and support everyone here has for you.  Hoping you are comfortable and surrounded by love.

Hugs,.
-Randi-

18

(17 replies, posted in Good News / What's Working)

Thank you everyone!  I really did not think I would be here in 2014, much less be healthy.  I try and take each day as it comes and these past five years have been some of the most rewarding (and challenging) for me.  I met so many wonderful people on my CC journey.  Thanx again!

19

(17 replies, posted in Good News / What's Working)

Went for my 5-year scan on Monday and to see the oncologist today and the good news is that my scan was clear!  There was some "transient" things on the scan that seem to show on all of my scans in different places on different scans.  It has something to do with the way the contrast is picked up in my liver but doesn't represent anything other than noise on the image.  My oncologist said he is almost done with me.

I feel blessed and lucky and only wish that everyone on here could get the same good news.

Best wishes to all,
-Randi-

it's my 20-15-5 survivorship year and I am enjoying every minute. smile

Carlos,

I am so sorry to hear of your mother's passing.  I hope that soon wonderful memories of your mother replace the sadness and loss you are feeling right now.

Best wishes,
-Randi-

21

(57 replies, posted in Members' Cafe)

Think of you all often.  Sending positive thoughts your way.

Great news about the scan!  Congrats to you and great to hear.

-Randi-

Great news!! Thanx for sharing.

-Randi-

Hello Sharon and congratulations on your husband's successful resection!  Some doctors will say when they have completed surgery and had clean margins that the cancer is "gone."  No one can truly say that cancer is cured because it can be microscopic, but at different points you can be cancer free and that may hopefully be forever.

I chose to have chemo after successful Whipple surgery for extrahepatic cc.  I did not do radiation.  This is all such a personal decision for each one of us to make.  I wanted to do the chemo even tho they couldn't tell me it did anything because they told me it was very "tolerable chemo: and I wanted to do the things I could.  I didn't do radiation for personal reasons that I won't go into here.

My best advice is to get all the information you can, read what you can, and make your decision.   Once your decision is made, don't second guess yourself because it will do no good and will only cause you distress.

Best wishes for you and your husband and whatever decisions you make are the right ones for you.

-Randi-

Too funny Lainy!  One of the best thing my in-laws did for us was to have all their arrangements made years before they died.  We plan to do the same thing for our children and have set a goal of getting this done before our trip to Ireland in October.

Glad you worked things out about the eternal rest with Teddy!