1

(10 replies, posted in Introductions!)

It is with great sadness and such a heavy heart that my mommy passed away.  Losing her not to CC but to pulmonary toxicity due to a lethal combination of Amiodarone & chemo.  Her cardiologist did NOT monitor her with x-rays or oxygen levels, as he should have.  She had all of the side affects and was poo-pooed by both her oncologist and radiologist.  We admitted her to the ER on Tuesday April 10th and we lost her Monday April 16th.
My heart is wrenched as I wrap my arms around this.  I know that the cancer would have eventually consumed her but it would not have been last week.
Bless all of you for the support over the past two+ years. 

Lovingly,

TJ

Hi T,

My mother also has had a lot of pain associated with this form of cancer and has been on a 50mg patch of Fentanyl.  She has now been pain free during these last few months of life that she has left.  She too wishes to be home.  I pray for you and your family.  God Bless all of us.


T

3

(17 replies, posted in Introductions!)

Thank you all so much. In two days, before my eyes, mommy seems to be having such a difficult time. She has literally been asleep since Tuesday with brief moments of waking to use the restroom or eat a little but then falls back to sleep. She was given more frequent nausea medicine, 1mg every 4 hours and then an 8mg every 8 hours. I thought the nausea meds were making her sleep but now I am not so sure. She is also on the Fentenyl patch, 50mg. That is changed every 3rd day. But that was not making her sleepy just taking the pain away. Please, help with any and all thoughts. I'm sorry to ramble but I am a tad scared.
God Bless All of You,
Tiffany

4

(17 replies, posted in Introductions!)

I called her this morning.  She did say yesterday, not knowing it was food from 7 days ago, that it would be an ER situation.

5

(17 replies, posted in Introductions!)

I don't understand why is she is throwing up food from more than a week ago.  Is there a blockage? It is breaking my heart..

6

(17 replies, posted in Introductions!)

I wrote this not knowing that it would all change today. Her chemo has been cancelled for this week due to the toxicity returning and she threw up food from 7 days ago. I left her last night feeling descent and rushed back to her today to feeling down right horrible. She is on 8/4 hour nausea medicines, dizziness pills, the pain patch, and the umpteen other meds. I'm so sad. So scared. She is feeling the same way too. I love her so much and feel almost helpless.

TJ

7

(17 replies, posted in Introductions!)

I have been quietly reading for the past few months except for the occasional post on the link @ facebook.

So many of you were such a wonderful support when we discoved that my mommy too was facing this monster.  Your stories and postings have touched my heart daily.
My mom keeps fighting but her chemo is now being used as palliative care versus treatment.  The cancer had spread to her lungs with a resection in August but it's back, stronger and bigger with many lymph nodes involved, yet again.  Her oncolgist sees that Chemo = Hope in my mommies eyes and she will complete 3 cycles before being scanned for the 13th time in two years.
She is wheezing so much and her fingernails are growing down and inward and they are so strong, it's difficult to keep them trimmed.  She also had a 70% blockage in her right artery so a stent was placed and is now taking coumadin 2x per day along with another blood thinner. 
She is also on the fentanyl patch (50mg) every 3rd day.  I was told it is stronger than morphine.
The scan will be very telling and her Dr. loves her, so I know honesty will follow.  She has already called me and told me to begin my preparations, that this last chapter will come quickly.  We have been so blessed over the past two + years and thank God every single day.
My mommy is not your typical, I am sick patient, she still drives (tho she should not), and so many other things. The chemo still makes her feel pretty lousy, even tho it has been reduced twice, but she just plugs along with it.
My Mommy is truly My HERO.  There is no other way to describe it.  I read about wanting to have such "grace and diginity" from one of you and I hope that if ever I fall ill, that I too, will be like so many that have shared your stories. 

God Bless to all of you!!!

TJ

Thank you and I am sorry about your inner ear infection.  We did go back to the GI specialst yesterday and only until I mentioned the vomitting did he then think there was an upper blockage like your pops, Jen.  She is having an upper scan on Friday.  She see's her oncologist on Thursday, as well.
She has those "great" days but most, not so much.  I am with her all of the time, trying to keep her spirits up.  Knowing that I lost my dad to CC two months ago is still heartwrenching and consumes my mind. 
We should have a better understanding after the results from both scans, she is having another Pet/CT next week too.

Jen my heart is with you.  I feel your sadness as I have watched my Hero battle this for so long.  I am blessed to have her these additional 17 months.  Life is gift and when the time comes it is then an eternal gift.  Having to think about losing both of my parents in one year to CC is mind blowing. 

God Bless all of you & I will let you know what they say.

TJ

No thoughts?  None of you???

As many of you know, my mommys cancer has popped its head again, this time to her lungs.  She started chemo again, 2 cycles, and became violently ill on Memorial Day.  We rushed her to the hospital where she was bleeding from her rectum and throwing up bile.  She is 5'/106 #'s.  While @ the hospital, they tried to perform a colonoscopy but found her left side of the intestine to be "thickened" and could not do it so she had a scan but do to throwing up she was not able to keep the contrast down and the scan was inconclusive.  After a week stay, she has returned home.  Her oncologist will re-scan her when she is up to it, I assume early next week but has stopped chemo in the meantime. 

My question is... Why is she throwing up so much bile, still?  The bleeding in her rectum has stopped. 

Lovingly,

TJ

11

(6 replies, posted in Introductions!)

Megin,

My thoughts are with you and your mommy.  Me and my mommy are fighting this same monster.  I understand your anger.

TJ

12

(9 replies, posted in Good News / What's Working)

Today, after 8 months of treatment and surgery, our mom is cancer -free!!! We could not believe our ears as her Doctor told us the news!!!!  She will be monitored closely...  We can only pray that there is a miricle for all of you that are fighting this same monster.  Please believe in the power of prayer, support, love and hope.

Tiffany

13

(2 replies, posted in General Discussion)

Hi,
It's been a while since I have posted.

Mom is still trucking along with Chemo.  She had a pet scan done which the Dr. thought she may be a candidate for Radiation because she saw some signs of shrinkage.  We were so excited.

Mom met with the Head of Radiology and he said he would take her for 6 weeks to see.  She asked him what were the chances/time left for her and he said he didn't like to give months or years but percentages. 

She was given a 10% chance to live.  What does that does that mean exactly? How long is 10%? 

Someone please share with me what 10% looks like.


Love all of you,

TJ

14

(13 replies, posted in Introductions!)

I am truly sorry and will keep you and your family in my heart and my prayers. 

TJ

15

(12 replies, posted in Introductions!)

Thank you, to All of you.  Tomorrow she is having a central line put in because of her veins being so weak, the have caused clotting and they Blow almost as quickly as they are placed.  I will show the Dr. her legs then and the following Tuesday, she begins chemo again and an oral form, as well.  I will be better prepared to fire off my questions and demand the answers. 
I guess I am in a odd spot because my mother has left my step-father (who promised to take care of her but did not) and is now living with my aunt.  I went to see her yesterday and she said "we have more company"...wow, I just thought I was family.
I  will figure this all out.  Your thoughts and suggestions are exactly what I need.  My sister has taken a back seat as well, she being the oldest, so for me to find all of you is what God wanted, so I would not be left in the dark. 

Thank you and as the questions arise I will ask away.

Tiffany (TJ)

16

(12 replies, posted in Introductions!)

I went to my moms Dr. appointment last week and here a few things that were pointed out to us.  She still is experiencing incredible pain and the Dr. said that they had to leave a lot of cancer behind.  If they removed a part of her liver and the lymph nodes that appeared to be "bad" (staged at III/2) and no spreading to other organs, what kind of cancer has been left in her?
I just don't understand.
I asked what results she was hoping to find after this first round of chemo (4.5 months) and she said nothing would be certain until another pet scan is done.
We were also told her hair would not fall out with the chemo and it is.  Is this normal?

My mom is so little (96 pounds) and still has a hard time eating tho she is being forced to eat small meals every 1 1/2 hours. The food goes right through her and that too is not comfortable.  They placed her on enzyme pills but they make her vomit.
She has also developed an almost s shaped rash on the top of her lower legs, is that normal?

Her short term memory seems to be foggy, maybe from the pain meds or not, I can't be sure. 

I have also been encouraging her to have her friends come by and she keeps saying, "when she feels better".... 

My heart is heavy, still. I have this need to be by her all of the time. I sit on the floor next to her chair and just want to feel her hands in my hair or hold her hand.  I see something different in her eyes that nobody else will admit to aloud.
I want her to come to Palm Springs with me and my sister for a weekend, which is only an hour away from where we all live. but again, "when she is better".  I don't want when she is better to be when it's too late.

Tiffany (TJ)

17

(11 replies, posted in Introductions!)

Wow!!!! That is all I can say....and a Big Thank You!!!! The breast cancer was so clean and easy compared to this one.  I will reach out to the nutrition site and to the Dr.  Being able to talk like this is simply amazing to/for me.  My Aunt has taken over the primary care due to the fact that was my mom's wishes.  I felt I had taken a back seat until I demanded to know what was wrong with her and it wasn't until this past Sunday she even named this as her beast.  Thank you so very much and as questions arise, I will be sure to post them on here.

Lovingly,

TJ

18

(11 replies, posted in Introductions!)

My mom just turned 70. And when I say the fight isn't in her, it is she is just so frail.  Please do tell what you think...

TJ

19

(11 replies, posted in Introductions!)

My mom had been complaining for a couple of years that food was not agreeing with her and that her belly ached, pain in her back and she had lost many pounds that she said was from her 1x a week exercise class.  Her primary Dr. (who by the way, was her same Dr. when breast cancer was detected 15 years ago) wanted to just monitor her.  Finally before Thanksgiving this past year, it was recommended that her gall bladdar be extracted that contained numerous gall stones.  Weeks passed and she still did not feel well.   She began doing research on the net and requested a blood test that was specific to her symtoms and sure enough they came back positive and week later she was having a part of her liver removed because she too, has this relatively quiet cancer.  She started chemo and tho it has been kept hush hush around me, for I am the youngest child @40, I have been doing my own investigation.  The chemo made her terribly ill and they are changing the meds today.  She has also started forming blood clots each time a needle is stuck in her frail frame. She is staged at III but I have a feeling that had her primary Dr. been more active this may have been contained at an earlier stage. 
I am filled with sadness in my heart. This beautiful woman who has loved us unconditionally is not in the fight mode.  I can only pray that the chemo will contain this and not allow it to go to stage IV.  I know I am not using the medical words, for this is still so new to me. 
I have been truly touched by the stories that I have read and pray that the quality of her life will be as incredible as the past has been for me with her.

TJ