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(5 replies, posted in Introductions!)

Thank you, Lainy, I sent it to him!

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(5 replies, posted in Introductions!)

My Husband was diagnosed in June '09 with cholangiocarcinoma that is unresectable, at that time he was told that his prognosis was 9-12 months.  He completed chemo (gemzar and cisplatin) in the fall and a CT was completed at that time (Dec), which his Oncologist had stated that he was staying with his same prognosis, however they may have bought him a couple of months.  Chemo (5FU) and radiation were completed earlier this year. They tell us that the radiation continues to work for approximately 2 months after treatment is complete, therefore we expect a CT to be scheduled approximately the beginning of May.  Meanwhile, I have had numerous family members (including his parents) and friends approach me to say congratulations that my husband had told them that he is not dying and/or that he has 5-7 years to live.  We have 4 daughters and they have also heard him tell these tales.  I have told them that he is in denial and that I will keep them posted.  As for his parents, I had called his mother to let her know that he is taking a couple vicodin over his morphine every day and that he was in denial.  She got very upset with me that he would tell his family members a lie, I tried to explain that as long as he was taking his meds and living a quality of life that him being in denial was fine and that he would accept it in his own time.   My concern is that today is 9 months and it's been months that he's been in denial, recently he even tried to tell me this also.  I have been with him to every appt, no one has told him this.  Several years ago he was also diagnosed with Bi-Polar and Narcissism and he has been violent.  The anxiety I fear is that anger and mania may coincide.  He recently had a dream and woke up strangling me, these are his words that he told our 2 youngest daughters and myself, I actually slept through it.  I sleep on the couch now and he continues to work 12 hour days 6 days a week.  Not sure what to do or what to expect, please help!