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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
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Thank you, Lainy, I sent it to him!
My Husband was diagnosed in June '09 with cholangiocarcinoma that is unresectable, at that time he was told that his prognosis was 9-12 months. He completed chemo (gemzar and cisplatin) in the fall and a CT was completed at that time (Dec), which his Oncologist had stated that he was staying with his same prognosis, however they may have bought him a couple of months. Chemo (5FU) and radiation were completed earlier this year. They tell us that the radiation continues to work for approximately 2 months after treatment is complete, therefore we expect a CT to be scheduled approximately the beginning of May. Meanwhile, I have had numerous family members (including his parents) and friends approach me to say congratulations that my husband had told them that he is not dying and/or that he has 5-7 years to live. We have 4 daughters and they have also heard him tell these tales. I have told them that he is in denial and that I will keep them posted. As for his parents, I had called his mother to let her know that he is taking a couple vicodin over his morphine every day and that he was in denial. She got very upset with me that he would tell his family members a lie, I tried to explain that as long as he was taking his meds and living a quality of life that him being in denial was fine and that he would accept it in his own time. My concern is that today is 9 months and it's been months that he's been in denial, recently he even tried to tell me this also. I have been with him to every appt, no one has told him this. Several years ago he was also diagnosed with Bi-Polar and Narcissism and he has been violent. The anxiety I fear is that anger and mania may coincide. He recently had a dream and woke up strangling me, these are his words that he told our 2 youngest daughters and myself, I actually slept through it. I sleep on the couch now and he continues to work 12 hour days 6 days a week. Not sure what to do or what to expect, please help!
Posts found: 2
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