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(24 replies, posted in In Remembrance)

Here is the website to Patty's tribute
Ted

http://videos.lifetributes.com/?id=13054#

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(24 replies, posted in In Remembrance)

Cathy and Gerry and all my wonderful family here.  Patty died three weeks ago today and it seems like three years.  My heart aches beyond words for my beautiful love.  Patty use to say that God always brings something good from things that seem so terrible at the time.  I reminded her how much of a spiritual inspiration she was to everyone that she came in contact with.  Through our post, I tried to convey the wonderful strength she was to me and the strength she immulated to all around her.  I believe that this was the good that has come from her experience as she knew that we would all meet again.  Through it all, she always had that beautiful smile.  This year, Christmas is a difficult time for me.  Every carol I hear and every Christmas tree I see remnds me of the wonderful times we had at Christmas but I am still drawing strength from her memory and the strength that she had right up until the end.  I hope you all have gone to the website that has such a wonderful tribute to my dear sweet Patty.  It will only be there for a few more days.  She loved you all as I do also.  I am wishing all of you a wonderful Christmas.  Hold your loved ones close. 

Patty's Song



A life is like a song we write

In our own tone and key,

Each life we touch reflects a note

That forms the melody.



We choose the theme and chorus

Of the song to bear our name.

And each will have a special sound,

No two can be the same.



So when someone we love departs,

In memory we find

Their song plays on within the hearts

Of those they leave behind.



And when I hear the sweet birds call,

Or the whispering of the breeze.

I know that Patty's sweet song of love,

Is whispering her love song to me.

Ted

3

(24 replies, posted in In Remembrance)

Dear loved ones,
Today I was alone most of the day with my thoughts and my memories of my precious Patty.  The memorial service was beautiful.  It was a service that Patty would have been very proud of.  I miss her so much already.  She is everywhere I look.  She is present in every thought.  I hear her soft voice telling me that she loved me.  I know that time will bring healing.  I know that all of you that grew to love her will miss her also and if I shed a tear once in a while when I talk about her, I know that you will understand.  Your Prayers and love will always be with me also.  Thank you all for being a part of mine and Patty's life. 
Love and God Bless,
Ted (and Patty)

To see a beautiful tribute to Patty, please go to the the link below. It will be on the website for 28 days from this date. 
http://videos.lifetributes.com/?id=13054#

Dear friends,
I have a hole in my heart right now that surgery cannot mend.  My beautiful Patty breathed her last breath November 26, 2007.  She went to sleep peacefully after telling me the morning before that she would love me forever. I sat beside her bed and held her until her final breath.  She had her beautiful smile right up until the end.  She will forever inspire me to remember that there is still beauty and love in this world.  Patty fought valiantly for one year before cc took her life.  She grew to love each one of you, as I would read all the new post to her.  Patty had a sparkling personallity and a childlike ehthusiasm for all of the wonderful things of life.  Her firm belief in the Lord Jesus Christ and  eternal life caused her to have no fear of death.  She went to her death with the excitment that we would meet again on that resurrection morning when all tears will be wiped away and we will be together again for eternity.  Mine and Patty's prayer is that each one of you will stand firm in that belief and someday in Heaven, we will all meet and know that it was all worth it.  We love you all.
Ted  (and Patty)

Dear UK Wife,
Your Husband's experience struck a chord with Patty and I.  It has been almost a year now since Patty was diagnosed with cc.  She decided to not have any chemo either.  We studied a lot of the alternative supplements that are out there and Patty has been on IP-6 and AHCC and several mushroom extracts.  Also she drinks fresh carrot juice.  We are about to start on another supplement.  It is called Avemar.  It has some good reports.  Her tumour has been contained  and several CT scans have shown that there is no mets.  We wish the best for your husband as we fight this cc battle together. 
Ted and Patty

Hello dear loved ones,
I know that you are wondering how Patty is getting along with her fight with CC.  We are thankful to the Lord for each day that we have together.  As you already know, when she came home from the hospital over a month ago, she was put into the care of hospice.  She was classified as critical care by hospice for the first week. Now hospice is constantly available if we need them and are just a phone call away. They have been so very caring and compassionate.  Patty continues to keep enough strength to get up and walk around some and has an appetitte, although she has nausea part of the time. She is able to eat several small meals each day.  Our greatest concern is the Acites fluid in her abdomen that continues to build and it is time to have it drained again.  This procedure will be done this coming week. 
We continue to ask for your prayers for healing.  We know that the Lord, in his wisdom and love, has seen fit to give us more time together.  It is wonderful to know that there are so many that are praying for us.  Patty's spirits are good and her smile is bright as always.  We both cling to God's promises that He will be with us in all things.  Heaven is only a prayer away.  We love you all.
Love and God Bless,
Ted and Patty
Ted and Patty

Dear ones,
Patty is home now and in the care of Hospice.  We are so thankful for them.  Now the ascites fluid has been building and they drew off 3 liters last week. 
Today we are thankful for this day, this minute.  We tell each other all the time that we have this minute, right now and we thank the Lord for this minute.  Patty is weak and eats very little.  She has nausea a lot of the time.  On the good side, she is able to get up and walk around some and her eyes and that smile are as beautiful as always.  She had a really great surprise birthday party Sunday with a cake and candles and a Balloon that sings happy birthday and friends that came over.  Thank you for all your birthday wishes.
Hospice is now on an "as needed" basis.  They have been so wonderful.  All of you have been so compassionate and loving beyond words.  We believe that your prayers are sustaining us.  We keep reminding ourselves of that beautiful day when we will all be exclaiming our praises for our Dear Redeemer and Saviour as we make the journey with all the angels on our way to Heaven.  We get so homesick for Heaven and as the song says, "We Have Finally Made it Home".  We love you all. 
Love and God Bless,
Ted and Patty

Dear caring loved ones,
I just want to send an update on Patty.  She is still in the hospital and not doing  well.  She is weak and only gets up for the bedside potty.  She has several infections and low potassium and albumin and total Protein.  She still has not eaten anything and is living on the IV  TPN and Lipids.  She did take a few sips of apple juice this evening and kept it down.  Dr. Gurino told us today that she could come home anytime she wants to, in the care of hospice.  Dear ones, when the way seems the darkest, we are finding strength from the light of God's love.  Heaven is not an alternative,  it is everything. 
Love and God Bless,
Ted and Patty

Dear caring loved ones,
I just left Patty a few minutes ago.  Her surgery went well without complications.  She was resting comfortably, with the help of pain medication.  She was in surgery three hours.  The doc said he felt good about the outcome of the surgery.  She was coming out of the anethesia pretty well when I left.  He said she still won't be able to eat for several days and might be in the hospital until the beginning of next week.  Your love and prayers and support are continuing to help see us through Yet another crises
Love and God Bless,
Ted (and Patty)

Dear fellow CC fighters,
Your posts  bring us so much strength and comfort.  I wish that I could tell you that all is well with Patty.  The news is not good though.  After an EGD ( a scope in her stomach) this morning, it was discovered what is causing the blockage.  The tumor in her bile duct is growing and is pressing against her stomach and has completely blocked the opening to her intestines and nothing is flowing.  She has a gastric tube in place to keep her stomach empty.  She is scheduled for surgery Monday at 1 pm to bypass the tumor and create an opening so food can move from her stomach to her intestines. 
She has a pic line in place and they are feeding her TPN nutrients.  She has to stay in bed due to all the lines she has running everywhere. If all goes well, the doc said she would probably have a week recuperation from the surgery.  He said that the surgery would probably take about an hour with a three inch incesion.   Dear loved ones,  I can't imagine going through this ordeal without the Lord at our side. Patty still has her bright smile.  She knows where her eternity is.  May we all be there together.  What a day that will be.!!   
Love and God Bless,
Ted and Patty

Dear LD,
It is so sad to read of one of our "friends" losing the war with this terrible desease.  Patty and I count each day that we have together, as a blessing from the Lord.  She too, was diagnosed in Feb.  She has been getting weaker and it breaks my heart to see her going down hill.  LD, there is one bright spot that we, as Christians have.  It is the belief that someday we will be together again with our loved ones and live throughout eternity with them where there will be no cc or any other cancer to rob us of our loved ones.  Our prayers are with you and your family during your time of sorrow. 
Ted and Patty

Dear Lisa,
There is one thing for sure, you are among friends here.  Friends that understand and care about what you are going through right now.  My dear wife, Patty, was diagnosed in Febuary and we have been living "one day at a time". She is 61 years old.  For the first three months, she experienced much of the same things that your dad is going through right now......  unsucessful surgery, nausea, loss of weight.  I thought, several times, that I was going to lose her during that first three months.  I am happy to tell you that there is still hope that your dad will have some good quality time if he can get the symptoms under control.  Patty had the stents placed in march and she began a gradual but steady improvement in her overall health.  She decided right from the beginning that she would not have any chemo or radiation.  She wanted quality of life rather than quantity of life. I have been behind her completely in her decision.  For the last four months her overall labwork has been excellent, except for her CA19-9 which has been steadily climbing.  She is on IP-6 and AHCC plus other supplements and lots of carrot juice.  We have been enjoying doing regular activities such as eating out and going to church regularly.  She has not been to a doctor since March as we would just rather "take it as it comes". 
I tell you all of this just to let you know that it is possible that your dad could have some good time ahead.  Enjoy each moment with him and thank God for those moments.  Patty and I put our complete trust in God and know that he is in control.  We know where our eternal life will be together. 
Take hope LIse and our prayers are with you.

Ted and Patty

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(10 replies, posted in General Discussion)

Rae,
Patty was diagnosed Feb 2, 2007.  Unresectable  CC.  From the very beginning, she was against chemo or radiation.  Stents were placed in march and since that time,  Patty has not been to a doctor nor had any scans or even talked to  any medical professionals about her CC.  She does not want to know what is happening.  She takes lots of supplements including AHCC and IP-6 and lots of carrot juice.  She is a vegan vegetarian.  She has regained all of her weight and feels well and has a good quality of life.  We depend heavily on God for our strength for we do not know what may lie around the next bend in the cancer road.  I am a lab tech and I run lab tests on her once a month.  They all seem to be improving.  Where there is life there is hope.  Each person that is fighting this terrible desease must make their own decision as to go with chemo or not.  I believe Patty has made the right choice.  WE ARE ENJOYING Life and that is what matters.  Our prayers are with you. 
Ted and Patty

14

(1 replies, posted in General Discussion)

Abigail,
Patty has been taking  3 grams of AHCC per day.  Yes,  the healthfood stores are expensive.  We found a place that we get all of our supplements, including IP-6.  You might want to research that also.  Here is the website where we get our supplements. 

Ted and Patty

http://www.vitacost.com/NSI-AHCC-Immune-Booster

Peter,
I could not hep but reply to your questions about AHCC.  I am sure the you have read some of our posts where we have mentioned AHCC.  Patty and I can only use our own experiences with AHCC as a source of comments.  I have researched all I can read on the subject and it all sounds good as the research says that there are at least "700 hospitals overseas, (mostly in Japan)" that are using AHCC with a good success record.  I can assure you that we are not promoting it.  We just would also like to hear of others that might be using it.  Patty is taking 3 grams daily taken morning noon and night.  The amount taken will be increased if the CA19-9 does not come down.  Patty is also taking 16 grams of IP-6 daily. She also takes Shitaki and Reishi mushroom extract.  As you probably know from our recent posts, Patty has had no chemo or radiation since her diagnosis and we are relying completely on supplements and lots of carrot juice. This puts her in a unique category as most everyone on this site resorts to chemo and raditaion.   She feels good and has a good quality of life.  She is in her seventh month since diagnosis.  You mentioned the high cost of the supplement.  We get ours from Vitacost.  We would also love to hear from others that are taking these supplements. 
Ted

Diane,
Patty was in the hospital  four times over a period of two months for unsuccessful resection and to replace stents which had caused numerous infections.  During her time in the hospital, she experienced some of the same symptoms that your husband is experiencing.  The docs narrowed it down to a high  blood ammonia level.  She was treated for the high ammonia level and in a few days her mental state returned to normal.  I just wanted to throw this out to you as a possibility.  May the Lord be with you and your husband as you battle this terrible cancer. 
Ted and Patty

Kelly,
No, Patty did not participate in the Davanat trial.  She opted to not have any chemo or radiation.  She has been on heavy doses of IP-6 and  AHCC plus several other  alternative treatments.  She is feeling well most of the time.  She does experience the "unexplained " fever about once or twice a month that lasts for three or four days and then  goes away.   Her CA 19-9 has just recently elevated from 550 to 2475.  We are just taking it one day at a time.  Patty's quality of life is good.   Patty and I  pray for the best for your dad.
Ted

18

(12 replies, posted in In Remembrance)

Bob's wife,
Patty and I are so sorry to hear of your loss.  We also feel the closeness of this group and there are not enough words to describe the support that we feel, knowing that we all are pulling together.  You WILL see Bob again someday when the great Healer comes  to take us  to that  heavenly home where we can live throughout eternity with the ones we love.  Please know that we are feeling your grief.  May God give you strength to get through the days ahead. 
Ted and Patty

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(5 replies, posted in Introductions!)

Dear Chris,
As Patty and I read your post there were tears in our eyes as we felt your pain and dispair.  For you see, my dear wife, Patty went through some of the same experiences in Febuary and March of 07.  You may read our posts  in the "Experiences" section  called "Loving each other , one day at a time".  I just want to let you know that  duing this time  soon after her initial surgery and the aftermath of replacing stents four times, Patty was very sedate and slept most of the time.  She also kept her eyes closed a lot of the time and  it would have been very easy to draw the conclusion  the she was "shutting " the world and everybody out.  But, I can assure you that  that was the furtherist from the truth.  Now that she is home and feeling well, she looks back on the experience and relates to me that she always knew that I was there beside her and it conforted her to know that I was there, even though she could not express her feelings at the time.  Gail may not be able to tell you how much it means for you to be there.  Just  stay by her side and love will come through.  Our prayers are with you as you are going through this terrible ordeal.  We are all here by your side and know your agony.    Love and God Bless,
Ted and Patty

Hi All,  this is  an email that was sent to all of our friends and  family as an up date on Patty's  CC.  It is meant for our family here on the CC website as well. 


Hello to all you dear folk,
Patty and I feel that it is time to check in with you all to let you know how things are going.  July marks the beginning of Patty's sixth month since diagnosis of Cholangiocarcinoma.  Our days have been filled with joy and love for each other and gratefullness for each day that the Lord gives us.  At the moment, while I am writing this, Patty is playing the organ and I am just sitting here thinking how wonderful it is to have her in my life.  She brings so much sunshine and emotion to each day that we have together.  She is alway so cheerful and happy.  Her outlook on the future is full of hope and trusting in the Lord to know that He has her life in His hands.  I gain so much strength from her firm belief that, no matter what happens in her life, it is in the Lord's hands.  He knows the end from the beginning and He gives us the strength to face each day with happiness. 
Last week Patty had fever for several days and of course, this made us wonder what would be next.  The fever went away and now she really feels good again!!  Together, we face the future with renewed hope and strength, knowing that all of you are praying for us.  We look forward to going to church this coming Sabbath, if all goes well and Patty feels like going. 
We have added several new additions to our email list so for their benefit, I will include the link to our story that is on the cholangio website.  We gain so much insight from being part of the "family" on that website.  Everyone on the site either has cholangio or has a family that has it.  It is a very rare cancer and most everyone has not even heard of cholangiocarcinoma.  These dear folk come from all parts of the world to write in about their treatments and fears and sorrows and struggles with this awful desease.  So please read this site if you have a desire to learn more about cholangiocarcinoma. 
Again, thank you all for your support and love and prayers. 
Love and God Bless,
Ted and Patty

21

(6 replies, posted in Grief Management)

Dear JeffG,
Patty and I had tears as we read your poem that you posted for Alan's mom.  We too believe in the "Big Picture".  Our lives here are but a speck in time compared to the eternal life that we know awaits us with our loved ones.  Thank you for reminding us. 
Ted and Patty

Dear Paula,
First of all,  we want you to know that we are so sorry that your dad and your family is having to go through this terrible experience. 
Patty is 61 years old.  On Feb 21, Patty had the surgery to attempt the resection and it was not successful.  I remember clearly that Dr. Rosemurgy, the surgeon, came out to tell me after the surgery that Patty would only have 3 to 6 months to live.  I asked him about chemo and radiation and he said that the chemo might extend her life for a few months but Patty had to choose whither she wanted quantity or quality of life.  We were visited by a oncologist and he described the chemo and what to expect.  Patty decided, and I agreed, that she desired to live our her remaining time with as much quality as possible and just pray for a miracle and use as much supplements as we could discover that might help.  We both know that the immune system is the heart of healing and if it can be boosted high enough, there is a possibility of overcoming any cancer.  First of all,  Patty drinks about 20 ounces of fresh carrot juice a day.  We have res earched several supplements on line and decided on IP-6 and AHCC as the ones that looked like they had success on others with cancer.  As we mentioned on the posts, there were other supplements that she takes also, including Shitaki mushroom and Reishi mushroom extract. 
The decision to go or not to go with chemo and radiation is a very personal choice and we can only tell you what Patty decided to do.  Her lab work has improved over the last few months and she feels good and there is no nausea or pain.  She is leading an active life.  Her quality of life is very good.  We read all the posts and how some of the people with cc have extended their life with chemo but we also read how they suffer and believe that Patty made the right decision.  We know that we are in God's hands and we leave it all up to HIm to guide us.  We pray that your dad will know that what ever decision he makes, that it will be the Lord's leading in his life.  Please know that we are praying for him and his family.
God Bless you,
Ted and Patty

23

(4 replies, posted in Introductions!)

Dear LD
As Patty and I read your post, it brings back the memories of our nightmare that started about the same time as your husband. started showing his symptoms.  My dear beautiful wife, Patty, was diagnosed in feb. 07.  Please read our story in the "experiences" section.  Patty's cc was also unresectable and we were told that chemo might help some but not to expect much from it.  Patty decided (and I agreed) that she would have no chemo or radiaiton.  After several stays in Tampa General hospital in Tampa Florida to insert stents, they were finally able to place the internal stents and we came home.  Since that time her health has steadily improved and her lab work is all improving.  Her CA19-9 came down some this last month.  She feels well and has regained her weight.  I tell you this to maybe share with you some of the alternative treatment that she is doing.  She drinks 20 ounces of fresh carrot juice a day and takes IP-6 and AHCC in large amounts.  She also takes Shitake mushroom and Reishi mushroom extract.  She eats no animal products and eats fresh whole foods.  Please know that we share in your pain and distress and we will pray for your husband's recovery.  We trust heavily in Prayer and the Lord's divine leading. 
Ted and Patty

Peter,
Is the Lentinen injections the same as AHCC ( Active Hectose corrilated compound)?   Patty will be starting on that today.  (3gms/day).  She has had no chemo or radiation since her diagnosis and Feb 07.  Her tumor was unresectable.  She has been on IP-6 and lots of carrot juice and shitake and reishi mushroom extract.  She feels well and has energy and has gained 25 lbs since her surgery.  Her appetite is really good.  You are one of our "hero's" here on the cc website.  Everyone has become our "family" .  Best to you all.
Ted and Patty

Dear Jean,
Patty and I are so sorry to hear of your husband's death.  Please accept our condolences.  We read every post and find comfort and support from them.  We rejoice when there is a good report and we cry with you when there is sadness.  Like your husband, Patty had had no chemo or radiation.  She was diagnosed with cc in Feburary of 2007.  Her tumor was unresectable.  I thought I was going to lose my dear Patty several times during her recuperation from the surgeries she went through.  Your can read our complete story on the "Experiences" forum.  I am happy to report that, for the last two months, Patty had been experiencing wonderful health and good appetite.  She is on a lot of supplements but no chemo or radiaiton.  We feel that we have had help from the Lord in this time of good health.  We know that things could change at anytime and we are taking it one day at a time.  We are Christians and love our Lord and Saviour and know that we will see our loved ones again someday when God puts and end to all this suffering and we will live throughout eternity with Him and our loved ones.  Jean,  take heart,  you will see your husband again.  Patty and I cling to that hope everyday and is such a comfort to us.  We hurt with you at your loss but take heart. 
Ted and Patty