My friend is here in in Ottawa Canada and suffers from PSC (primary schlerosing colingitis). He has always been otherwise very healthy, and the colitis and PSC were controlled well with medication up until last summer.
His doctors in Ottawa, ON decided his first stent was required (to keep the bile duct open) in September of last year, just before his 41st birthday. The ERCP resulted in a case of severe acute pancreatitis, and he spent nearly a week in ICU with respiratory and kidney failure.
Herecovered very well from this, and was released from hospital after about 6 weeks, with dialysis required for only about 2 weeks after.
Later towards December, the medical team began to look more closely at the reason for the blockage of the bile duct, and discovered a dominant stricture, suspecting that it might be a cholangiocarcinoma. The suspect tissue is located low on the bile duct, close to the pancreas.
He had 3 biopsies over the last few months, with none resulting in a positive diagnosis - the most recent results came on March 29th - and the sample cells were determined to be "highly suspicious" for endocarcinoma.
A Whipple procedure was booked for last Friday April 16th. We were warned of 2 possible complications: 1. That there may be too much scarring from the pancreatitis to access the area, and more worrisome was 2. That the "tumour" might be involved with a main blood vessel (i.e., portal vein).
Unfortunately we received the worst news possible on Friday. The tumour was not resectable due to both of the concerns above. And a biopsy taken from the lymph was positive for adenocarcinoma.
We are looking for an innovative, aggressive treatment that could overcome the difficulties the surgeon encountered during the procedure.