I am 2 years since surgery. I celebrated it by attending this event at the Moscone Center in san Francisco.
When I first found this site I looked into volunteering but at the time- I didn't
have any of the qualifications that was needed.
I'm not really computer savvy and I type using 3 fingers.
So I thought that I would 'do my bit' by volunteering at these events.
You should see Marion. She is amazing. She can hold her own in any discussion with these world eminent oncological surgeons, researchers, scientists and oncologists. She attends meetings, listens to lectures and
sits in on seminars as well as checking in with me at the booth to make sure
that all is well.
Listening to her speak with these people is fascinating and interesting to me.
Tim, my fellow volunteer, is experienced in Research so he attended some meetings and reviewed the Abstracts for anything that pertained to CC.
I stayed at the CC booth and wished that I, too, could have done something equally as important for us all. I chastised myself for not paying more
attention at that computer class I took 3 years ago.........
But on the way home I realized that because of me ( as a volunteer) Marion could represent us at the Task Force meetings and Tim could attend those seminars/lectures and report on them for us.
And when the doctors and researchers came to the booth I told them that I was a CC patient and they would ask me questions. I wasn't shy about it/I answered all their questions.
I told them about our site and of how much it/ you all helped me. I told them that a lot of what I know about CC- I learned from our CC site and that I had to find it on my own and asked them to please refer their patients to the CC foundation site.
Some of these people were oncologists that have never had a CC patient- some were researchers or scientists and did not deal with people face to face in their work.
And it dawned on me that what I had done that day was also important--
I HAD PUT A FACE TO THIS TERRIBLE CANCER. I had stood in front of these
researchers/scientists and had humanized this cancer to them.
I wasn't a 'Liver' or 'Bile Duct Ca' in front of them- I was a tall woman smiling at them and speaking with them - a human being.
I don't think that I could have celebrated my 2 year anniversary in a better way.