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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 9
Wanted to update you on eveything... The wedding was amazing... We are now expecting our first baby and into my heart of hearts I know it was a christmas present from my poppop... It was a hard christmas without him... And we just remembered 1yr gone and its hard!! But now I have to get my butt in gear and start planning beef and beer for the foundation into honor of my poppop.. If anyone has any suggestions please pass them on
I am only like 2 hrs away from washinton Dc i can help as much as possible
So today was my bridal shower and when I walked in after saying hi to everyone I noticed there was a piture of me my poppop, brother and cousins on a table with a vase next to it... they had a picture of the cc foundation tree and instead of a wishing well they asked people to donate in my poppops name... i completely lost it... that meant more to me then the presents... we raised 100.00 and will be sending it in in his name... it goes to show you that people do care, we just need to continue to fight for the cause!!! just wanted to let everyone know this because it was very important to me!!!
That's crazy keep trying and don't give up!!! The government is absolutely absurd to think they will get away with not claiming this disease as a killer and brought on to our men from foreign wars... We will keep our heads up and keep getting the word out as best we can
Lainy, lol patience isn't one of my strong points but i am trying... and i feel that we all together will make a difference...
Darla, Yeah after i found out about this cancer I have been trying to do everything in my power to get the word out what is their reason for them denying your claim? it's crazy that they want our men to risk their lives but don't want to support them when they are sick because of where they were sent to protect our country or sent to be in a war we didnt belong in... the sad part is my poppop always wore his marine corps hat proudly... he actually had it on when he passed it was a request that we bring it to him in the hospital lol and he wore it the whole time he was there... it has been a struggle to continue the planning of the wedding but i promised him i would and thats the least i can do for him!!! as for the bracelets when i show them to people they ask what they are and i tell them a brief description and how the survival rate is low and that if they buy a breacelt for 2.00 all but .30 goes to the foundation for research and they can go to the website and it will tellyou more abt it... and if i see them again they say thank you i know someone that was in a was overseas and i let them know so slowly but surely we are getting the word out
I am selling the bracelets... Stacie gave me 100 of them to sell and I have been selling them for 2.00 so the foundation gets a bigger profit.. People are buying and starting to question too which is good we all need to get together and start bombarding our government and where ever we can I can't live feeling that I didn't do everything possible and I know u feel the same... Its disgusting that cc is so unheard of and its worse then pancreatic cancer!!! I get nauseous just thinking that we are doing so much and no one big cares u know?
I would like to send my condolences, letting someone go is the hardest thing in world to do... I watched my poppop pass in the end but he fought for a long time and it just tears them up inside and out... not just the sickness but everything he hated that he couldnt so anyhting he loved and in the end i had to tell him it was ok to let go and it was the hardest thing in the world for me... please keep us informed on how you and your family is doing
Thank you all for the support it helps to be able to talk to people that understand...Lainy, if you need any help with the claims let me know i have talked to a wonderful lady named sheila who's husband died 4 yrs to the day before my poppop and has been a huge help to my family and other families...
Julia, yes i agree that he is with Adrianna, my sister in law went 2 weeks late and I swear he was up there playing with her so he had time with her before she came to us... i know that sounds crazy but it is a feeling i have... I have my poppop's wedding band that I wear around my neck and i had her wear it the day they decided to do a csection because she wasnt dialating... so in my heart of hearts i know he had her and was playing with her....
Darla, did you have any issues getting your benefits there are only 6 cases i know that they approved so far my poppop was first diagnosed in 2003 when they did his whipple operation then again in 2006 when they found the tumor came back and up until 6 months before he passed he did everything he was used to hunted fished bated the woods worked on things he had a really good dr and refused to think he was sick lol and i think that was a huge part in how he stayed so active... he didnt tell us in 2003 that it was cancer so we had no idea until 2006 when it came back but even then he didnt tell us... i wish the government would do something like hold some kind of conference on the cancer so more vets new to go get tested earlier rather then later... I talk to people when i am out at a store and i see someone wearing a hat shirt anything military related to let them know abt the cancer and am still thrown back when they have no idea what cholangiocarcinoma is!!! I want and need to get the word out i just dont know how!!! i know telling one person at a time is helping but its not enough for me there are people out there dying....
My poppop, Charles J. Heaton, was more then just my grandfather he was like a dad.... He was the only man in my life that was there for me through everything from the day I was born! He would rub my belly to make me take my medicine when my mom couldn't get me to!! He believed in me even when I did't believe in myself! October 2 2010 I will be walking down the aisle without him and the closer it gets the harder it gets... He was supposed to walk me down the aisle and even though deep down I know that he will be there with me I wont be able to dance with him or to hold his hand and he wont bbe there when i have my babies...There is so much that i miss about him...his horrible attitude when things didn't go his way and the way he loved his family even when we were horrible to be around!!! He passed away 3 days after his 65th birthday on Jan 20,2010 and I still cry still want to blame and still take it out on people that dont deserve it... I dont know what to do... I made him promise that he would be there to walk me down the aisle and he fought soooo hard to do that but in the end i had to tell him it was ok to let go... it was the hardest thing i have ever had to do in my life! I remember the last thing he said was " I am sorry I won't be there to see my great granddaughter Adrianna( my little brother's girlfriend was due anyday) and then he grabbed my hand and said" I am sorry baby I wont be there to walk you down the aisle" I was at the hospital just abt everyday from dec 29 2009 to the day he died and everytime I walked in the nurses would say your baby is here!! LOL and before i would leave for the hospital he would call my cell at abt 8am to remind me to bring his Daily Journal... I remember everything and i am so scared that i will forget it all.... I was there when he took his last breath and my family had to pull me away from him i didnt want to leave him alone....I look back and I wish i could have done more.... there is not a day that goes by that i don't think of him and wonder how i am supposed to get through... my dr suggested grief couseling via hospice but i dont know how to go abt it... my poppop was a marine in the vietnam war and that is where the drs say he contracted the disease that took his life, my mommom is now fighting for spousal benefits which were never recieved during treatment... He is not the only vietnam vet that has suffered from this horrid disease his best friend died 8 yrs and a day before him from the sme cancer ruled the same cause... we need to get the word out to our vets who fought in vietnam so they can be tested...
Posts found: 9
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