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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
Due to recent news about new cancer treatments, CCF is gathering information about your experience with genetic testing of your tumor. Whether you have or have not
had any genetic testing it is important to answer the questions to help us make progress in cancer research.
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Posts found: 2
Andy, I'm so glad to read your story. I have had cc about a year longer than you---have had NO problems with my bile ducts, but my original tumor was 13 1/2 cm. I can't have surgery due to involvement with the great vessels of the liver. I have had cisplatin, gemcitabine, 5 fu, Xeloda, & radiation 2 times. I was fortunate to use the big Novalis machine at the University of Nebraska. No side effects at all from the radiation. What a blessing. So far so good & the tumor is 71/2 cm the last CT I had in early Aug. I am still working full time & have a goal set for retirement in 2 years. I hope I am so fortunate to see that day. Sharon Nebraska USA
SallyPa, I have gone the same route as your sister. But I will say I have been blessed---Started in Dec 2008- 13 1/2 cm --had cisplatin/gemcitabine---it shrunk---I had to quit the cisplatin, due to hearing side effects, continued w/ 5 fu & gemcitabine---Tried to have a surgery in Philadelphia Jefferson hospital Dr Doria, but my tumor was also wrapped around the large vessels & the surgeon had to give it up on it after he did an intraoperative ultrasound. So more chemo & then in the fall of 2009 radiation. and more radiation in April 2010. I now have a 7 1/2 cm tumor & have had no side effects from the radiation. I got to use the big Novalis machine at the University of Nebraska & I swear that it is wonderful. I work full time & have been able to continue except for some occasional 1/2 days off for the chemo. My goal is to survive long enough to retire. . . 2 more years!! God is Good. Sharon Nebr
Posts found: 2