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Andy, I'm so glad to read your story. I have had cc about a year longer than you---have had NO problems with my bile ducts, but my original tumor was 13 1/2 cm. I can't have surgery due to involvement with the great vessels of the liver. I have had cisplatin, gemcitabine, 5 fu, Xeloda, & radiation 2 times. I was fortunate to use the big Novalis machine at the University of Nebraska. No side effects at all from the radiation. What a blessing. So far so good & the tumor is 71/2 cm the last CT I had in early Aug. I am still working full time & have a goal set for retirement in 2 years. I hope I am so fortunate to see that day. Sharon Nebraska USA
SallyPa, I have gone the same route as your sister. But I will say I have been blessed---Started in Dec 2008- 13 1/2 cm --had cisplatin/gemcitabine---it shrunk---I had to quit the cisplatin, due to hearing side effects, continued w/ 5 fu & gemcitabine---Tried to have a surgery in Philadelphia Jefferson hospital Dr Doria, but my tumor was also wrapped around the large vessels & the surgeon had to give it up on it after he did an intraoperative ultrasound. So more chemo & then in the fall of 2009 radiation. and more radiation in April 2010. I now have a 7 1/2 cm tumor & have had no side effects from the radiation. I got to use the big Novalis machine at the University of Nebraska & I swear that it is wonderful. I work full time & have been able to continue except for some occasional 1/2 days off for the chemo. My goal is to survive long enough to retire. . . 2 more years!! God is Good. Sharon Nebr
Posts found: 2