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Rach883, I would love to know more about your story. I am a CC survivor due to 2 liver transplants. I am curious how you got a transplant 2 months after diagnose. Did you not have to do chemo, radiation...
Thanks for sharing, we need more positive transplant stories on our site.
Lots of prayers to stay healthy-Cathy

Jason-Welcome and sorry you had to find us. I am a CC survivor thanks to a liver transplant. I will be 4 years cancer free on Friday!! I have an amazing story to share and keep it posted at www.catherinedunnagan.com under the telegraph link. There is HOPE.
My miracle who saved my life twice is Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. Dr. Chapman help develop the Mayo protocol and is the most kind, loving doctor. The one reason I am metionning his name is because last year I was honored to be invited to a lecture/ reception for him and what he talked about was getting more ICC patients into the transplant program and how they were making great strides and including some. I could fill books about this man and his heart. We have a gentleman who lives in Hawaii and flew his wife all over for treatment and believes if he had found Dr. Chapman sooner she would still be here. Dr. Chapman also is very phone friendly. We just had a young women have her life saved by a doctor who did his fellowship under Dr. Chapman and he calls him his HERO!!
One of the miracles of my story is I grew up in California (Sunnyvale) and was very whiney about living in Midwest and it turns out the one place that could save my life was 20 mins away!! Boy did God shut me up!!
Please call (618-567-3247) if you would like to talk or need anything
Lots of prayers and HOPE-Cathy

Allehuia!! Sooo excited for you and Lauren, what a great birthday gift Dr. Sonneday gave you!!! Happy happy belated birthday!!
Lots of prayers for an easy and quick recovery-Cathy

That article just reaffirms how lucky I was to be diagnosed by a doctor who I never met and knew exactly what he saw. I will always remember his words, "I know what I saw and I know it will come back a false negative but it is cholangiocarcinoma  and her only hope is a liver transplant with Dr. Chapman"!! No fuss no mess, a diagnose and treatment plan in 2minutes!! I can't even order McDonalds that fast and it be right too!!! LOL!!
I am alive because of God, 2strangers,  Dr. Aliperty and Dr. Chapman!
Cathy

Hi Carl, I hope your wife's chemo went well. Starting chemo is scary but I felt like I was doing something to fight the cancer so I was sooo ready The actual chemo treatment is usually non-eventful, the after effects for me was very tired about 48 hours after chemo and really just lasted a day  I also kept 3 different ant-nausea drugs in my system as a preventive.
Lots of prayers and HOPE-Cathy

Bompie-I loved my port, I have no viens and it is so painful for something as simple as blood draws. I do blood draws every month and I can't remember the last time I left with just one stick!! I had to have my port removed after my second transplant because I was going septic and all foreign objects in my body had to be removed, I cried about it. I had no problems with mine.
Lots of prayers and HOPE-Cathy

Jason, Welcome and sorry you had go find us. I am a CC survivor! I will be cancer free for 4 years on May 24, 2013. I too was stage 4 and inoperable and my only hope was a liver transplant. (I had 2 !!). I have the most amazing story to share and you can read it at www.catherinedunnagan.com There is HOPE. I am alive because of God, 2 strangers and Dr. William Chapman. (The amazing part that is exactly how Dr. Chapman would list it)
My miracle worker was Dr. William Chapman at Barnes-Jewish Hospital in St. Louis, MO. I could fill a book about the heart and soul of this man. Dr. Chapman, Dr. Kato and Dr. Javle are some of the main miracle workers for our CC family. They all have been known to change peoples diagnose to give HOPE!
Please feel free to contact me if I can help.
Lots ofprayers and HOPE-Cathy

RoseGrace-Welcome and sorry you had to find us. I am a CC survivor due to a liver transplant. I have the most amazing story to share, please read it at www.catherinedunnagan.com under ther telegraph link. I am alive because of God, 2 strangers and Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO . Dr. Chapman is the most genuine caring doctor and very successful in his work, he help develop the Mayo's trial. There are 3 of us that HAD CC that doctor has transplanted, and Barnes is only 31/2 hours away for you. Barnes is also list as a Cholangiocarcinoma center! There was one other gentleman who lived in Iowa/South Dakato area and contacted Dr. Chapman for his mom for a second opinion after contacting Mayo and was able to see him and schedule her surgery (resection) and treatment plan before his appointment date at Mayo. Dr. Chapman is a real hero!!
Your mother-in-law's case sounds a lot like mine
Please call if you would like to talk (618-567-3247) or if if you would like Dr. Chapman's number, he is very phone friendly!! There is HOPE!!
Lots of prayers-Cathy

Welcome and like all have said sorry you had to find us. I am a CC survivor thanks to a liver transplant. I like most of us, was not sick just itchy and the diagnose was the most thre ridiculous thing I heard. I was very fortunate that by a series of "miracles" (or mistakes!) I was diagnosed by one of the top doctors in this field and was immediately put in the care of another top doctor, Dr. William Chapman at Barnes-Jewish Hospital, St. Louis MO. I have the most amazing story to share please read it at www.catherinedunnagan.com there is HOPE. I will be 4 years cancer free May 24, 2013.
I was diagnosed July 31, 2008 and didn't start my chemo till the first week of September. I had to have a staging surgery, a port put in, be marked for radiation and several other appointments and procedures before chemo could start.
Please feel free to contact me if you would like to talk or if there is anything I can do (618-567-3247).
Lots of prayers and HOPE-Cathy

Lainy-You always make me laugh and you also made me realize nioxin works!! I have been using Nioxin for the last few weeks because I ran out of my regular shampoo and was waiting for the Litre sale in a week(Love saving money) and I had a big litre of Nioxin  left from my  chemo days so I used it, Well I rescheduled my hair cut today because I couldn't wait another 3 weeks for my 6 weeks appointment and now I know why!! Nioxin works!! I just realized it thanks to your posting!!
Good luck with the "new do" shopping!!
Lots of prayers-Cathy

Pam, Glad you made it home and nothing like a happy pup to make you feel so loved!! When I had my second transplant my legs were bigger than giagantic!! They said it was lypmadema (not sure about spelling) and they were wrapped daily by two types of industrial ace bandages, it took the nurse about and hour and a half to wrap them everyday. This went on for a couple weeks. I was told when I was discharged if this occured again to go to a clinic that did this. I know breast cancer usually have this problem in there arm and wear a special bandage. You might check with your daughter or Dr. Sonneday if this could be the cause.
Lots of prayers and HOPE-Cathy