1

(43 replies, posted in General Discussion)

does anyone know if Dr. Canady has an email address?????   Thanks

2

(28 replies, posted in Good News / What's Working)

Hi Cherryle

My wife said something about that also. I will try to post the link asap.

Tom

3

(28 replies, posted in Good News / What's Working)

Hello

I see that there are 2 people scheduled for meetings or surgery with Doctor Canady next week. Please post updates for our readers if possible.


Thanks


PS: Both my wife and I were suspicious of him to say the least. I am trying to give advice according to facts and not feelings to one of my family members that is ill.

I am getting more confused then ever re: my father and the next step I should take. I am worried that his time on earth my be extremely limited. I am being pressured by my family to make the right decision re; what to do next. At first we thought maybe we should go and get second opinion for chemoebolization from Dr Geschwin as recommended by Colleen. No reading through Maryanne's family blog and Joe's hx, I am questioning why hasn't my father been offered radiofrequency ablation... this is something we would have like to see him get as one of the first tx. Then I read about Dr. Canady and transplant...wonder if dropping him an e-mail should be my next step. I am totally confused, uncertain, and not sure if sometimes I am chasing my tail in circles!!!
Lana

5

(30 replies, posted in General Discussion)

Dear Maryanne,
Thank you for sharing your info. I read your family blogs. I am interested to know what is IPT? How was Joe offered RFA- seems as if my father was not a cadidate due to size of his tumor. What size was Joe's tumor when they did that?
God has truly blessed you,
Many more blessings for you,
Sincerely,
Lana

6

(30 replies, posted in General Discussion)

Hi Colleen

Who is the doctor and what chemo was given during your husbands treatments.


Thanks

Hello

What type of chemo was used? We tried Adriamycin and Mitomycin-c.  This did not work for us at all.

Thanks

8

(10 replies, posted in Adverse Reactions & Side Effects)

My father has also gotten hiccups in hospital after being treated with chemoembilization. I am a nurse practitioner, and I believe it is definitely linked to the chemo. A part of me also wonders, as we have seen people with no hx of cancer that come into the ER with irretractible hiccups. This is a syndrome that sometimes may be linked to pancreatic disorders.
Lana

9

(5 replies, posted in General Discussion)

Thank you all so very much for having this website! Unfortunately, dad was unable to get therasphere. They did a trial run with some dye. He would have gotten too much radiation in his lungs. He had his second chemoembolization this weekend. 1st treatment was brutal!!! He had a lot of pain after procedure. The 2nd time was much better, other than vomiting bile. We are hoping to shrink tumor to give him some more options(preferably resection). Can anyone tell me why people with cholangiocarcinoma are not candidates for liver transplant? Seems to me that not too many people have even been given this chance. Dad is #15 case with his praticular type of cancer being treated at Mayo Clinic. He has intrahepatic cholangio. Very difficult to compare apples to apples with this rare type of cancer.
God Bless all of you,
Please know that our prayers are with you and your families always.
Lana

10

(5 replies, posted in General Discussion)

Dad just received stent today and all went well Hopefully his bilirubin will drop into a range to allow him to receive therasphere.  He will be the first pt at Mayo Clinic in rodchester MN to receive the tx. If all goes well,, I will shout it from the mountain top to help all others out there with cc. The scary thing about my dad is that Mayo just about wrote him off, told him to go home and that he would have 6-9 months to live. That was prior to getting final path report. Then prior to his stent, one of his doctors was quite negative, told him that they may not even place stent if his common bile duct wasn't blocked. Thank God literally, that all went well.
We still have hope,
Lana

11

(5 replies, posted in Chemotherapy)

How interesting!! My father was just at his first visit at Mayo- met with several specialists. I asked about Tarceva and the oncologist said that there is no research behind this medication and that the side effects are basically horrible. Please let me know more!!
Lana