Thank you to all of you who have posted. I have been reading the posts and gaining inspiration from all of you.
I was diagnosed in April 2010 with stage 4 CC and surgery was not an option due to the widespread metastatic disease in my liver. I went through 6 cycles of Gemcitabine and Cisplatin and tolerated it very well and had much symptom improvement (decreased abdominal bloating and pain). Anticipating good results, in July I had a PET scan and CT scan which confirmed bone metastases. So once again my doctors have told me how unusual this disease is and now again to hear how bone mets is unusual. I also had a bone CT to confirm areas of disease in my spine. I am very fortunate as I don't feel any increased pain or discomfort.
I am playing the waiting game now. My platelets have not recovered well from the gemcitabine therapy so we are waiting for them to go back up before I start my 2nd line therapy of 5-FU/Leucovorin plus oxaliplatin.
I am being seen by a wonderful doctor at Johns Hopkins Hospital who has helped guide us through this process. Because of the nature of my disease a clinical trial is not an option. Plus I have decided not to pursue a clinical trial because I want to be with my family as much as I can. After all these months with multiple appointments I'm happy to be feeling well and enjoying my family.
I have an unbelievably supportive family that includes my husband, a son who is 11 years old, and a daughter who is 9 years old. They have been wonderful and I love them so much.
I went to my first yoga class specifically for cancer patients this week. I still cry when I discuss my disease with others. But the class was very supportive and understanding and relaxing! I am thankful to be well enough to attend and feel my body again.
I have learned many things with this disease but one is to seek out supportive doctors. Don't listen to the first oncologist who never looks at you in the eye but tells you you only have a couple of years to live. No one knows how this disease will progress and everyone is unique. Everyone is beautiful and time is irrelevant.
I send my hugs and support to everyone here!