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(5 replies, posted in Introductions!)

Lainy thank you for the kind words. First there were no signs of anything until her eyes turned yellow in July, then it was back and forth to the radiology department to get billiary tubes placed in her liver. First the left side, then jaundice got worse and they placed a tube in the right side. This then started leaking and she got an infection. In and out of the hospital for three weeks to treat. The surgical oncologist was not sure where the cancer orginated until they completed a lung biopsy on her, nodules had formed there and this is when the definate of the type of cancer was known. Since then we have had to cancel 2 oncology appointments due to hospitalizations for dehydration, vomitting, breakthrough pain, and infection. the cancer was already at stage 4 when discovered and had gone to lungs (though nodules are very very small). We are trying tofind the right breakthrough pain meds so she can do things during the day and not be a zombie. Currently it is fentenol patch 100 micrograms and delotted (sp) 4mg pills every 2 hours (pray this works). We are in Rochester ny and welcome any advice....

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(5 replies, posted in Introductions!)

Hello my name is Valerie and my partner was diagnosed with cholangiocarcinoma in July. She just celebrated her 48th birthday and are set to meet with an oncologist the 18th. Unfortunately she is already at stage 4 and the cancer has metasecized (sp?) to her lungs. I have no real support and looking here for some answers.